My Experience With PriapismPriapism is a sickle cell complication that many people know nothing about. I understand because priapism is a complication that affects only male sickle cell warriors. I was 17 or... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments8 comments
How Sickle Cell Affects My Social LifeSickle cell affects all parts of a patient's life: Finances, love, and our work, school and social lives. For me, this started when I was barely 2 years old. Kids... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments0 comments
Finding Empowerment Through Writing on a Tough DayToday was really overwhelming. Being a med-student is hard. Not just because of the insane amount of material or the long days put into studying and even longer working hours... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments1 comments
What Triggers a Pain Crisis?Hi All, my name is Grace. I am a wife, mother and I work as a full-time content creator. I also am living with sickle cell disease. We all know... By Grace Adeyinka1 min readBookmark for laterReactions 0 reactions Comments0 comments
Sickle Cell and PTSDHaving a chronic illness is not easy at all and I know that a lot of us have been through some traumatic experiences. It got me thinking about post-traumatic stress... By Alisha Whynn3 min readBookmark for laterReactions 0 reactions Comments1 comments
How I Discovered Cannabis for PainI wish I knew about cannabis years ago, it would have saved me from a lot of stress. Truth is, ever since I started using it, I’ve seen changes in... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments2 comments
Universal Coverage and Sickle Cell DiseaseSickle cell disease is the world’s most common heritable blood disorder and arguably one of the most racially polarizing diseases that exist today. Unfortunately, sickle cell disease is also one... By Andre Harris3 min readBookmark for laterReactions 0 reactions Comments3 comments
Advocating for Yourself in the Emergency RoomDr. Simone Eastman Uwan (known to the sickle cell community as Dr. Simone) was diagnosed with sickle cell disease in college, even though she had symptoms all her life. Her... By Editorial Team 5 min readBookmark for laterReactions 0 reactions Comments1 comments
What Is Sickle Cell Anemia?Sickle cell anemia (Hbss) is a condition of the red blood cells. It is part of a group of disorders called sickle cell disease. Sickle cell anemia is the most... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Dancing in the RainI love dancing in the rain. I think it started when I first watched Dirty Dancing or maybe Singing in the Rain. Either way, something about when it’s raining enough... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments1 comments
Pregnancy, Motherhood & Accepting the Limits of Sickle CellPregnancy for me was an exciting time. It did not start with the usual morning sickness and discomfort that most people complain about. In fact, I did not even know... By Rhedd Maya4 min readBookmark for laterReactions 0 reactions Comments0 comments
Sickle Cell Awareness Month 2021We are so excited to participate in National Sickle Cell Awareness Month this year! This month is for all of the strong sickle cell warriors out there. We have activities... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments5 comments
Sickle Cell Awareness Month 2021 GiveawayWe are so excited to participate in National Sickle Cell Awareness Month this year! This month is for all of the strong sickle cell warriors out there. One way that... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Self-Care and CreativitySickle cell can cause feelings of worry and leave you overwhelmed. Finding ways to cope with the emotions and experiences that come with sickle cell can be difficult. Self-care is... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments
Life Checks: Resiliency and Rule-BreakingKnowing the things that trigger crises is a necessity, you also need to know your limits and be cautious as much as possible not to overdo things. For instance, it’s... By Rhedd Maya2 min readBookmark for laterReactions 0 reactions Comments2 comments
Planning and Preparing for Exercise With Sickle CellExercise is important for improving our well-being as individuals living with sickle cell. Aerobic exercises like walking can help increase the flow of oxygen. You know the lack of oxygen... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments1 comments
What Is It Like to Visit the ER With a Pain Crisis?People living with sickle cell disease (SCD) often experience severe pain and sometimes need treatment in the emergency room. In our 2020 Sickle Cell Disease In America survey, we explored... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
3 Things You Shouldn’t Say When Treating Someone With Sickle CellBeing in a crisis that is so bad you’ve had to take yourself to the hospital is not the best feeling in the world. It’s probably happened to many of... By Jenica Leah1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Airplane EssentialsAs a frequent solo traveler, I believe the saying ‘catch flights not feelings’ was created just for me. I can definitely say I have caught more flights than feelings in... By Jenica Leah2 min readBookmark for laterReactions 0 reactions Comments0 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like sickle cell disease... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments