Patient-Controlled Analgesia for Pain CrisesSickle cell disease (SCD) can be very painful, especially during an acute pain crisis. This is also called a sickle cell or vaso-occlusive crisis. They can be sudden and may...Reactions0reactionsComments0 comments
Digital Health vs. Digital TherapeuticsTechnology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...Reactions0reactionsComments0 comments
Sickle Cell & Workplace DiscriminationWhen I graduated from university, I knew that I would need to get a job that would help me to sustain myself. The initial plan was to have enough income...Reactions0reactionsComments1 comments
How I Learned to Cope With StressOne known trigger for sickle cell pain crises is stress. All my life, I’ve been recommended to avoid stress and to learn how to cope with stress. My parents at...Reactions0reactionsComments1 comments
A Crescent Every DayIt was around Christmas when I had my first crisis. I was four years old. We had traveled out of town for the celebration when it happened. My parents quickly...Reactions0reactionsComments0 comments
What's In My Travel Medication BagWhen traveling, I always like to feel as prepared as possible for anything that could happen in regards to my sickle cell. For those of us that live with it;...Reactions0reactionsComments2 comments
Finding Balance Between Work and HealthWorking with sickle cell can be really tough. I say this because of the unpredictable nature of sickle cell disorder. This minute you're fine, the next you're in pain trying...Reactions0reactionsComments2 comments
My Travel Check ListTraveling abroad used to make me nervous. The feeling of 'have I packed everything?' is a bit more intense when you have to consider more than just clothes, currency, and...Reactions0reactionsComments1 comments
Overcoming Worry & Stigma: Sadiq's Story (Part 2)I introduced you to Sadiq, a 20-year-old young man who has sickle cell disease type SS in part one, Living with Sickle Cell: Sadiq's Story. Despite all the challenges, he...Reactions0reactionsComments0 comments
Sharing My TruthWhen I was in elementary school and first diagnosed with sickle cell anemia, I never talked about it honestly unless it was absolutely necessary. My mom didn’t want me to...Reactions0reactionsComments0 comments
Sickle Cell Disease and COVID-19Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"...Reactions0reactionsComments0 comments
How Can I Support My Child With Sickle Cell?In my childhood days, anytime I had crises or got sick, my mum would be so emotional. She would hold my hand and say, “I’m so sorry you have to...Reactions0reactionsComments1 comments
Staying Hydrated When You Have Sickle Cell DiseaseWhen you live with sickle cell disease (SCD), it is important to drink plenty of water and other fluids. This helps you to stay hydrated. If you become dehydrated, your...Reactions0reactionsComments0 comments
Accepting and Understanding Sickle CellI first understood what it meant to have sickle cell when I had my first crisis at 19. It is definitely different growing up as someone living with sickle cell...Reactions0reactionsComments1 comments
Balancing Motherhood and Sickle CellHi guys, my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also living with sickle cell disease. We all know...Reactions0reactionsComments1 comments
The Challenges of Attending School With Sickle CellI first understood what it meant to have sickle cell when I was growing up as a child in primary school. Often I would miss a lot of time off...Reactions0reactionsComments2 comments
2020 In America Findings: Staying Strong With Sickle CellEvery year, an estimated 300,000 babies are born with sickle cell disease globally. Approximately 100,000 people are thought to live with sickle cell disease in the US. Over the past...Reactions0reactionsComments0 comments
What Is World Sickle Cell Day?World Sickle Cell Day is celebrated on June 19 every year. Established in 2008 by the United Nations General Assembly, World Sickle Cell Day acknowledges sickle cell disease as a...Reactions0reactionsComments0 comments
Living With Sickle Cell: Sadiq's StoryLike parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to Sadiq, a 20-year-old man who lives in Nigeria...Reactions0reactionsComments2 comments
Overcoming Challenges of Sickle Cell: You Are Not AloneSickle cell disease is a blood disorder that affects many African Americans. If you know anybody with sickle cell, please understand the pain and suffering that they may have gone...Reactions0reactionsComments1 comments