Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites...reactionscomments
Rebuilding My Confidence With AVNI believe everyone living with sickle cell disorder has an idea of what avascular necrosis is. Even if you have not experienced...reactions3comments
Five Things I Wish I Knew Before the TransplantI've said it about a million times, I'm happy I participated in a clinical trial and got a second chance at living...reactions1comment
Prioritizing Self-Care After TransplantUndergoing a transplant is a difficult process for children and adults because each stage - from conditioning to stem cell infusion, and...reactions1comment
Ask the Advocates: Rare Disease DayRare Disease Day® is celebrated on the last day of February every year. This year, it falls on February 28, 2022. This...reactionscomments
Living Within My Means as a WarriorI believe I was born to be rich. I can tell by the size of my dreams and aspirations. I set goals...reactions6comments
A Close Encounter With COVID-19As soon as you turn on the television you are confronted with the rising COVID-19 cases trend. This is not only in...reactionscomments
FatigueWhen I was little, and I would get sick, my mother would hardly ever let me skip school. She’d push me to...reactionscomments
5 Important NutrientsHave you ever wondered why the majority of people living with sickle cell look younger and have a smaller stature than their...reactions2comments
The Importance of Improving Your NutritionMy name is Wunmi and I'm a foodie! Carbs, snacks, and sugary drinks are the way to my heart. I mean the...reactions7comments
Unmade MemoriesIt is always wise to plan activities way ahead of time. This is supposed to help make the outcome be well planned...reactions4comments
Legalization of Medical Marijuana: The Impact on Those Living With Chronic Health ConditionsSurveys show a majority of people in the United States are in favor of legalized marijuana for medical or recreational use. As...reactionscomments
10 Things You Should Know About Clinical TrialsEach year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good...reactions1comment
My Airplane EssentialsAs a frequent solo traveler, I believe the saying ‘catch flights not feelings’ was created just for me. I can definitely say...reactionscomments
Fearfulness vs. FearlessnessSometimes I worry that I am living my life in fear. In fear of triggering a sickle cell attack, of not being...reactions5comments
Staying Positive With Sickle CellTelling someone to stay positive is one of the vaguest pieces of advice you can give to someone living with sickle cell...reactions8comments
Dancing in the RainI love dancing in the rain. I think it started when I first watched Dirty Dancing or maybe Singing in the Rain...reactions1comment
How Much Do You Know About Sickle Cell Disease?Did you know that April is National Minority Health Month? Sickle cell disease is a rare disease that affects mainly Black people...reactionscomments
A Few Methods I Use To Help Me Get To SleepDid you know that around 70% of adults with sickle cell disease experience sleep disturbances? Well, I had no idea. I thought...reactions4comments
How to Make 2022 a Better Year With Sickle Cell'I want this year to be better than last year.' Have you ever told yourself this? Sure you have. As humans, we...reactions3comments
