My Travel Check ListTraveling abroad used to make me nervous. The feeling of 'have I packed everything?' is a bit more intense when you have to consider more than just clothes, currency, and... By Jenica Leah3 min readBookmark for laterReactions 0 reactions Comments1 comments
Overcoming Worry & Stigma: Sadiq's Story (Part 2)I introduced you to Sadiq, a 20-year-old young man who has sickle cell disease type SS in part one, Living with Sickle Cell: Sadiq's Story. Despite all the challenges, he... By Andressa Hunsel2 min readBookmark for laterReactions 0 reactions Comments0 comments
Sharing My TruthWhen I was in elementary school and first diagnosed with sickle cell anemia, I never talked about it honestly unless it was absolutely necessary. My mom didn’t want me to... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments0 comments
Sickle Cell Disease and COVID-19Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
How Can I Support My Child With Sickle Cell?In my childhood days, anytime I had crises or got sick, my mum would be so emotional. She would hold my hand and say, “I’m so sorry you have to... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments1 comments
Staying Hydrated When You Have Sickle Cell DiseaseWhen you live with sickle cell disease (SCD), it is important to drink plenty of water and other fluids. This helps you to stay hydrated. If you become dehydrated, your... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Accepting and Understanding Sickle CellI first understood what it meant to have sickle cell when I had my first crisis at 19. It is definitely different growing up as someone living with sickle cell... By Abayomi Afolayan2 min readBookmark for laterReactions 0 reactions Comments1 comments
Balancing Motherhood and Sickle CellHi guys, my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also living with sickle cell disease. We all know... By Grace Adeyinka1 min readBookmark for laterReactions 0 reactions Comments1 comments
The Challenges of Attending School With Sickle CellI first understood what it meant to have sickle cell when I was growing up as a child in primary school. Often I would miss a lot of time off... By Dialectic Dee3 min readBookmark for laterReactions 0 reactions Comments2 comments
2020 In America Findings: Staying Strong With Sickle CellEvery year, an estimated 300,000 babies are born with sickle cell disease globally. Approximately 100,000 people are thought to live with sickle cell disease in the US. Over the past... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is World Sickle Cell Day?World Sickle Cell Day is celebrated on June 19 every year. Established in 2008 by the United Nations General Assembly, World Sickle Cell Day acknowledges sickle cell disease as a... By sonia-dattaray3 min readBookmark for laterReactions 0 reactions Comments0 comments
Living With Sickle Cell: Sadiq's StoryLike parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to Sadiq, a 20-year-old man who lives in Nigeria... By Andressa Hunsel2 min readBookmark for laterReactions 0 reactions Comments2 comments
Overcoming Challenges of Sickle Cell: You Are Not AloneSickle cell disease is a blood disorder that affects many African Americans. If you know anybody with sickle cell, please understand the pain and suffering that they may have gone... By Sam Adeyinka2 min readBookmark for laterReactions 0 reactions Comments1 comments
World Sickle Cell Day 2021 Hydration Giveaway!World Sickle Cell Day is coming up on June 19! To celebrate a day that sheds much-needed awareness on sickle cell, we are giving away 1 insulated water bottle with... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like sickle cell disease... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Why My Birthday Is A Big DealI’ve always loved birthdays; who doesn’t? As a child it was a day to be spoilt, pampered and dare I say, see who gives you the best present. But as... By Jenica Leah3 min readBookmark for laterReactions 0 reactions Comments3 comments
Transgender Care and Sickle CellAbout 1.4 million adults in the United States identify as transgender. For transgender adults with sickle cell disease (SCD), necessary transgender care may be hard to access. Racial, gender, and... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Freedom to Be a CrescentFor some reason, it is so hard for people living with sickle cell disease (SCD) to speak freely or live freely. Sometimes, this happens out of care and love for us... By Rhedd Maya5 min readBookmark for laterReactions 0 reactions Comments0 comments
Dr. McGann On The Road To Caring For Sickle Cell PatientsIn this video, I am joined by Dr. Patrick McGann from Cincinnati Children's Hospital. Dr. McGann is an academic pediatric hematologist who does research focusing on improving outcomes for children... By Halimat Olaniyan1 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips For Dating With Sickle CellHi Guys my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also living with sickle cell disease. Before I got... By Grace Adeyinka1 min readBookmark for laterReactions 0 reactions Comments0 comments