Everyone Can Be an AdvocateI chose to become a "professional" sickle cell advocate around 7 years ago. I was out of work and school, largely due...reactions2comments
Stop Doing These ThingsHi Guys my name is Grace. I am a wife, mother, and I work as a full-time blogger. I also live with...reactions1comment
What Is a Pain Management Specialist? Should I See One?Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of...reactions1comment
I Appreciate You!I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to...reactions2comments
2022 World Sickle Cell Day Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the 2022 World Sickle Cell Day Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE...reactionscomments
Can Parents Really Accept Sickle Cell?As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process...reactions5comments
Made Up of More Than Sick CellsIt just dawned on me that I’m more than a warrior. Realizing the number of times I didn’t give up even though...reactions3comments
Practicing Self-Care on a BudgetIn the past, we have talked about the importance of self-care and shared examples of how you can practice it in your...reactionscomments
Making Friends and Building RelationshipsYou’d agree with me that building relationships is an important life skill. In order to survive and become the best we can...reactions6comments
What I Wish Everyone Knew About Sickle CellLet's start with the fact that sickle cell disorder doesn't get enough awareness as it should. What is even more worrying is...reactions3comments
The Invisibility and Stigma of Chronic PainPain is sometimes called an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain often cannot be...reactions3comments
Life After Transplant: Understanding the 5 Pillars of Chronic Pain ManagementOne of the primary reasons I participated in a stem cell clinical trial was to alleviate my chronic pain. According to the...reactions5comments
Deciding on a Career as a Physician with Sickle CellThe third year of medical school is all about career exploration. We rotate through many of the major specialties in the field...reactions3comments
My Journey to Happily Ever AfterI’ve always been enamored by Disney’s animation and storytelling, eagerly anticipating the blissful end of the fairy tale. The simple meaning of...reactions5comments
My First Bankruptcy With SCDMy mum used to complain all the time about hospital bills and the toll it’s taking on the family. At a point...reactions2comments
Sickle Cell's Influence on My CareerSickle cell can influence the career we choose. It can stop us from going for a particular career perhaps because of the...reactions3comments
Research Opportunity: Sickle Cell and Intimate RelationsLoma Linda University School of Behavioral Health is conducting a study to understand the experiences of sickle cell patients and their partners...reactions1comment
American Society of Hematology Sickle Cell Patient Care GuidelinesPeople with sickle cell disease (SCD) often have a lot of pain. SCD pain can happen suddenly and be severe, or it...reactionscomments
Grieving the Loss of a WarriorAs an SCD patient, you probably have met another warrior who is no more. The fear of death that comes with SCD...reactions1comment
5 Lessons Sickle Cell Has Taught MeLife is the best teacher, they say. I totally agree with that because in every situation we find ourselves in life, there...reactions10comments