Can Parents Really Accept Sickle Cell?As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process look like? During Thanksgiving, we sat at the...reactions5comments
Made Up of More Than Sick CellsIt just dawned on me that I’m more than a warrior. Realizing the number of times I didn’t give up even though I had all the reasons to... Wow, that...reactions3comments
Practicing Self-Care on a BudgetIn the past, we have talked about the importance of self-care and shared examples of how you can practice it in your daily life. However, some self-care “treats” are more...reactionscomments
Making Friends and Building RelationshipsYou’d agree with me that building relationships is an important life skill. In order to survive and become the best we can be, we need to relate with others. Unfortunately...reactions6comments
What I Wish Everyone Knew About Sickle CellLet's start with the fact that sickle cell disorder doesn't get enough awareness as it should. What is even more worrying is that some people do not have access to...reactions3comments
The Invisibility and Stigma of Chronic PainPain is sometimes called an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain often cannot be seen. Because of this, it is possible for...reactions3comments
Life After Transplant: Understanding the 5 Pillars of Chronic Pain ManagementOne of the primary reasons I participated in a stem cell clinical trial was to alleviate my chronic pain. According to the US National Library of Medicine, chronic pain is...reactions5comments
Deciding on a Career as a Physician with Sickle CellThe third year of medical school is all about career exploration. We rotate through many of the major specialties in the field of medicine such as: obstetrics and gynecology (OBGYN)...reactions3comments
My Journey to Happily Ever AfterI’ve always been enamored by Disney’s animation and storytelling, eagerly anticipating the blissful end of the fairy tale. The simple meaning of happily ever after is that happiness pervades onwards...reactions5comments
My First Bankruptcy With SCDMy mum used to complain all the time about hospital bills and the toll it’s taking on the family. At a point, she began to think it was a spiritual...reactions2comments
Sickle Cell's Influence on My CareerSickle cell can influence the career we choose. It can stop us from going for a particular career perhaps because of the stress involved. For me, sickle cell disease has...reactions3comments
Research Opportunity: Sickle Cell and Intimate RelationsLoma Linda University School of Behavioral Health is conducting a study to understand the experiences of sickle cell patients and their partners as they navigate living with sickle cell disease...reactions1comment
American Society of Hematology Sickle Cell Patient Care GuidelinesPeople with sickle cell disease (SCD) often have a lot of pain. SCD pain can happen suddenly and be severe, or it can be long-term or chronic. Pain is a...reactionscomments
Grieving the Loss of a WarriorAs an SCD patient, you probably have met another warrior who is no more. The fear of death that comes with SCD gets worse or deepened anytime such a death...reactions1comment
5 Lessons Sickle Cell Has Taught MeLife is the best teacher, they say. I totally agree with that because in every situation we find ourselves in life, there is something to learn, and living with sickle...reactions10comments
Averting Cold Weather CrisesThe hallmark complication of sickle cell disease (SCD) is acute pain. Episodes of acute pain can occur at any time and are often caused by certain triggers. One of these...reactions2comments
Comforting Other ParentsDo you recognize this? You are in the hospital with your child, and you get a call from a good friend. As you vent as a parent, you hear “It...reactionscomments
Why Are Family Histories Important?Which family do you come from? The family that is mute on every medical condition or the family that informs other members of critical information? I have had a number...reactions1comment
Purpose and PerspectiveHaving sickle cell anemia has given me two things: purpose and perspective. Although I do not believe that my disease defines me or feel particularly limited by it – except...reactions1comment
Sickle Cell Vacation Packing ListHi All, my name is Grace. I am a wife and mother, and I work as a full time content creator. I also am living with sickle cell disease. One...reactions2comments
