What I Wish Everyone Knew About Sickle CellLet's start with the fact that sickle cell disorder doesn't get enough awareness as it should. What is even more worrying is that some people do not have access to...Reactions0reactionsComments3 comments
The Invisibility and Stigma of Chronic PainPain is sometimes called an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain often cannot be seen. Because of this, it is possible for...Reactions0reactionsComments3 comments
Life After Transplant: Understanding the 5 Pillars of Chronic Pain ManagementOne of the primary reasons I participated in a stem cell clinical trial was to alleviate my chronic pain. According to the US National Library of Medicine, chronic pain is...Reactions0reactionsComments5 comments
Deciding on a Career as a Physician with Sickle CellThe third year of medical school is all about career exploration. We rotate through many of the major specialties in the field of medicine such as: obstetrics and gynecology (OBGYN)...Reactions0reactionsComments3 comments
My Journey to Happily Ever AfterI’ve always been enamored by Disney’s animation and storytelling, eagerly anticipating the blissful end of the fairy tale. The simple meaning of happily ever after is that happiness pervades onwards...Reactions0reactionsComments5 comments
My First Bankruptcy With SCDMy mum used to complain all the time about hospital bills and the toll it’s taking on the family. At a point, she began to think it was a spiritual...Reactions0reactionsComments2 comments
Sickle Cell's Influence on My CareerSickle cell can influence the career we choose. It can stop us from going for a particular career perhaps because of the stress involved. For me, sickle cell disease has...Reactions0reactionsComments3 comments
Research Opportunity: Sickle Cell and Intimate RelationsLoma Linda University School of Behavioral Health is conducting a study to understand the experiences of sickle cell patients and their partners as they navigate living with sickle cell disease...Reactions0reactionsComments1 comments
American Society of Hematology Sickle Cell Patient Care GuidelinesPeople with sickle cell disease (SCD) often have a lot of pain. SCD pain can happen suddenly and be severe, or it can be long-term or chronic. Pain is a...Reactions0reactionsComments0 comments
Grieving the Loss of a WarriorAs an SCD patient, you probably have met another warrior who is no more. The fear of death that comes with SCD gets worse or deepened anytime such a death...Reactions0reactionsComments1 comments
5 Lessons Sickle Cell Has Taught MeLife is the best teacher, they say. I totally agree with that because in every situation we find ourselves in life, there is something to learn, and living with sickle...Reactions0reactionsComments10 comments
Averting Cold Weather CrisesThe hallmark complication of sickle cell disease (SCD) is acute pain. Episodes of acute pain can occur at any time and are often caused by certain triggers. One of these...Reactions0reactionsComments2 comments
Comforting Other ParentsDo you recognize this? You are in the hospital with your child, and you get a call from a good friend. As you vent as a parent, you hear “It...Reactions0reactionsComments0 comments
Why Are Family Histories Important?Which family do you come from? The family that is mute on every medical condition or the family that informs other members of critical information? I have had a number...Reactions0reactionsComments1 comments
Purpose and PerspectiveHaving sickle cell anemia has given me two things: purpose and perspective. Although I do not believe that my disease defines me or feel particularly limited by it – except...Reactions0reactionsComments1 comments
Sickle Cell Vacation Packing ListHi All, my name is Grace. I am a wife and mother, and I work as a full time content creator. I also am living with sickle cell disease. One...Reactions0reactionsComments2 comments
Staying Positive With Sickle CellTelling someone to stay positive is one of the vaguest pieces of advice you can give to someone living with sickle cell. Sometimes, I wonder what it really means to...Reactions0reactionsComments8 comments
The People We Keep in Our LivesSickle cell is always up for emergencies. Most of the things that trigger a crisis are things beyond our control. Even though we do our best to avoid getting sick...Reactions0reactionsComments3 comments
Going to Graduate School With Sickle CellAugust 2020, I moved to Houston, Texas to begin my tenure as a graduate student at the University of Houston’s Graduate College of Social Work. I am in the Master...Reactions0reactionsComments3 comments
Caring for a Child With Sickle CellMost of the time when we are dealing with sickle cell disease, we are focusing on the pain episodes, sleepless nights, and all the pain medications. What we often forget...Reactions0reactionsComments2 comments