Emergency Challenges and GuidanceI've written many times about challenges in the emergency department (ED) with my little princess. Unpleasant situations usually cause feelings of misunderstanding, disrespect, and so many more negative emotions. And...reactionscomments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions like sickle cell disease often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating are frequent side effects too. That...reactionscomments
Adventures Abroad With Sickle CellGet ready with me for my next adventure, a tour around Europe! I have been dreaming of returning to Europe ever since my trip to Spain back in high school!...reactions1comment
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin when you have questions about a new diagnosis. Many community members on this site talk about...reactionscomments
Sickle Cell Disease in the Emergency RoomIn recent years I have always wondered how we as a Sickle Cell community can make a sustainable contribution to the things we see again and again. The more I...reactionscomments
Live Your Best LifeI have been living with sickle cell disease for 59 years. I have been able to accomplish many things. I am married for almost 35 years and gave birth to...reactions2comments
Lessons from My Hip Replacement JourneyLiving with sickle cell comes with many complications. At 17, I was diagnosed with AVN and by 23 I was begging for a hip replacement as I was unable to...reactionscomments
Essential Questions for Sickle Cell CaregiversAs a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle cell disease is, but I will define it...reactionscomments
Living with Chronic PainLiving with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts various aspects of a person's life. One significant...reactionscomments
Honored Sickle Cell JourneyI have experienced a lot of difficulties for my daughter with her school. After years of fighting against the "school system" I decided to enroll her in virtual school. This...reactions2comments
Life with Sickle Cell in a Warmer Paradise: My Journey to WellnessLiving with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...reactionscomments
7 Tips to Prepare Sickle Cell Warriors for VacationAs a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them inspired me to make sure that I give...reactions3comments
Sickle Cell Awareness Day: How and Why We Raise AwarenessFor this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease (SCD)?" In response, they shared their personal experiences...reactionscomments
The Power of Positivity: Nurturing HopeHow many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a medical professional told you to be “positive.” In...reactionscomments
Sickle Cell Advocacy and ActivismToday, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...reactionscomments
Challenging ER VisitsOMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the Emergency Room with my princess. My little princess...reactions1comment
New Beginnings Settling InAfter my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful from apartment hunting to tours and applications. I...reactionscomments
Sleeves Up for Sickle CellSickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated that more than 100,000 people live with this...reactionscomments
The Importance of Sickle Cell Caregiver Education and How to HelpIt has been almost 2 years since my little princess was diagnosed with chronic back pain. In several articles, I have shared my experience and I believe that it is...reactionscomments
Embracing a Holistic Lifestyle with Sickle CellLiving with sickle cell is a unique journey that often requires careful consideration of various aspects of our health and well-being. Transitioning to a holistic lifestyle can be both empowering...reactionscomments
