Live Your Best LifeI have been living with sickle cell disease for 59 years. I have been able to accomplish many things. I am married for almost 35 years and gave birth to...Reactions0reactionsComments2 comments
Lessons from My Hip Replacement JourneyLiving with sickle cell comes with many complications. At 17, I was diagnosed with AVN and by 23 I was begging for a hip replacement as I was unable to...Reactions0reactionsComments0 comments
Essential Questions for Sickle Cell CaregiversAs a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle cell disease is, but I will define it...Reactions0reactionsComments0 comments
Living with Chronic PainLiving with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts various aspects of a person's life. One significant...Reactions0reactionsComments0 comments
Honored Sickle Cell JourneyI have experienced a lot of difficulties for my daughter with her school. After years of fighting against the "school system" I decided to enroll her in virtual school. This...Reactions0reactionsComments2 comments
Life with Sickle Cell in a Warmer Paradise: My Journey to WellnessLiving with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...Reactions0reactionsComments0 comments
7 Tips to Prepare Sickle Cell Warriors for VacationAs a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them inspired me to make sure that I give...Reactions0reactionsComments3 comments
Sickle Cell Awareness Day: How and Why We Raise AwarenessFor this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease (SCD)?" In response, they shared their personal experiences...Reactions0reactionsComments0 comments
The Power of Positivity: Nurturing HopeHow many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a medical professional told you to be “positive.” In...Reactions0reactionsComments0 comments
Sickle Cell Advocacy and ActivismToday, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...Reactions0reactionsComments0 comments
Challenging ER VisitsOMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the Emergency Room with my princess. My little princess...Reactions0reactionsComments1 comments
New Beginnings Settling InAfter my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful from apartment hunting to tours and applications. I...Reactions0reactionsComments0 comments
Sleeves Up for Sickle CellSickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated that more than 100,000 people live with this...Reactions0reactionsComments0 comments
The Importance of Sickle Cell Caregiver Education and How to HelpIt has been almost 2 years since my little princess was diagnosed with chronic back pain. In several articles, I have shared my experience and I believe that it is...Reactions0reactionsComments0 comments
Embracing a Holistic Lifestyle with Sickle CellLiving with sickle cell is a unique journey that often requires careful consideration of various aspects of our health and well-being. Transitioning to a holistic lifestyle can be both empowering...Reactions0reactionsComments0 comments
Nurturing Meaning and PurposeLife is full of ups and downs, and declining health can sometimes make it challenging to maintain a sense of meaning and purpose. Finding meaning and purpose in life has...Reactions0reactionsComments0 comments
Here We Go AgainThe last time I talked about love over two years ago, I thought I had met the one. What a cliche. I'm not sure if there is just one right...Reactions0reactionsComments0 comments
The Best Part of Living with Sickle Cell That You Might Be IgnoringWhy do some people think nothing good can come from living with sickle cell? They feel like every day is miserable for someone living with this disease. Maybe they need...Reactions0reactionsComments0 comments
Withdrawing from Those Around MeWhen my pain levels rise, I tend to withdraw from those around me. What comes to my mind is the safety mechanism of the turtle when the turtle has to...Reactions0reactionsComments6 comments
My Child's Testing & Appointment ScheduleI often talk to parents about sickle cell disease (SCD), even if they do not have a child with SCD. I recently had an interesting conversation with a mom, and...Reactions0reactionsComments5 comments
