Staying Out of My HeadHi, my name is Wunmi and I am guilty of constantly living in my head. I'm not a hermit or recluse, I actually live my life as an extrovert but... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments5 comments
Travel Prep with Sickle CellMy Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. One thing I am very passionate about is advocating and talking... By Grace Adeyinka1 min readBookmark for laterReactions 0 reactions Comments2 comments
Do You Consider Sickle Cell a Disability?So apparently December 3rd was International Day of Persons With Disabilities. There really is a day for everything but I had never heard of this day until recently. A lot... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments8 comments
Expectations for the New YearI think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions, set goals, and change ourselves hence the common... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments3 comments
Living With and Conquering SCD at 50 and BeyondHi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days are good and I wake up strong and... By zylix2 min readBookmark for laterReactions 0 reactions Comments1 comments
What To Do When a Loved One Is DiagnosedWith a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I look back to 2022 with a grateful feeling... By Andressa Hunsel2 min readBookmark for laterReactions 0 reactions Comments3 comments
A Period of PainRecently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the only thing u hear from friends and family... By Authentic1 min readBookmark for laterReactions 0 reactions Comments1 comments
A Mile in My ShoesThere are 1,760 yards (1.61 km) in a mile and I often imagine if people’s opinions would change if they could participate, watch and feel every 1,760 yards (1.61 km)... By Chesterfield Hall2 min readBookmark for laterReactions 0 reactions Comments3 comments
LonelinessSome people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot, since first being diagnosed with sickle cell. It’s... By Halimat Olaniyan3 min readBookmark for laterReactions 0 reactions Comments7 comments
Grateful for The Weather in Orlando, FloridaWhen I moved to Orlando about a year ago, I thought we'd be in bikinis all year round. Nice and warm weather, no hassle with the cold and forever done... By Andressa Hunsel2 min readBookmark for laterReactions 0 reactions Comments1 comments
Timing is EverythingFor many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe to say that the law of attraction works... By Wunmi Bakare3 min readBookmark for laterReactions 0 reactions Comments3 comments
Who I Am and Who I Want To BeI think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from how we portray ourselves to others or how... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments3 comments
Educational Support for Kids Living With Sickle CellIt is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the best support from the school. Looking back, I... By Andressa Hunsel3 min readBookmark for laterReactions 0 reactions Comments3 comments
Getting Off the Emotional Rollercoaster RideThe last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and overwhelming. I feel like I’m on a never-ending... By Chesterfield Hall2 min readBookmark for laterReactions 0 reactions Comments3 comments
Making Adult FriendsI am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if you’ve read any of my pieces, you know... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments2 comments
The Duality of Caregiving and CaretakingThe moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby, Wunmi. Sickle cell disease (SCD) was not a... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments1 comments
Still Kicking ItHello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter and 1 goddaughter that are both 24. My... By Pure12 min readBookmark for laterReactions 0 reactions Comments4 comments
We Can Do Hard ThingsThe one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To exist as a minority in a world that... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments2 comments
What Is the Social Health Network?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
The Secret Life of a CaregiverOne of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain crisis could strike at any time. As a... By Lena Harvey3 min readBookmark for laterReactions 0 reactions Comments3 comments