Am I lucky? The Differences in Our BodiesI had a conversation with another warrior who is also a friend recently. We were just catching up when she asked how the change in weather was treating me and...reactions4comments
Sickle Cell Disease and the Journey of Virtual EducationLast year I wrote an article about the challenges I encountered at my daughter's school. Some of the accommodations we had in New Jersey for the 504 plan we don't...reactions1comment
Dating With an Invisible IllnessThe other day I was speaking to a dear friend and we found ourselves digging up the "Ex files," thinking of love lost and love won. As we reflected on...reactions3comments
The #1 Reason to Donate BloodGrowing up, I always knew my blood would be my highest hurdle. Imagine being made to carry your enemy inside of you. All the while it destroys you from the inside...reactions1comment
Living My Best LifeWhile the year is still new, I want to talk about all the exciting things going on in my life and share updates on all the things I’ve been working...reactions4comments
My Pregnancy Experience With Sickle Cell DiseaseMy Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. I currently have a 5-year-old and I am pregnant with my...reactions3comments
Releasing Childhood TraumaUnfortunately for me, 2023 hasn't been off to a great start. In fact, the year started off with a series of unrelated health issues from increased chest pain to rigor...reactions5comments
Struggles of Being an AdvocateHave you ever wondered what it is like to be a sickle cell advocate? I will explain a little about what that feels like but from a personal point of...reactions4comments
New Year, New MeHa, kidding. I don’t really believe in New Year’s Resolutions, not just because most people make a list of unattainable and unsustainable goals, but because it’s too limiting. New Year’s...reactions2comments
Dreams UnbornSince we've just wrapped up 2022, it's time to start reflecting on how far we've come. As I think about the last 12 months, I can't help but feel a...reactions4comments
Building Virtual CommunityWhen I was a child, I wasn’t allowed to have a private email address, let alone any social media accounts. Back then I thought it was unfair as all my...reactions4comments
Preparing for Labor and Delivery with Sickle CellMy Name is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. In a few short weeks, my family and I will be...reactions1comment
Donating and Receiving Blood ProductsHave you ever donated blood? I haven’t, which probably comes as no surprise. I didn’t always know though, that I couldn’t donate blood. In my mind, I thought there would...reactions3comments
Tips for Parents When Relocating With a WarriorI am writing this article because I believe there are more parents who experience this. In February of 2022, I moved to Florida from New Jersey because of the weather...reactions1comment
Staying Out of My HeadHi, my name is Wunmi and I am guilty of constantly living in my head. I'm not a hermit or recluse, I actually live my life as an extrovert but...reactions5comments
Travel Prep with Sickle CellMy Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. One thing I am very passionate about is advocating and talking...reactions2comments
Do You Consider Sickle Cell a Disability?So apparently December 3rd was International Day of Persons With Disabilities. There really is a day for everything but I had never heard of this day until recently. A lot...reactions8comments
Expectations for the New YearI think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions, set goals, and change ourselves hence the common...reactions3comments
Living With and Conquering SCD at 50 and BeyondHi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days are good and I wake up strong and...reactions1comment
What To Do When a Loved One Is DiagnosedWith a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I look back to 2022 with a grateful feeling...reactions3comments