Life with Sickle Cell in a Warmer Paradise: My Journey to WellnessLiving with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has...reactionscomments
7 Tips to Prepare Sickle Cell Warriors for VacationAs a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them...reactions3comments
Sickle Cell Awareness Day: How and Why We Raise AwarenessFor this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease...reactionscomments
Age Is Just a Number: Confronting Life Expectancy With Sickle CellToday, progress in treating and managing sickle cell disease (SCD) is helping people with the condition live longer than ever before. In...reactionscomments
The Power of Positivity: Nurturing HopeHow many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a...reactionscomments
Sickle Cell Advocacy and ActivismToday, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with...reactionscomments
Challenging ER VisitsOMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the...reactions1comment
Living with Chronic PainLiving with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts...reactionscomments
New Beginnings Settling InAfter my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful...reactionscomments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
The Challenges of Invisible Illnesses and IntimacySickle cell disease (SCD) can affect sex and intimacy for both men and women. Pain and other physical complications can impact the...reactions2comments
Things I Cannot Do With Avascular NecrosisAvascular necrosis (AVN) is a sickle cell complication that begins suddenly and quickly progresses from stage I to stage IV even without...reactions5comments
Can My Diet Help Manage My Pain Crises?A balanced diet is beneficial for everyone, but it is especially important for people with sickle cell disease (SCD). SCD is linked...reactions4comments
Sleeves Up for Sickle CellSickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated...reactionscomments
The Importance of Sickle Cell Caregiver Education and How to HelpIt has been almost 2 years since my little princess was diagnosed with chronic back pain. In several articles, I have shared...reactionscomments
Embracing a Holistic Lifestyle with Sickle CellLiving with sickle cell is a unique journey that often requires careful consideration of various aspects of our health and well-being. Transitioning...reactionscomments
Nurturing Meaning and PurposeLife is full of ups and downs, and declining health can sometimes make it challenging to maintain a sense of meaning and...reactionscomments
Avascular Necrosis: Pain, Posture, & PhysiotherapyIn my early childhood, the arches of my feet did not fully develop due to a hereditary condition known as flat foot...reactions1comment
Here We Go AgainThe last time I talked about love over two years ago, I thought I had met the one. What a cliche. I'm...reactionscomments
The Best Part of Living with Sickle Cell That You Might Be IgnoringWhy do some people think nothing good can come from living with sickle cell? They feel like every day is miserable for...reactionscomments
