Creating A #SickleCellTribeAs I continue to foster relationships with fellow advocates, one thing rings true for all of us – we grew up not knowing any other person living with sickle cell... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments2 comments
The MatchHave you heard of The Match? Well, it’s the most important day of medical school. The day all 4 years, and all the work before/outside of the 4 years, is... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments2 comments
Where Can I Find More Information About Sickle Cell Disease?As a parent of a child with sickle cell disease (SCD), it is very important that we know exactly where to get the necessary information. A mother called me in... By Andressa Hunsel4 min readBookmark for laterReactions 0 reactions Comments4 comments
A Recap of the Sickle Cell Leadership SummitA few weeks ago, I was invited to the Sickle Cell Community Consortium's Leadership Summit in Atlanta. It was the first time health leaders, patient advocates, caregivers, pharmaceutical companies, and... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments1 comments
Sickle Cell & Chronic Pain: The Road to RecoveryMy little princess has been diagnosed with chronic back pain since the summer of 2021. Every time I think about it or write about it, a piece of my heart... By Andressa Hunsel3 min readBookmark for laterReactions 0 reactions Comments4 comments
Updates on My First Research StudyRemember when I was on my period and nervous about giving blood for the first time? Well, that appointment had to be rescheduled because of the weather, so crisis averted... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments2 comments
Am I lucky? The Differences in Our BodiesI had a conversation with another warrior who is also a friend recently. We were just catching up when she asked how the change in weather was treating me and... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments4 comments
Sickle Cell Disease and the Journey of Virtual EducationLast year I wrote an article about the challenges I encountered at my daughter's school. Some of the accommodations we had in New Jersey for the 504 plan we don't... By Andressa Hunsel3 min readBookmark for laterReactions 0 reactions Comments1 comments
Dating With an Invisible IllnessThe other day I was speaking to a dear friend and we found ourselves digging up the "Ex files," thinking of love lost and love won. As we reflected on... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments3 comments
The #1 Reason to Donate BloodGrowing up, I always knew my blood would be my highest hurdle. Imagine being made to carry your enemy inside of you. All the while it destroys you from the inside... By Lena Harvey2 min readBookmark for laterReactions 0 reactions Comments1 comments
Living My Best LifeWhile the year is still new, I want to talk about all the exciting things going on in my life and share updates on all the things I’ve been working... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments4 comments
My Pregnancy Experience With Sickle Cell DiseaseMy Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. I currently have a 5-year-old and I am pregnant with my... By Grace Adeyinka1 min readBookmark for laterReactions 0 reactions Comments3 comments
Releasing Childhood TraumaUnfortunately for me, 2023 hasn't been off to a great start. In fact, the year started off with a series of unrelated health issues from increased chest pain to rigor... By Wunmi Bakare3 min readBookmark for laterReactions 0 reactions Comments5 comments
Struggles of Being an AdvocateHave you ever wondered what it is like to be a sickle cell advocate? I will explain a little about what that feels like but from a personal point of... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments4 comments
New Year, New MeHa, kidding. I don’t really believe in New Year’s Resolutions, not just because most people make a list of unattainable and unsustainable goals, but because it’s too limiting. New Year’s... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments2 comments
Dreams UnbornSince we've just wrapped up 2022, it's time to start reflecting on how far we've come. As I think about the last 12 months, I can't help but feel a... By Wunmi Bakare3 min readBookmark for laterReactions 0 reactions Comments4 comments
Building Virtual CommunityWhen I was a child, I wasn’t allowed to have a private email address, let alone any social media accounts. Back then I thought it was unfair as all my... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments4 comments
Preparing for Labor and Delivery with Sickle CellMy Name is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. In a few short weeks, my family and I will be... By Grace Adeyinka1 min readBookmark for laterReactions 0 reactions Comments1 comments
Donating and Receiving Blood ProductsHave you ever donated blood? I haven’t, which probably comes as no surprise. I didn’t always know though, that I couldn’t donate blood. In my mind, I thought there would... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments3 comments
Tips for Parents When Relocating With a WarriorI am writing this article because I believe there are more parents who experience this. In February of 2022, I moved to Florida from New Jersey because of the weather... By Andressa Hunsel3 min readBookmark for laterReactions 0 reactions Comments1 comments