Living with an Invisible Illness Like Sickle Cell DiseaseAcute pain and other complications of sickle cell disease (SCD) can be severe. However, this pain is invisible to other people, and explaining what you are feeling may be frustrating...reactions1comment
Why Do We Get Sick?Whenever I get sick, I find myself analyzing everything I did leading up to my crisis trying to pinpoint the exact cause of my pain. Hoping that maybe I can...reactions3comments
Accepting My DiseaseI figured out that things were a lot easier once I accepted my disease. We all know sickle cell is something that you are born with and although there is...reactions1comment
What to Know When Planning to Have a BabyMost women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of having complications during pregnancy. SCD also increases the...reactions2comments
Helpful Tips for Your Next Doctor’s VisitRoutine healthcare is an important part of managing sickle cell disease (SCD). Regular care is usually managed by a primary care doctor or hematologist (a doctor who specializes in blood...reactions4comments
Tips on Paying for CarePeople living with sickle cell disease (SCD) face high healthcare costs because of treatments and hospital visits. Health insurance plans may not cover all medical costs. These deductibles, copayments, and...reactions1comment
Tips for Dealing with UncertaintyPeople with many chronic conditions, including sickle cell disease (SCD), experience “illness uncertainty.” This is the feeling when illness-related events are hard to explain, predict, or understand. The uncertainty could...reactions2comments
Staying Healthy in Colder MonthsSo the colder months are coming (depending on where you live) and as we all know the harsh cold temperatures are usually the hardest for sickle cell patients. As a...reactions2comments
