Articles

Last week, some bad news blindsided me. As soon as I hung up the phone, I wailed and the intense wave of emotions felt like a tsunami hitting land, pushing...

This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate, caregiver...

I didn’t know anything about hydroxyurea (hydroxycarbamide) until last year. The government gave out a few for free and I had no idea. Maybe because I stopped looking for a...

There’s this stereotype of the “strong Black woman.” The one who has been through everything and knocked down over and over again but still gets back up. She thrives through...

This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate, caregiver...

Avascular necrosis is a complication that can cause a temporary physical disability if it happens to the hip joints. This complication has affected my left hip and in about 4...

September 1 marks the beginning of Sickle Cell Awareness Month! Our theme for this year is "Change Makers of Sickle Cell," so we will be highlighting warriors in the community...

The 2022 Sickle Cell Awareness Month Change Makers Bundle Giveaway is now closed. Thank you for your interest! For Sickle Cell Awareness Month this year, we are highlighting warriors in...

In early 2022, we conducted our annual Sickle Cell In America Survey, where 125 Sickle-Cell.com community members in the United States shared their experiences on symptoms, pain management, and treatment...

Last week, I combed through social media in search of content ideas and stumbled across a young woman (Instagram - @frelletheshelle) who recently participated in a bone marrow transplant at the...

There are the days I feel alive and the days I don’t. Sometimes in a day, I could be both. Unfortunately, not everyone can tolerate the mood swings of others...

The new school year is now upon us. For the parents of children with sickle cell disease, it means we have to finish our preparing for school "list". Reminders for...

The loss of quality of life is a term that has been used in the context of a grieving person. The loss of quality of life for a grieving person...

When you hear the phrase "body language," you immediately think of non-verbal cues that we use to communicate: crossed arms, head movements, eye behavior, and facial expressions. That's not the...

It feels kind of surreal that I turned 25 this July. Somehow, I'm reminded that adulthood is coming and it is coming fast. I haven't really sat down to think...

This past March, Halimat sat down to have a conversation with herself in honor of Women's History Month and International Women's Day. In this video, she reflects on how hard...

Editor’s note: As of September 2024, Oxbryta® (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns. Pfizer, the manufacturer of Oxbryta, has also ceased...

Thanks to the Health Union, I was able to attend and speak during the sickle cell event in my home country, Suriname, South America. The year 2022 has so far...

All drugs have side effects. If you are lucky enough, you may never experience them. Unfortunately for me, my body seems to be affected by most of them. If you...

Lately, I've found myself getting lost in curated content for the disabled community. I admire the confidence, creative voice, storytelling ability, and remarkable zest for life that these creators possess...