Dating With an Invisible IllnessThe other day I was speaking to a dear friend and we found ourselves digging up the "Ex files," thinking of love lost and love won. As we reflected on...Reactions0reactionsComments3 comments
The #1 Reason to Donate BloodGrowing up, I always knew my blood would be my highest hurdle. Imagine being made to carry your enemy inside of you. All the while it destroys you from the inside...Reactions0reactionsComments1 comments
Living My Best LifeWhile the year is still new, I want to talk about all the exciting things going on in my life and share updates on all the things I’ve been working...Reactions0reactionsComments4 comments
My Pregnancy Experience With Sickle Cell DiseaseMy Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. I currently have a 5-year-old and I am pregnant with my...Reactions0reactionsComments3 comments
Releasing Childhood TraumaUnfortunately for me, 2023 hasn't been off to a great start. In fact, the year started off with a series of unrelated health issues from increased chest pain to rigor...Reactions0reactionsComments5 comments
Struggles of Being an AdvocateHave you ever wondered what it is like to be a sickle cell advocate? I will explain a little about what that feels like but from a personal point of...Reactions0reactionsComments4 comments
New Year, New MeHa, kidding. I don’t really believe in New Year’s Resolutions, not just because most people make a list of unattainable and unsustainable goals, but because it’s too limiting. New Year’s...Reactions0reactionsComments2 comments
Lab-Grown Blood Research and Sickle Cell DiseaseIn late 2022, for the first time, scientists transfused lab-grown red blood cells into a person who was not the original cell donor. This exciting clinical trial in the UK...Reactions0reactionsComments1 comments
Dreams UnbornSince we've just wrapped up 2022, it's time to start reflecting on how far we've come. As I think about the last 12 months, I can't help but feel a...Reactions0reactionsComments4 comments
Building Virtual CommunityWhen I was a child, I wasn’t allowed to have a private email address, let alone any social media accounts. Back then I thought it was unfair as all my...Reactions0reactionsComments4 comments
Preparing for Labor and Delivery with Sickle CellMy Name is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. In a few short weeks, my family and I will be...Reactions0reactionsComments1 comments
Donating and Receiving Blood ProductsHave you ever donated blood? I haven’t, which probably comes as no surprise. I didn’t always know though, that I couldn’t donate blood. In my mind, I thought there would...Reactions0reactionsComments3 comments
Tips for Parents When Relocating With a WarriorI am writing this article because I believe there are more parents who experience this. In February of 2022, I moved to Florida from New Jersey because of the weather...Reactions0reactionsComments1 comments
Staying Out of My HeadHi, my name is Wunmi and I am guilty of constantly living in my head. I'm not a hermit or recluse, I actually live my life as an extrovert but...Reactions0reactionsComments5 comments
Travel Prep with Sickle CellMy Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. One thing I am very passionate about is advocating and talking...Reactions0reactionsComments2 comments
Do You Consider Sickle Cell a Disability?So apparently December 3rd was International Day of Persons With Disabilities. There really is a day for everything but I had never heard of this day until recently. A lot...Reactions0reactionsComments8 comments
Expectations for the New YearI think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions, set goals, and change ourselves hence the common...Reactions0reactionsComments3 comments
Stem Cell Donor Experience, Myths, and FactsMonths before the peripheral blood stem cell (PBSC) donation, my brother felt tense, anxious, and a little nervous. The culmination of emotions was brought on by a fear of the...Reactions0reactionsComments1 comments
What To Do When a Loved One Is DiagnosedWith a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I look back to 2022 with a grateful feeling...Reactions0reactionsComments3 comments
Menopause and Sickle CellMany women with sickle cell disease (SCD) worry about how their health will change when they reach menopause. While there is still much to learn about the relationship between SCD...Reactions0reactionsComments1 comments