Articles

A challenging aspect of living with sickle cell disease (SCD) can be finding and keeping a job. People with SCD often miss work because of complications or medical appointments. Recurring...

Acute pain and other complications of sickle cell disease (SCD) can be severe. However, this pain is invisible to other people, and explaining what you are feeling may be frustrating...

Whenever I get sick, I find myself analyzing everything I did leading up to my crisis trying to pinpoint the exact cause of my pain. Hoping that maybe I can...

I figured out that things were a lot easier once I accepted my disease. We all know sickle cell is something that you are born with and although there is...

Official Rules, Terms and Conditions for the Sickle Cell Awareness Month 2021 Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID...

Sickle cell disease is caused by an abnormal protein in red blood cells. This can cause different symptoms and complications, including joint pain, leg ulcers, and acute chest syndrome. Knowing...

Most women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of having complications during pregnancy. SCD also increases the...

Self-care might sound like a buzzword, but in the face of pandemics and natural disasters, it’s downright necessary. There is a fine balance between protecting your physical health and guarding...

Routine healthcare is an important part of managing sickle cell disease (SCD). Regular care is usually managed by a primary care doctor or hematologist (a doctor who specializes in blood...

Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous treatment didn’t work, and allow patients to be...

People living with sickle cell disease (SCD) face high healthcare costs because of treatments and hospital visits. Health insurance plans may not cover all medical costs. These deductibles, copayments, and...

People with many chronic conditions, including sickle cell disease (SCD), experience “illness uncertainty.” This is the feeling when illness-related events are hard to explain, predict, or understand. The uncertainty could...

So the colder months are coming (depending on where you live) and as we all know the harsh cold temperatures are usually the hardest for sickle cell patients. As a...

Making decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in a clinical trial is right for you. There...

When many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But, not all clinical trials involve treatment! Even among...

When you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or alternative medicine, clinical trials may provide another treatment...

Each year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good news is that there are lots of resources...

In any clinical trial, participants must meet certain criteria to be eligible to participate. There are two commonly used terms when describing clinical trial eligibility, and those are “inclusion criteria”...

A clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device, procedure, or change in behavior is safe and...

There are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable experience associated with the use of a medical...