Do I Qualify for Medicare or Medicaid?People with sickle cell disease (SCD) often face high healthcare costs. Paying for care costs from hospital visits, medical procedures, and prescription...reactionscomments
Finding Love with Sickle CellFebruary is a month of celebration. It’s Black History Month, the month of love, and a time to acknowledge the impact of...reactionscomments
Rare Disease Day® and Sickle CellThere’s a day to recognize rare diseases like sickle cell disease! In the US, rare diseases are defined as conditions that affect...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with sickle...reactionscomments
Donating Blood Can Support Those Living with Sickle CellSickle cell disease (SCD) is a group of inherited disorders that affect red blood cells. SCD causes red blood cells to harden...reactionscomments
Finding Ways to Enjoy Snow DaysAs a child, I remember getting really excited for snow days. I’d sit in front of my tv waiting for them to...reactionscomments
An Interview with Andressa HunselAndressa is the author of the children's book Keemaya and The Beach: My Journey Living with Sickle Cell. Inspired by her daughter's...reactionscomments
Can My Diet Help Manage My Pain Crises?A balanced diet is beneficial for everyone, but it is especially important for people with sickle cell disease (SCD). SCD is linked...reactions4comments
A Hospital Visit During COVID-19I want to quickly share my experience of being hospitalized during this pandemic. Now let me start this by saying I did...reactionscomments
Triggers, Tells, and UncertaintyTriggers. I think most people see the word trigger and expect someone to be talking about or showing something violent. But when...reactionscomments
Know Your Rights: Balancing Work And HealthA challenging aspect of living with sickle cell disease (SCD) can be finding and keeping a job. People with SCD often miss...reactionscomments
Living with an Invisible Illness Like Sickle Cell DiseaseAcute pain and other complications of sickle cell disease (SCD) can be severe. However, this pain is invisible to other people, and...reactions1comment
Why Do We Get Sick?Whenever I get sick, I find myself analyzing everything I did leading up to my crisis trying to pinpoint the exact cause...reactions3comments
Accepting My DiseaseI figured out that things were a lot easier once I accepted my disease. We all know sickle cell is something that...reactions1comment
Terms and Conditions for the Sickle Cell Awareness Month 2021 GiveawayOfficial Rules, Terms and Conditions for the Sickle Cell Awareness Month 2021 Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE...reactionscomments
Understanding My Body - Coloring PageSickle cell disease is caused by an abnormal protein in red blood cells. This can cause different symptoms and complications, including joint...reactionscomments
What to Know When Planning to Have a BabyMost women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of...reactions2comments
Self-Care in Uncertain TimesSelf-care might sound like a buzzword, but in the face of pandemics and natural disasters, it’s downright necessary. There is a fine...reactionscomments
Helpful Tips for Your Next Doctor’s VisitRoutine healthcare is an important part of managing sickle cell disease (SCD). Regular care is usually managed by a primary care doctor...reactions4comments
Will I Need to Pay to Be in a Clinical Trial?Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous...reactionscomments
