Understanding My Body - Coloring PageSickle cell disease is caused by an abnormal protein in red blood cells. This can cause different symptoms and complications, including joint pain, leg ulcers, and acute chest syndrome. Knowing... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What to Know When Planning to Have a BabyMost women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of having complications during pregnancy. SCD also increases the... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Self-Care in Uncertain TimesSelf-care might sound like a buzzword, but in the face of pandemics and natural disasters, it’s downright necessary. There is a fine balance between protecting your physical health and guarding... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Helpful Tips for Your Next Doctor’s VisitRoutine healthcare is an important part of managing sickle cell disease (SCD). Regular care is usually managed by a primary care doctor or hematologist (a doctor who specializes in blood... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments4 comments
Will I Need to Pay to Be in a Clinical Trial?Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous treatment didn’t work, and allow patients to be... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips on Paying for CarePeople living with sickle cell disease (SCD) face high healthcare costs because of treatments and hospital visits. Health insurance plans may not cover all medical costs. These deductibles, copayments, and... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips for Dealing with UncertaintyPeople with many chronic conditions, including sickle cell disease (SCD), experience “illness uncertainty.” This is the feeling when illness-related events are hard to explain, predict, or understand. The uncertainty could... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Staying Healthy in Colder MonthsSo the colder months are coming (depending on where you live) and as we all know the harsh cold temperatures are usually the hardest for sickle cell patients. As a... By Grace Adeyinka2 min readBookmark for laterReactions 0 reactions Comments2 comments
Is a Clinical Trial Right for Me? 5 Questions to Help You DecideMaking decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in a clinical trial is right for you. There... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments
Not Always a Placebo! Types of Clinical TrialsWhen many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But, not all clinical trials involve treatment! Even among... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Clinical Trials as a Treatment OptionWhen you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or alternative medicine, clinical trials may provide another treatment... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
10 Things You Should Know About Clinical TrialsEach year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good news is that there are lots of resources... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments1 comments
Why Wasn't I Chosen for a Clinical Trial?In any clinical trial, participants must meet certain criteria to be eligible to participate. There are two commonly used terms when describing clinical trial eligibility, and those are “inclusion criteria”... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Understanding Clinical TrialsA clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device, procedure, or change in behavior is safe and... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Clinical Trial TerminologyThere are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable experience associated with the use of a medical... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments
Clinical Trial ParticipationEvery clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria) in order to take part in the study... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments