What Is Sickle Cell?What is sickle cell? My answer to this question will not be the one you are expecting. This is not the answer you will find if you type ‘What is...reactions2comments
Toxic Masculinity and Sickle Cell DiseaseFirst of all, I’d like to introduce myself: My name is Kehinde Salami. I am 39 years old and have sickle cell disease. Now that reads perfectly... until it's time...reactions2comments
Can Yoga Help Manage Sickle Cell Pain?The pain of sickle cell disease can be felt in both the body and the mind. Not only do people with sickle cell experience physical discomfort, but they also have...reactionscomments
The SILENT DisabilityMy name is Sam Adeyinka, and I have sickle cell anemia. A lot of people may not be aware of what that means. A lot of people may not understand...reactions1comment
Managing My Mental Health with Sickle CellThe first time I openly spoke openly about managing my mental health was on Episode 3 of my podcast “Salted Popcorn with Jenica Leah”. I was completely transparent about my...reactionscomments
It's Complicated"It’s complicated..." is usually a common response to someone asking about relationship status. For me, it’s how I would describe my life with sickle cell, complicated and full of complications...reactionscomments
Do Doctors Believe The Pain?There can be many challenges that arise when living with a chronic condition. Some may be short-lived, while others may become part of a person’s daily life. One of these...reactions15comments
The Challenges of Invisible Illnesses and IntimacySickle cell disease (SCD) can affect sex and intimacy for both men and women. Pain and other physical complications can impact the desire or ability to have sex. Stress and...reactions2comments
Sickle Cell in the Time of COVID-19COVID has forced the world to slow down, take a pause, and really evaluate the state of our society, of humanity. The lockdowns have made us all do things that...reactionscomments
Do I Qualify for Medicare or Medicaid?People with sickle cell disease (SCD) often face high healthcare costs. Paying for care costs from hospital visits, medical procedures, and prescription drugs can be costly. Health insurance in the...reactionscomments
Finding Love with Sickle CellFebruary is a month of celebration. It’s Black History Month, the month of love, and a time to acknowledge the impact of women in medicine. With Valentine’s Day, National Women...reactionscomments
Rare Disease Day® and Sickle CellThere’s a day to recognize rare diseases like sickle cell disease! In the US, rare diseases are defined as conditions that affect less than 200,000 people. The definition of rare...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with sickle cell. New here? We invite you to explore...reactionscomments
Donating Blood Can Support Those Living with Sickle CellSickle cell disease (SCD) is a group of inherited disorders that affect red blood cells. SCD causes red blood cells to harden and become sticky. Cells also become C-shaped, or...reactionscomments
Finding Ways to Enjoy Snow DaysAs a child, I remember getting really excited for snow days. I’d sit in front of my tv waiting for them to announce my school’s closure. I never really liked...reactionscomments
Can My Diet Help Manage My Pain Crises?A balanced diet is beneficial for everyone, but it is especially important for people with sickle cell disease (SCD). SCD is linked to low levels of essential nutrients including proteins...reactions4comments
A Hospital Visit During COVID-19I want to quickly share my experience of being hospitalized during this pandemic. Now let me start this by saying I did not have COVID-19 (thank God), nor did I...reactionscomments
Triggers, Tells, and UncertaintyTriggers. I think most people see the word trigger and expect someone to be talking about or showing something violent. But when I say trigger, I mean something that happens...reactionscomments
Know Your Rights: Balancing Work And HealthA challenging aspect of living with sickle cell disease (SCD) can be finding and keeping a job. People with SCD often miss work because of complications or medical appointments. Recurring...reactionscomments
Living with an Invisible Illness Like Sickle Cell DiseaseAcute pain and other complications of sickle cell disease (SCD) can be severe. However, this pain is invisible to other people, and explaining what you are feeling may be frustrating...reactions1comment
