Citizen Science and Sickle CellHave you ever thought about how you can help medical research? Perhaps helping a citizen scientist by responding to surveys is just...reactionscomments
Traveling With Sickle Cell DiseaseWould you laugh at me if I told you that I used to have a dream of being a flight attendant? I...reactions2comments
Sickle Cell and MenstruationSickle cell disorder (SCD) causes problems and difficulties in anyone’s life. For women, SCD can also cause certain unique problems. A common...reactions5comments
It's Getting Hot Out HereThe weather is getting warmer and everybody wants to be outside. As the weather continues to get warmer, remember to stay hydrated...reactionscomments
What Is Sickle Cell?What is sickle cell? My answer to this question will not be the one you are expecting. This is not the answer...reactions2comments
Toxic Masculinity and Sickle Cell DiseaseFirst of all, I’d like to introduce myself: My name is Kehinde Salami. I am 39 years old and have sickle cell...reactions2comments
Can Yoga Help Manage Sickle Cell Pain?The pain of sickle cell disease can be felt in both the body and the mind. Not only do people with sickle...reactionscomments
The SILENT DisabilityMy name is Sam Adeyinka, and I have sickle cell anemia. A lot of people may not be aware of what that...reactions1comment
Managing My Mental Health with Sickle CellThe first time I openly spoke openly about managing my mental health was on Episode 3 of my podcast “Salted Popcorn with...reactionscomments
It's Complicated"It’s complicated..." is usually a common response to someone asking about relationship status. For me, it’s how I would describe my life...reactionscomments
Do Doctors Believe The Pain?There can be many challenges that arise when living with a chronic condition. Some may be short-lived, while others may become part...reactions15comments
The Challenges of Invisible Illnesses and IntimacySickle cell disease (SCD) can affect sex and intimacy for both men and women. Pain and other physical complications can impact the...reactions2comments
Sickle Cell in the Time of COVID-19COVID has forced the world to slow down, take a pause, and really evaluate the state of our society, of humanity. The...reactionscomments
Do I Qualify for Medicare or Medicaid?People with sickle cell disease (SCD) often face high healthcare costs. Paying for care costs from hospital visits, medical procedures, and prescription...reactionscomments
Finding Love with Sickle CellFebruary is a month of celebration. It’s Black History Month, the month of love, and a time to acknowledge the impact of...reactionscomments
Rare Disease Day® and Sickle CellThere’s a day to recognize rare diseases like sickle cell disease! In the US, rare diseases are defined as conditions that affect...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with sickle...reactionscomments
Donating Blood Can Support Those Living with Sickle CellSickle cell disease (SCD) is a group of inherited disorders that affect red blood cells. SCD causes red blood cells to harden...reactionscomments
Finding Ways to Enjoy Snow DaysAs a child, I remember getting really excited for snow days. I’d sit in front of my tv waiting for them to...reactionscomments
Can My Diet Help Manage My Pain Crises?A balanced diet is beneficial for everyone, but it is especially important for people with sickle cell disease (SCD). SCD is linked...reactions4comments
