Rare Disease Day® and Sickle CellThere’s a day to recognize rare diseases like sickle cell disease! In the US, rare diseases are defined as conditions that affect less than 200,000 people. The definition of rare... By sonia-dattaray3 min readBookmark for laterReactions 0 reactions Comments0 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with sickle cell. New here? We invite you to explore... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Donating Blood Can Support Those Living with Sickle CellSickle cell disease (SCD) is a group of inherited disorders that affect red blood cells. SCD causes red blood cells to harden and become sticky. Cells also become C-shaped, or... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Finding Ways to Enjoy Snow DaysAs a child, I remember getting really excited for snow days. I’d sit in front of my tv waiting for them to announce my school’s closure. I never really liked... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments0 comments
Can My Diet Help Manage My Pain Crises?A balanced diet is beneficial for everyone, but it is especially important for people with sickle cell disease (SCD). SCD is linked to low levels of essential nutrients including proteins... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments4 comments
A Hospital Visit During COVID-19I want to quickly share my experience of being hospitalized during this pandemic. Now let me start this by saying I did not have COVID-19 (thank God), nor did I... By Grace Adeyinka3 min readBookmark for laterReactions 0 reactions Comments0 comments
Triggers, Tells, and UncertaintyTriggers. I think most people see the word trigger and expect someone to be talking about or showing something violent. But when I say trigger, I mean something that happens... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments0 comments
Know Your Rights: Balancing Work And HealthA challenging aspect of living with sickle cell disease (SCD) can be finding and keeping a job. People with SCD often miss work because of complications or medical appointments. Recurring... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Living with an Invisible Illness Like Sickle Cell DiseaseAcute pain and other complications of sickle cell disease (SCD) can be severe. However, this pain is invisible to other people, and explaining what you are feeling may be frustrating... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments
Why Do We Get Sick?Whenever I get sick, I find myself analyzing everything I did leading up to my crisis trying to pinpoint the exact cause of my pain. Hoping that maybe I can... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments3 comments
Accepting My DiseaseI figured out that things were a lot easier once I accepted my disease. We all know sickle cell is something that you are born with and although there is... By Grace Adeyinka2 min readBookmark for laterReactions 0 reactions Comments1 comments
What to Know When Planning to Have a BabyMost women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of having complications during pregnancy. SCD also increases the... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Helpful Tips for Your Next Doctor’s VisitRoutine healthcare is an important part of managing sickle cell disease (SCD). Regular care is usually managed by a primary care doctor or hematologist (a doctor who specializes in blood... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments4 comments
Tips on Paying for CarePeople living with sickle cell disease (SCD) face high healthcare costs because of treatments and hospital visits. Health insurance plans may not cover all medical costs. These deductibles, copayments, and... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips for Dealing with UncertaintyPeople with many chronic conditions, including sickle cell disease (SCD), experience “illness uncertainty.” This is the feeling when illness-related events are hard to explain, predict, or understand. The uncertainty could... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Staying Healthy in Colder MonthsSo the colder months are coming (depending on where you live) and as we all know the harsh cold temperatures are usually the hardest for sickle cell patients. As a... By Grace Adeyinka2 min readBookmark for laterReactions 0 reactions Comments2 comments