7 Tips to Prepare Sickle Cell Warriors for VacationAs a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them inspired me to make sure that I give... By Elle Cole4 min readBookmark for laterReactions0reactionsComments3 comments
How to Prepare Your Child With Sickle Cell To Have a Safe and Enjoyable SummerSummer is a time for fun and adventure, but for sickle cell caregivers, it can also be a time of increased worry. With the warmer weather comes outdoor activities like... By Elle Cole4 min readBookmark for laterReactions0reactionsComments0 comments
How Parents of Children with Sickle Cell Disease Can Find Intimacy and ConnectionI'm the mother of a child with sickle cell disease (SCD), and a few weeks ago while chatting with another sickle cell parent, she asked me about sickle cell and... By Elle Cole7 min readBookmark for laterReactions0reactionsComments3 comments
Sickle Cell Families Must Build a Network of SupportAfter receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult because this is a chronic illness that impacts... By Elle Cole3 min readBookmark for laterReactions0reactionsComments1 comments
My Warrior Daughter Led Me to AdvocacyMy journey as a sickle cell advocate started 13 years ago, after my husband and I visited the obstetrics and gynecology (OBGYN) specialist. During the visit, to my surprise, she... By Elle Cole3 min readBookmark for laterReactions0reactionsComments0 comments
