Essential Questions for Sickle Cell CaregiversAs a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle cell disease is, but I will define it...Reactions0reactionsComments0 comments
7 Tips to Prepare Sickle Cell Warriors for VacationAs a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them inspired me to make sure that I give...Reactions0reactionsComments3 comments
How to Prepare Your Child With Sickle Cell To Have a Safe and Enjoyable SummerSummer is a time for fun and adventure, but for sickle cell caregivers, it can also be a time of increased worry. With the warmer weather comes outdoor activities like...Reactions0reactionsComments0 comments
How Parents of Children with Sickle Cell Disease Can Find Intimacy and ConnectionI'm the mother of a child with sickle cell disease (SCD), and a few weeks ago while chatting with another sickle cell parent, she asked me about sickle cell and...Reactions0reactionsComments3 comments
Sickle Cell Families Must Build a Network of SupportAfter receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult because this is a chronic illness that impacts...Reactions0reactionsComments1 comments
My Warrior Daughter Led Me to AdvocacyMy journey as a sickle cell advocate started 13 years ago, after my husband and I visited the obstetrics and gynecology (OBGYN) specialist. During the visit, to my surprise, she...Reactions0reactionsComments0 comments
