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Read conversations, start a discussion, and connect with others about sickle cell.

I’m a Sickle Cell Survivor

Hello, My name is Lisa. I was diagnosed at Cleveland Clinic, OH. I was sixteen months old. My mother said that I had started to walk until one morning she...

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Favorite books, podcasts, or social media accounts for sickle cell information

What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...

Most memorable healthcare experience

Hospitals and clinic visits are a big part of living with sickle cell. What is a memorable moment (good or bad) that has stuck with you?...

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New FDA treatment for SCD

The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...

How much is?

Good Day; I hope all are doing great. I live in Canada, have Sickle Cell Disease (SC), and I'm searching information on health services/insurances before I decide to move to...

Will you take our In America survey and help others understand the true impact of sickle cell disease?

The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...

How it feels when I don't have anybody to share my feelings with

I feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...

Has anyone used Kratom while managing sickle cell.

Let me preface this by saying it is legal in my state. I have begun to use it to help my body go through opioid withdrawals after being discharged from...

My avascular necrosis surgery

I suffered from a hip pain for six years I use to limp when walking and it became a problem for me. It got to a time I couldn’t walk...

How to manage sickle cell

Hi, I have a daughter of 6years but she's sickle cell She always complain of stomach pain...

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