Most memorable healthcare experienceHospitals and clinic visits are a big part of living with sickle cell. What is a memorable moment (good or bad) that has stuck with you?...Reactions0reactionsComments4 repliesHealthcare Team
FeaturedNew FDA treatment for SCDThe US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...Reactions0reactionsComments9 repliesTreatment
How much is?Good Day; I hope all are doing great. I live in Canada, have Sickle Cell Disease (SC), and I'm searching information on health services/insurances before I decide to move to...Reactions0reactionsComments1 repliesInsurance & Disability
Will you take our In America survey and help others understand the true impact of sickle cell disease? The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...Reactions0reactionsComments0 repliesAwareness
How it feels when I don't have anybody to share my feelings withI feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...Reactions0reactionsComments1 replies
Has anyone used Kratom while managing sickle cell.Let me preface this by saying it is legal in my state. I have begun to use it to help my body go through opioid withdrawals after being discharged from...Reactions0reactionsComments2 repliesDiet & NutritionTips & AdviceCoping
My avascular necrosis surgery I suffered from a hip pain for six years I use to limp when walking and it became a problem for me. It got to a time I couldn’t walk...Reactions0reactionsComments4 repliesSurgery
How to manage sickle cellHi, I have a daughter of 6years but she's sickle cell She always complain of stomach pain...Reactions0reactionsComments1 replies
Connect With Other Sickle Cell Warriors!Living with sickle cell can sometimes feel like a lonely journey, but remember, you are not alone! Our community is filled with other warriors that understand the unique challenges and...Reactions0reactionsComments10 replies
World Sickle cell DayYes We are Sickled !and Yes !we are not like everyone else, but,Sickled or Not, We all deserve to be loved and treated equally.We are Sickled but Fly ,We are...Reactions0reactionsComments1 repliesAwareness