I am a Father of SCD ChildHi, my daughter was diagnosed with Sickle Cell Disease (SCD) when she was 1 year old. She is currently a year 4months now and 2days ago we noticed that her...Reactions 0 reactions Comments1 replies
Aging With Sickle CellHello, I’m A Sickle Cell Warrior & I’m 26yrs Old I Had Gotten Diagnosed When I Was Just 2wks Old Of Being Born. For The Past Year My Sickle Cell...Reactions 0 reactions Comments4 replies
Do you exercise?Walking, weights, tai chi... What kind of exercise do you do? If you don't exercise, why not?...Reactions 0 reactions Comments8 repliesExercise
Feeling judged?Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your reaction?...Reactions 0 reactions Comments8 repliesFriends & FamilyAwareness
Just give me your hand Hey I want to tell my story since I was in the hospital and the pain was all over me. No one in that hospital knew what my problem was...Reactions 0 reactions Comments0 replies
Will you take our In America survey to share the truth about life with sickle cell? There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living with sickle cell disease, we are fielding our...Reactions 0 reactions Comments1 repliesAwarenessResearch & Clinical Trials
Patient concierge I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...Reactions 0 reactions Comments5 repliesAwarenessCaregivingDiet & Nutrition
I’m here to meet and do more in creating awarenessAwesome. I’m excited to be here. Nd Esther is my name; I am a practicing physician in Lagos, Nigeria. I have become particularly interested in medical awareness, and SCD had...Reactions 0 reactions Comments3 repliesAwarenessCoping
What is the first sign that lets you know a crisis is coming?From emotional changes to fatigue & thirst, how do you typically know that a crisis is coming? Share below!...Reactions 0 reactions Comments8 repliesSymptoms
Should I start on hydroxurea?I am 49 years old. I have been having more crisis than before and the doctors believe this is influenced by menopause. Before now, my crisis were not frequent &...Reactions 0 reactions Comments1 replies