Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about sickle cell.

What is the first sign that lets you know a crisis is coming?

From emotional changes to fatigue & thirst, how do you typically know that a crisis is coming? Share below!...

Finding Friends while having Sicklecell

Is it difficult for you to find or even keep friends while handling sicklecell?...

Please help educate me

Hello, I am learning about ss, to try to help someone. I just read about cells going sickle when oxygen is lacking. I realise its normal for some blood to...

Sickle Cell CONSTANTLY Getting Disrespected

As sickle cell warriors are you constantly getting disrespected whenever you go to the hospital or the doctor or if you get weekly treatment? Your pain not getting taking seriously...

ADA Recommendations Examples & Navigating ADA request

Hello All, Just looking for suggestions and positive experiences to help my partner navigate work place discrimination and requesting ADA accommodations that would help avoid being penalized for missed time...

Dating, Love, Support, and SICKLE CELL

I'm in love with a woman who has sickle cells, dating her comes with different challenges, she has constant knee pain that limits us only to certain activities. She is...

Emergency

Dear soldiers this priapism thing is killing me inside. Is there any help here for me?...

Hope

I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...

I’m a Sickle Cell Survivor

Hello, My name is Lisa. I was diagnosed at Cleveland Clinic, OH. I was sixteen months old. My mother said that I had started to walk until one morning she...

Most memorable healthcare experience

Hospitals and clinic visits are a big part of living with sickle cell. What is a memorable moment (good or bad) that has stuck with you?...

Categories

Select a category to find topics that interest you.