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Read conversations, start a discussion, and connect with others about sickle cell.

Self care!

What are your go-to self care activities? ...

Where Do I Go From Here?

Being born with sickle cell, I was constantly in and out of the hospital. Once I got older, it calmed down a lot. But I am unable to afford any...

Sickle Cell at Age 50

I was just diagnosed with Mild Sickle Cell Disease at 50. I was always told that I had the sickle cell trait. I have had 2 major surgeries but no...

A member named Marnita

I was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...

Free Tutoring for Kids with Sickle Cell

Hi! I am a 10th grader and would like to offer free tutoring services for kids with Sickle Cell. Last year I was out of school for a significant period...

My Story

Hello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...

Some tips for managing Priapism at home

Wake up everyday with priapism. Home treatment suggestions thanks....

Unacceptance

As a sickle cell warrior, Do you find yourself constantly battling other peoples perspective of you? Are the moments you feel unwanted and not understood?? Because I do. And it...

Pain Triggers

Do you know what your triggers are? ...

Pain killers

Am having too much crisis...

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