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Read conversations, start a discussion, and connect with others about sickle cell.

A member named Marnita

I was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...

Free Tutoring for Kids with Sickle Cell

Hi! I am a 10th grader and would like to offer free tutoring services for kids with Sickle Cell. Last year I was out of school for a significant period...

My Story

Hello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...

Some tips for managing Priapism at home

Wake up everyday with priapism. Home treatment suggestions thanks....

Unacceptance

As a sickle cell warrior, Do you find yourself constantly battling other peoples perspective of you? Are the moments you feel unwanted and not understood?? Because I do. And it...

Pain Triggers

Do you know what your triggers are? ...

Pain killers

Am having too much crisis...

What is the first sign that lets you know a crisis is coming?

From emotional changes to fatigue & thirst, how do you typically know that a crisis is coming? Share below!...

Finding Friends while having Sicklecell

Is it difficult for you to find or even keep friends while handling sicklecell?...

Please help educate me

Hello, I am learning about ss, to try to help someone. I just read about cells going sickle when oxygen is lacking. I realise its normal for some blood to...

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