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Read conversations, start a discussion, and connect with others about sickle cell.

My Story

Hello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...

Some tips for managing Priapism at home

Wake up everyday with priapism. Home treatment suggestions thanks....

Unacceptance

As a sickle cell warrior, Do you find yourself constantly battling other peoples perspective of you? Are the moments you feel unwanted and not understood?? Because I do. And it...

Pain Triggers

Do you know what your triggers are? ...

Pain killers

Am having too much crisis...

What is the first sign that lets you know a crisis is coming?

From emotional changes to fatigue & thirst, how do you typically know that a crisis is coming? Share below!...

Finding Friends while having Sicklecell

Is it difficult for you to find or even keep friends while handling sicklecell?...

Please help educate me

Hello, I am learning about ss, to try to help someone. I just read about cells going sickle when oxygen is lacking. I realise its normal for some blood to...

Sickle Cell CONSTANTLY Getting Disrespected

As sickle cell warriors are you constantly getting disrespected whenever you go to the hospital or the doctor or if you get weekly treatment? Your pain not getting taking seriously...

ADA Recommendations Examples & Navigating ADA request

Hello All, Just looking for suggestions and positive experiences to help my partner navigate work place discrimination and requesting ADA accommodations that would help avoid being penalized for missed time...

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