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New FDA treatment for SCD

The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are your feelings?

  1. thanks to technology i hope it will be eliminating out of the world but remind the cost!

    1. Cost is definitely a factor many struggle with, you're not alone there. How are you doing today?? Sending positive vibes your way! -Beth (Team Member)

  2. I read it cautiously after my experience with another widely published best thing since slice bread - Crizanlizumab. I was on it for 6 months side effect was horrible nausea and crisis - apparently the sample group were sufferers with non complicated SCD. So with I quietly looked at not only the cost which I do not know how many can afford but the side effects and also the preparation before the ‘cure’. Again the trail sample group was 44 - why do they always use such a small group? Am not jumping and dancing yet.

    1. yes the cost is outrageous but i am definitely hopeful for a better future and to eradicate this disease once and for all.

      1. I really was excited reading that some weeks ago but bubble busted when I checked the cost. It is simply not affordable!

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