Caregiver

I'm the mother of a child with sickle cell disease (SCD), and a few weeks ago while chatting with another sickle cell parent, she asked me about sickle cell and...

As I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much pride in caring for them because, in the...

The new school year is now upon us. For the parents of children with sickle cell disease, it means we have to finish our preparing for school "list". Reminders for...

After receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult because this is a chronic illness that impacts...

Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health, but in the end, it turned out to...

Have you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math test. Or your driving test. You can practice...

As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process look like? During Thanksgiving, we sat at the...

Do you recognize this? You are in the hospital with your child, and you get a call from a good friend. As you vent as a parent, you hear “It...

Most of the time when we are dealing with sickle cell disease, we are focusing on the pain episodes, sleepless nights, and all the pain medications. What we often forget...

Like parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to Sadiq, a 20-year-old man who lives in Nigeria...

Dear Readers, My name is Andressa Hunsel Ambrose. I am the mother of Miracle, a sweet little girl of 9 years old and I want to share my journey with...

Andressa is the author of the children's book Keemaya and The Beach: My Journey Living with Sickle Cell. Inspired by her daughter's experiences with sickle cell and her experience as...