How to Prepare Your Child With Sickle Cell To Have a Safe and Enjoyable SummerSummer is a time for fun and adventure, but for sickle cell caregivers, it can also be a time of increased worry. With the warmer weather comes outdoor activities like...Reactions0reactionsComments0 comments
How Parents of Children with Sickle Cell Disease Can Find Intimacy and ConnectionI'm the mother of a child with sickle cell disease (SCD), and a few weeks ago while chatting with another sickle cell parent, she asked me about sickle cell and...Reactions0reactionsComments3 comments
How To Survive Caregiver BurnoutAs I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much pride in caring for them because, in the...Reactions0reactionsComments3 comments
Back To School With Sickle Cell DiseaseThe new school year is now upon us. For the parents of children with sickle cell disease, it means we have to finish our preparing for school "list". Reminders for...Reactions0reactionsComments0 comments
Sickle Cell Families Must Build a Network of SupportAfter receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult because this is a chronic illness that impacts...Reactions0reactionsComments1 comments
My Daughter's Climate Triggers: Give Me the Sun!Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health, but in the end, it turned out to...Reactions0reactionsComments1 comments
Will I Be A Good Parent? A Journey of AcceptanceHave you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math test. Or your driving test. You can practice...Reactions0reactionsComments1 comments
Can Parents Really Accept Sickle Cell?As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process look like? During Thanksgiving, we sat at the...Reactions0reactionsComments5 comments
Comforting Other ParentsDo you recognize this? You are in the hospital with your child, and you get a call from a good friend. As you vent as a parent, you hear “It...Reactions0reactionsComments0 comments
Caring for a Child With Sickle CellMost of the time when we are dealing with sickle cell disease, we are focusing on the pain episodes, sleepless nights, and all the pain medications. What we often forget...Reactions0reactionsComments2 comments
Living With Sickle Cell: Sadiq's StoryLike parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to Sadiq, a 20-year-old man who lives in Nigeria...Reactions0reactionsComments2 comments
The Journey of a Mother of a Sickle Cell WarriorDear Readers, My name is Andressa Hunsel Ambrose. I am the mother of Miracle, a sweet little girl of 9 years old and I want to share my journey with...Reactions0reactionsComments0 comments
An Interview with Andressa HunselAndressa is the author of the children's book Keemaya and The Beach: My Journey Living with Sickle Cell. Inspired by her daughter's experiences with sickle cell and her experience as...Reactions0reactionsComments0 comments
