How to Prepare Your Child With Sickle Cell To Have a Safe and Enjoyable SummerSummer is a time for fun and adventure, but for sickle cell caregivers, it can also be a time of increased worry...reactionscomments
How Parents of Children with Sickle Cell Disease Can Find Intimacy and ConnectionI'm the mother of a child with sickle cell disease (SCD), and a few weeks ago while chatting with another sickle cell...reactions4comments
How To Survive Caregiver BurnoutAs I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much...reactions3comments
Back To School With Sickle Cell DiseaseThe new school year is now upon us. For the parents of children with sickle cell disease, it means we have to...reactionscomments
Sickle Cell Families Must Build a Network of SupportAfter receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult...reactions1comment
My Daughter's Climate Triggers: Give Me the Sun!Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health...reactions1comment
Will I Be A Good Parent? A Journey of AcceptanceHave you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math...reactions1comment
Can Parents Really Accept Sickle Cell?As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process...reactions5comments
Comforting Other ParentsDo you recognize this? You are in the hospital with your child, and you get a call from a good friend. As...reactionscomments
Caring for a Child With Sickle CellMost of the time when we are dealing with sickle cell disease, we are focusing on the pain episodes, sleepless nights, and...reactions2comments
Living With Sickle Cell: Sadiq's StoryLike parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to...reactions2comments
The Journey of a Mother of a Sickle Cell WarriorDear Readers, My name is Andressa Hunsel Ambrose. I am the mother of Miracle, a sweet little girl of 9 years old...reactionscomments
An Interview with Andressa HunselAndressa is the author of the children's book Keemaya and The Beach: My Journey Living with Sickle Cell. Inspired by her daughter's...reactionscomments
