A How-to Guide for Self-advocacy...After the initial shock of a chronic disease diagnosis, questions arise. What does this mean? How do I manage the symptoms? Can...reactionscomments
A Dad's Journey of Hope...I can't accept this! As an experience expert, you grow over the years as a person, as an individual and above all...reactionscomments
Restless Legs Syndrome in Children with Sickle Cell Disease...Restless legs syndrome (RLS) is a neurological condition that disrupts sleep in children and adults. That is why it is also called...reactions3comments
What to Know When Dating Someone With Sickle Cell...The first thing you must check before even considering asking a person with sickle cell out on a date is your genotype...reactions4comments
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who...
Performance Activism...I started my work in patient advocacy in 2017 but along the way, there have been moments of pause that make me...reactionscomments
Kidney Transplant...Treating chronic kidney disease (CKD) begins with lifestyle changes and medicines to treat the health problems that arise from kidney damage. But...reactionscomments
A Bootless Man...“Now I believe we ought to do all we can and seek to lift ourselves by our own bootstraps, but it’s a...reactionscomments
Finding My Pace: My Journey with Sickle Cell and Exercise...I like to believe that having sickle cell doesn’t at all limit my potential. If I really want to do something, then...reactions13comments
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with sickle cell every...
Hydroxyurea for Sickle Cell Disease...Hydroxyurea has been used to treat sickle cell disease (SCD) since the 1980s. It is the most common treatment for sickle cell...
Bone Marrow Transplant for Sickle Cell Disease...The only cure for sickle cell disease (SCD) is a bone marrow or stem cell transplant. This is a procedure where your...
Blood Transfusions and Sickle Cell Disease...Blood transfusion therapy is a procedure that is used to treat and prevent certain complications of sickle cell disease (SCD). Transfusions decrease...
Immunizations and Sickle Cell Disease...Children with sickle cell disease (SCD) are more vulnerable to severe infections because of damage to the spleen. The spleen is an...
Folic Acid for Sickle Cell Disease...People with sickle cell disease (SCD) often take folic acid supplements to treat anemia. In the body, folic acid gets converted to...
Medications for Sickle Cell Disease...Editor’s note: As of September 2024, Oxbryta (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns...
Iron Chelation and Sickle Cell Disease...High levels of iron in the body can cause life-threatening conditions, such as liver disease, heart problems, and diabetes. Excessive iron (often...
Pain Medications and Sickle Cell Disease...Most people with sickle cell disease (SCD) experience an acute pain episode in their lifetime. The first episode can occur as early...
Pain Management With Sickle Cell Disease...Acute pain episodes are the most common cause of hospitalization for people with sickle cell disease (SCD). However, most episodes are managed...
Splenectomy and Sickle Cell Disease...About 1 in 4 young children with sickle cell disease (SCD) experience a complication called splenic sequestration crisis. This happens when the...
