Emergency Challenges and Guidance...I've written many times about challenges in the emergency department (ED) with my little princess. Unpleasant situations usually cause feelings of misunderstanding, disrespect, and so many more negative emotions. And...reactionscomments
Where Do I Go From Here?...Being born with sickle cell, I was constantly in and out of the hospital. Once I got older, it calmed down a lot. But I am unable to afford any...reactions1reply
Sickle Cell at Age 50...I was just diagnosed with Mild Sickle Cell Disease at 50. I was always told that I had the sickle cell trait. I have had 2 major surgeries but no...reactionsreplies
Healing Childhood Trauma...A wise person once told me that my mental, physical and emotional health are connected. I grew up in a culture and time where society had not yet adopted the...reactions1comment
Finding a Support Person for Doctor Appointments...People with chronic health conditions like sickle cell disease often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating are frequent side effects too. That...reactionscomments
Adventures Abroad With Sickle Cell...Get ready with me for my next adventure, a tour around Europe! I have been dreaming of returning to Europe ever since my trip to Spain back in high school!...reactions1comment
Free Tutoring for Kids with Sickle Cell...Hi! I am a 10th grader and would like to offer free tutoring services for kids with Sickle Cell. Last year I was out of school for a significant period...reactionsrepliesCopingCaregivingCost
10 Questions to Ask Your Doctor When You Are Newly Diagnosed...It is often hard to know what to ask, or even where to begin when you have questions about a new diagnosis. Many community members on this site talk about...reactionscomments
Loneliness: The Silent Symptom of Sickle Cell...It is not an understatement to say that it is harder to find lasting and meaningful friendships as one progresses into adulthood and the new life that awaits. A quick...reactions1comment
Misinformation on Living with Sickle Cell Trait...I’m 29 years old and the sickle cell community and doctors still have a lack of knowledge of sickle cell disease and the trait. If they fully understand Sickle Cell...reactions1comment
Sickle Cell Disease in the Emergency Room...In recent years I have always wondered how we as a Sickle Cell community can make a sustainable contribution to the things we see again and again. The more I...reactionscomments
Live Your Best Life...I have been living with sickle cell disease for 59 years. I have been able to accomplish many things. I am married for almost 35 years and gave birth to...reactions2comments
Running on Empty...I think it is time to focus and acknowledge that I, like other chronically ill people and people with sickle cell, struggle with this sense of normalcy. Since attending primary...reactionscomments
Lessons from My Hip Replacement Journey...Living with sickle cell comes with many complications. At 17, I was diagnosed with AVN and by 23 I was begging for a hip replacement as I was unable to...reactionscomments
My Story...Hello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...reactions1reply
Some tips for managing Priapism at home...Wake up everyday with priapism. Home treatment suggestions thanks....reactions1replyTreatment
Essential Questions for Sickle Cell Caregivers...As a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle cell disease is, but I will define it...reactionscomments
Living with Chronic Pain...Living with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts various aspects of a person's life. One significant...reactionscomments
Please help educate me...Hello, I am learning about ss, to try to help someone. I just read about cells going sickle when oxygen is lacking. I realise its normal for some blood to...reactions1reply
