Sickle Cell Books You Need...Last week, I was putting my nephew to bed and he asked me to tell him a story. At first, I wanted...reactions1comment
Racial Disparities in Healthcare...The term "racial disparities" refers to the ways that different racial groups are treated differently or have different outcomes. Racial disparities in...reactionscomments
How an Emotional Support Dog Helps My Daughter with Sickle Cell Disease...A couple of weeks ago, my princess started to suffer from back pain again. This officially started last year, and it seems...reactions2comments
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who...
Menopause and Sickle Cell...Many women with sickle cell disease (SCD) worry about how their health will change when they reach menopause. While there is still...reactions1comment
A How-to Guide for Self-advocacy...After the initial shock of a chronic disease diagnosis, questions arise. What does this mean? How do I manage the symptoms? Can...reactionscomments
A Dad's Journey of Hope...I can't accept this! As an experience expert, you grow over the years as a person, as an individual and above all...reactionscomments
Restless Legs Syndrome in Children with Sickle Cell Disease...Restless legs syndrome (RLS) is a neurological condition that disrupts sleep in children and adults. That is why it is also called...reactions3comments
What to Know When Dating Someone With Sickle Cell...The first thing you must check before even considering asking a person with sickle cell out on a date is your genotype...reactions4comments
Performance Activism...I started my work in patient advocacy in 2017 but along the way, there have been moments of pause that make me...reactionscomments
Kidney Transplant...Treating chronic kidney disease (CKD) begins with lifestyle changes and medicines to treat the health problems that arise from kidney damage. But...reactionscomments
A Bootless Man...“Now I believe we ought to do all we can and seek to lift ourselves by our own bootstraps, but it’s a...reactionscomments
Finding My Pace: My Journey with Sickle Cell and Exercise...I like to believe that having sickle cell doesn’t at all limit my potential. If I really want to do something, then...reactions13comments
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with sickle cell every...
Hydroxyurea for Sickle Cell Disease...Hydroxyurea has been used to treat sickle cell disease (SCD) since the 1980s. It is the most common treatment for sickle cell...
Bone Marrow Transplant for Sickle Cell Disease...The only cure for sickle cell disease (SCD) is a bone marrow or stem cell transplant. This is a procedure where your...
Blood Transfusions and Sickle Cell Disease...Blood transfusion therapy is a procedure that is used to treat and prevent certain complications of sickle cell disease (SCD). Transfusions decrease...
Immunizations and Sickle Cell Disease...Children with sickle cell disease (SCD) are more vulnerable to severe infections because of damage to the spleen. The spleen is an...
Folic Acid for Sickle Cell Disease...People with sickle cell disease (SCD) often take folic acid supplements to treat anemia. In the body, folic acid gets converted to...
Medications for Sickle Cell Disease...Editor’s note: As of September 2024, Oxbryta (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns...
