The Power of Positivity: Nurturing Hope...How many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a medical professional told you to be “positive.” In... By Chesterfield Hall2 min readBookmark for laterReactions 0 reactions Comments0 comments
Sickle Cell Advocacy and Activism...Today, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my... By Wunmi Bakare3 min readBookmark for laterReactions 0 reactions Comments0 comments
How much is?...Good Day; I hope all are doing great. I live in Canada, have Sickle Cell Disease (SC), and I'm searching information on health services/insurances before I decide to move to...Reactions 0 reactions Comments1 repliesInsurance & Disability
A Warrior's Call...My story with sickle cell disease starts like many others being born with the condition, but I also have a twin brother, and he is going to save my life... By Sramos71891 min readBookmark for laterReactions 0 reactions Comments0 comments
Challenging ER visits...OMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the Emergency Room with my princess. My little princess... By Andressa Hunsel3 min readBookmark for laterReactions 0 reactions Comments1 comments
How it feels when I don't have anybody to share my feelings with...I feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...Reactions 0 reactions Comments1 replies
New Beginnings Settling In...After my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful from apartment hunting to tours and applications. I... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments0 comments
Will you take our In America survey and help others understand the true impact of sickle cell disease? ...The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...Reactions 0 reactions Comments0 repliesAwareness
Sleeves Up for Sickle Cell...Sickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated that more than 100,000 people live with this... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
A Nigerian Warrior's Story...My name is Ronke, and I am a Nigerian. I am 17 years of age and diagnosed with SS. I discovered my sickness very late in 2022. I left my... By CommunityMember1a48173 min readBookmark for laterReactions 0 reactions Comments0 comments
Self-Conscious of My Appearance...l had a stroke when l was 5 years old. Growing up has been difficult for me because of my appearance and the way that l look compared to my... By JACKIE1 min readBookmark for laterReactions 0 reactions Comments0 comments
Why? The Moon and My Tears...It's 1996, I am 30 years old, and I just finished my National Youth Service Corp (NYSC) in Nigeria. I was quite healthy that period with occasional crises mixed with... By Goldfish1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey as a Sickle Cell Patient...Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease... By Nova1 min readBookmark for laterReactions 0 reactions Comments0 comments
Hope ...I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...Reactions 0 reactions Comments1 repliesCoping
Lead Poisoning and Sickle Cell Disease...Greetings, I am Paris and I have SS sickle cell disease. My mother was told I would be born with the disease before I was born. I was born in... By CommunityMemberf9314e1 min readBookmark for laterReactions 0 reactions Comments0 comments
Sickle Cell and l...I myself am a 57 year old warrior. Diagnosed at birth, but still don’t know who had the trait or the disease. My parents say they didn’t have a trait... By Vcohill1 min readBookmark for laterReactions 0 reactions Comments0 comments
My name is Myron, I'm a Kenyan...My journey with sickle cell disease started at five months old. I had a severe pain crisis and I couldn't learn how to walk until two years later. I have... By CommunityMemberaa69641 min readBookmark for laterReactions 0 reactions Comments0 comments
Live the Moment...I am 25 years old and have lived with sickle cell anemia since I was six months old. The crises are the worst; the pain and the fear that I... By simryhe1 min readBookmark for laterReactions 0 reactions Comments0 comments
Still Kicking at 52...Hello, my name is Tammy and I have been living with sickle cell disease for 52 years. I was born in 1969 and babies were not yet screened for this... By Tammy1 min readBookmark for laterReactions 0 reactions Comments0 comments
Being Kicked Out of the Hospital...I am currently in the hospital but tonight is going to be my last night unfortunately even though I am still in an excruciating amount of pain. I am basically... By Whit03273 min readBookmark for laterReactions 0 reactions Comments0 comments
