As a sickle cell warrior, Do you find yourself constantly battling other peoples perspective of you? Are the moments you feel unwanted and not understood?? Because I do. And it would be nice to know that I'm not aloneš
and Iāve made it a habit to educate people constantly on sickle cell.. but it still doesnāt make sense to them.. so frustrating sometimes
Halimat Olaniyan Member
the worst is when you step back from constantly explaining yourself and people act like you no longer have a disease. Lol no, I just donāt have the energy to keep arguing with people.
Rhedd Maya Moderator
and when you withdraw and handle your own business with ought asking for help, you are seen as rude and proud..š¤¦š¾āāļøš¤¦š¾āāļøš
Rhedd Maya Moderator
It's a constant struggle I think may never endš
Halimat Olaniyan Member
I struggle with this too! It's honestly such a tough balance!
Abayomi Afolayan Member
You're definitely not alone. I find myself withdrawing from anything social because I don't want to be misunderstood.
Olanrewaju12 Member
always at the confinement of my room,I hate social gathering and whenever Iām going to school I put on my dark shade, Iām tired of explaining why my eyes arenāt white
Beth.Huffman Member
Thanks for joining the conversation and sharing. I can hear how much this hurts as I read your words. I wish I could help take some of this pain away for you. I know it's easier said than done, but please be kind to yourself and know our community is here for you. Don't hesitate to reach out if you need us! Sending you strength and support every step of the way. -Beth (Team Member)