How has race affected your patient journey?...In your opinion, how has bias affected your journey as a patient? How do you think your journey would be different if you were a different race?...Reactions0reactionsComments1 replies
How Do You Advocate for Yourself in the ER?...What are ways that you have found to advocate for yourself in the ER? Share your tips and stories with other warriors in this forum....Reactions0reactionsComments5 repliesTips & Advice
sicke cell anaemia...my son has sickle cell and i have roamed in search of penicillin v suspension but to no avail i feel like giving up dont know what to do...Reactions0reactionsComments2 replies
Grief and Denial? ...How do you deal with the loss of a warrior that appeared stronger than you in all aspects?...Reactions0reactionsComments6 repliesMental Health
COVID 19...What are your fears when it comes to vaccinations in general? ...Reactions0reactionsComments4 replies
What are your summer triggers?...Are there things that you have to watch out for in the summer time, or is your disease better managed?...Reactions0reactionsComments0 repliesCopingTips & Advice
2nd Sickle Cell In America Survey...Sickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...Reactions0reactionsComments0 repliesAwareness
Ways to Advocate ...In what ways do you advocate for sickle cell?...Reactions0reactionsComments1 repliesAwarenessTips & Advice
2 Questions about this graph: (please view graph)...In months 5-12 HbS is still at around 50%. Is this a problem or is the patient cured. Many thanks....Reactions0reactionsComments1 repliesResearch & Clinical TrialsSide EffectsSymptoms
WHAT MAKES ME A WARRIOR...I am a warrior because I am happy and live my best life even though sickle cell gets in the way too many times. What is your warrior phrase?...Reactions0reactionsComments3 repliesCoping
How to take care of a child living with sickle cell as a mother...A have a 4yrs old son living with sickle cell and it as not been an easy one,need advice and counsel on how to take good care of him...Reactions0reactionsComments4 repliesAssistive Devices
FeaturedMenstrual Cycles and Menopause ...With the increase in life expectancy, more and more women are also reaching menopause. How has SCD impacted you in this area?...Reactions0reactionsComments2 repliesSymptoms
Anyone have tips for managing in the winter?...The cold weather is sometimes hard for me to navigate....Reactions0reactionsComments4 repliesWeather
Accepting the damage Sickle cell has on my mind....How often do you check on your mental health as an SCD warrior.....Reactions0reactionsComments10 repliesMental HealthDepression
Awareness Month Forum: Be A Change Maker...What is one resource that would make a big difference in your community for those with the disease?...Reactions0reactionsComments3 repliesAwareness
Has anyone used Kratom while managing sickle cell....Let me preface this by saying it is legal in my state....Reactions0reactionsComments2 repliesDiet & NutritionTips & AdviceCoping
Money Problems Because of Sickle cell?...Have you ever been in serious money troubles?...Reactions0reactionsComments2 repliesCost