UnacceptanceAs a sickle cell warrior, Do you find yourself constantly battling other peoples perspective of you? Are the moments you feel unwanted and not understood?? Because I do. And it...Reactions 0 reactions Comments6 repliesCaregiving
How has race affected your patient journey?In your opinion, how has bias affected your journey as a patient? How do you think your journey would be different if you were a different race? Share your thoughts...Reactions 0 reactions Comments1 replies
Student nurseHello Everyone, I hope you are all well? I’m currently a student nurse, I have a presentation due which Centers around life long medical conditions. I decided after having my...Reactions 0 reactions Comments2 replies
A lesson learnedBefore I got married I ran a genotype test,and the result came out that I as AA and my partner AS ,NOT knowing the lab attendant never carried out the...Reactions 0 reactions Comments1 replies
HiHello everyone, I am new here my name is Ifejesu I am a Nigerian, 19 years old and I have been having pains since I was little. And growing up...Reactions 0 reactions Comments3 replies
FeaturedI might not reach my potential height I think that one of the most depressing thing about being a sickler is living with the fear that you might never grow taller. I'm a secondary school senior and...Reactions 0 reactions Comments6 repliesCopingTips & Advice
The many emotions of living with sickle cellThere are many aspects of sickle cell that bring up strong emotions for warriors. What emotions are you currently feeling and why?...Reactions 0 reactions Comments3 repliesCopingMental Health
Emotional Support AnimalsDo you have an animal that comforts you when experiencing pain or mental health issues due to your disease? Share about them here! (pictures encouraged :))...Reactions 0 reactions Comments1 repliesCoping
Music TherapyHave you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found most helpful? What is your favorite type of...Reactions 0 reactions Comments6 repliesCopingTips & Advice
Do you know any Ridiculous Myths about Sickle CellWhat are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...Reactions 0 reactions Comments11 repliesAwareness