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Read conversations, start a discussion, and connect with others about sickle cell.

Sickle cells and dating

I been diagnosed with sickle cell about 3 years ago and it’s been difficult for me to find friends and share my experience with others...

52 living with sickle cell

My childhood was painful always swollen and in pain legs feet joints ... In my time they said I had juvenile arthritis.. terrible fever . No one dr knew ...

My lovely girl friend with sickle cell

I hv my girlfriend with sickle cell anemia but she's loves me so much and me I do but she want me to marry her , I'm still scared of...

I am a Father of SCD Child

Hi, my daughter was diagnosed with Sickle Cell Disease (SCD) when she was 1 year old. She is currently a year 4months now and 2days ago we noticed that her...

Aging With Sickle Cell

Hello, I’m A Sickle Cell Warrior & I’m 26yrs Old I Had Gotten Diagnosed When I Was Just 2wks Old Of Being Born. For The Past Year My Sickle Cell...

Do you exercise?

Walking, weights, tai chi... What kind of exercise do you do? If you don't exercise, why not?...

Feeling judged?

Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your reaction?...

Just give me your hand

Hey I want to tell my story since I was in the hospital and the pain was all over me. No one in that hospital knew what my problem was...

Will you take our In America survey to share the truth about life with sickle cell?

There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living with sickle cell disease, we are fielding our...

Patient concierge

I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...

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