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Read conversations, start a discussion, and connect with others about sickle cell.

I am a Father of SCD Child

Hi, my daughter was diagnosed with Sickle Cell Disease (SCD) when she was 1 year old. She is currently a year 4months now and 2days ago we noticed that her...

Aging With Sickle Cell

Hello, I’m A Sickle Cell Warrior & I’m 26yrs Old I Had Gotten Diagnosed When I Was Just 2wks Old Of Being Born. For The Past Year My Sickle Cell...

Do you exercise?

Walking, weights, tai chi... What kind of exercise do you do? If you don't exercise, why not?...

Feeling judged?

Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your reaction?...

Just give me your hand

Hey I want to tell my story since I was in the hospital and the pain was all over me. No one in that hospital knew what my problem was...

Will you take our In America survey to share the truth about life with sickle cell?

There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living with sickle cell disease, we are fielding our...

Patient concierge

I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...

I’m here to meet and do more in creating awareness

Awesome. I’m excited to be here. Nd Esther is my name; I am a practicing physician in Lagos, Nigeria. I have become particularly interested in medical awareness, and SCD had...

Should I start on hydroxurea?

I am 49 years old. I have been having more crisis than before and the doctors believe this is influenced by menopause. Before now, my crisis were not frequent &...

Reaching out to the hinterlands

With my little stay here, I noticed most of the active members here base abroad. well that's great for you all. Living in a country with law and order, available...

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