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Read conversations, start a discussion, and connect with others about sickle cell.

Feeling judged?

Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your reaction?...

Just give me your hand

Hey I want to tell my story since I was in the hospital and the pain was all over me. No one in that hospital knew what my problem was...

Will you take our In America survey to share the truth about life with sickle cell?

There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living with sickle cell disease, we are fielding our...

Patient concierge

I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...

I’m here to meet and do more in creating awareness

Awesome. I’m excited to be here. Nd Esther is my name; I am a practicing physician in Lagos, Nigeria. I have become particularly interested in medical awareness, and SCD had...

Should I start on hydroxurea?

I am 49 years old. I have been having more crisis than before and the doctors believe this is influenced by menopause. Before now, my crisis were not frequent &...

Reaching out to the hinterlands

With my little stay here, I noticed most of the active members here base abroad. well that's great for you all. Living in a country with law and order, available...

Individuals with HBSC

I would like to know does anyone have tingling/numbness in their feet and hands? Does anyone hurt in their joints on a constant bases? Does anyone be fatigued, depressed, and...

sicke cell anaemia

my son has sickle cell and i have roamed in search of penicillin v suspension but to no avail i feel like giving up dont know what to do...

Does exercise triggers pain crises?

My Son has SCT, never had any issues until he started working out. He got interested in intensive speed running and suddenly he started complaining about pain. Is this normal...

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