What Sickle Cell Cost Me...I don’t know if I should classify this as a blessing in disguise or a pain in the neck.... By Rhedd Maya3 min readBookmark for laterReactions0reactionsComments4 comments
Going to Graduate School With Sickle Cell...such as sickle cell disease (SCD), you’re constantly told, whether consciously or subconsciously, that all your life will amount up to is debilitating pain... By Andre Harris2 min readBookmark for laterReactions0reactionsComments3 comments
Endari for Sickle Cell Disease...This can improve oxygen delivery throughout the body, which reduces pain crises and acute chest syndrome episodes.... By Editorial Team 2 min readBookmark for later
How To Deal With Tough Times...For someone living with sickle cell disorder, tough times might mean dealing with constant pain, dealing with the reality of a complication, or even financial... By Abayomi Afolayan3 min readBookmark for laterReactions0reactionsComments2 comments
FOMO (Feeling of Missing Out)...Then there’s the added burden of having sickle cell pain or fatigue unpredictably interrupting anything fun I could partake in.... By Halimat Olaniyan3 min readBookmark for laterReactions0reactionsComments5 comments
Do You Consider Sickle Cell a Disability?...But just having a pain crisis can be debilitating. When my arm hurts bad enough, I can’t use it. Or if my back/legs hurt too much, I can’t... By Halimat Olaniyan2 min readBookmark for laterReactions0reactionsComments8 comments
My Brother, My Hero....He would try and bear the pain until he had to go to the hospital.... By SK Sammi1 min readBookmark for laterReactions0reactionsComments7 comments
I Appreciate You!...You see, we are not always talking about “doom and gloom” and our pain all day.... By Chesterfield Hall2 min readBookmark for laterReactions0reactionsComments2 comments
Emotional Support Animals...Do you have an animal that comforts you when experiencing pain or mental health issues due to your disease? Share about them here!...Reactions0reactionsComments1 repliesCoping
Sickle Cell & Workplace Discrimination...It was actually causing me more stress and triggering me to experience more pain. It got to a point where I realized that this is not worth it.... By Dialectic Dee3 min readBookmark for laterReactions0reactionsComments1 comments
Why Are Family Histories Important?...One example of this is if someone goes to their healthcare provider for joint pain.... By Chesterfield Hall2 min readBookmark for laterReactions0reactionsComments1 comments
Who I Am and Who I Want To Be...How can you possibly imagine what pain feels like until you experience it? ... By Halimat Olaniyan2 min readBookmark for laterReactions0reactionsComments3 comments
Learning to Cope With Survivor’s Guilt...These crises cause ischemia, pain, and organ damage complications over time.... By Wunmi Bakare3 min readBookmark for laterReactions0reactionsComments1 comments
Finding Ways to Enjoy Snow Days...But the pain after my day in the snow was always relentless.... By Halimat Olaniyan2 min readBookmark for laterReactions0reactionsComments0 comments
Sickle Cell Disease and COVID-19...The most common side effects are pain, redness, and swelling at the injection site.... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Frustrated: Living With A Chronic Illness...I simply can’t plan around when I’ll have a pain crisis.... By Halimat Olaniyan2 min readBookmark for laterReactions0reactionsComments2 comments
Mind Mapping & Staying Organized for Hospital Visits...I keep track of the moments of pain or discomfort that my child experiences. This is so that when I go to the doctor I have everything with me.... By Andressa Hunsel3 min readBookmark for laterReactions0reactionsComments0 comments
Music Therapy...Have you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found most helpful?...Reactions0reactionsComments6 repliesCopingTips & Advice
Renal Medullary Carcinoma...The most common symptoms of RMC are blood in the urine and pain on the kidney side.... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
