Articles

The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like sickle cell disease...

I’ve always loved birthdays; who doesn’t? As a child it was a day to be spoilt, pampered and dare I say, see who gives you the best present. But as...

About 1.4 million adults in the United States identify as transgender. For transgender adults with sickle cell disease (SCD), necessary transgender care may be hard to access. Racial, gender, and...

For some reason, it is so hard for people living with sickle cell disease (SCD) to speak freely or live freely. Sometimes, this happens out of care and love for us...

In this video, I am joined by Dr. Patrick McGann from Cincinnati Children's Hospital. Dr. McGann is an academic pediatric hematologist who does research focusing on improving outcomes for children...

Hi Guys my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also living with sickle cell disease. Before I got...

I have had this illness for many years, met many people in my life, and been around my family whilst in pain, but something always remains the same THE LONELINESS!...

Growing up, sickle cell was always a hindrance in my life. It often limited me from being able to do the things that I loved to do consistently due to...

If you live with sickle cell disease (SCD) or are a friend, family member, or caretaker of someone with the condition, you might have some questions. In this article, we...

Sickle cell disease (SCD) often causes problems with your immune system. This makes people with SCD more prone to infections. This includes infections in your mouth. Good oral health is...

Dear Readers, My name is Andressa Hunsel Ambrose. I am the mother of Miracle, a sweet little girl of 9 years old and I want to share my journey with...

I'm super excited that I get to share my story here with you. As a kid, I was made to believe that people living with sickle cell disorder are always...

Content note: This article talks about depression, suicide, and mental health. When I started accepting my sickle cell (SS) condition, people made it look like it’s the end for me...

Lifelong conditions such as sickle cell disease can have a negative impact on your mental health. Depression, stress, and anxiety are just a few of the ways sickle cell can...

I always knew that there was a lack of care and support via the NHS for sickle cell sufferers. This became even more obvious to me once I reached 18...

Dating can be nerve-racking in general. Add an invisible, chronic disability into the mix and you have a concoction of the most unpredictable dating experiences you could imagine. My dating...

The Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram Interviews. We talked to Rhedd, aka @rhedd_maya, about her...

Renal medullary carcinoma (RMC) is a rare type of kidney cancer that mostly affects people with sickle cell trait. Most people with RMC are under 30 years old, and it...

We all know that sickle cell affects various parts of the body, but one thing I feel we need is more discussion on how it affects mental health. Sometimes we...

The teen years are an important time for young people with sickle cell disease (SCD). Nine out of 10 young people with sickle cell live into adulthood. This means they...