2020 In America Findings: Staying Strong With Sickle CellEvery year, an estimated 300,000 babies are born with sickle cell disease globally. Approximately 100,000 people are thought to live with sickle cell disease in the US. Over the past...reactionscomments
What Is World Sickle Cell Day?World Sickle Cell Day is celebrated on June 19 every year. Established in 2008 by the United Nations General Assembly, World Sickle Cell Day acknowledges sickle cell disease as a...reactionscomments
Living With Sickle Cell: Sadiq's StoryLike parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to Sadiq, a 20-year-old man who lives in Nigeria...reactions2comments
Overcoming Challenges of Sickle Cell: You Are Not AloneSickle cell disease is a blood disorder that affects many African Americans. If you know anybody with sickle cell, please understand the pain and suffering that they may have gone...reactions1comment
World Sickle Cell Day 2021 Hydration Giveaway!World Sickle Cell Day is coming up on June 19! To celebrate a day that sheds much-needed awareness on sickle cell, we are giving away 1 insulated water bottle with...reactionscomments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like sickle cell disease...reactionscomments
Why My Birthday Is A Big DealI’ve always loved birthdays; who doesn’t? As a child it was a day to be spoilt, pampered and dare I say, see who gives you the best present. But as...reactions3comments
Transgender Care and Sickle CellAbout 1.4 million adults in the United States identify as transgender. For transgender adults with sickle cell disease (SCD), necessary transgender care may be hard to access. Racial, gender, and...reactionscomments
Freedom to Be a CrescentFor some reason, it is so hard for people living with sickle cell disease (SCD) to speak freely or live freely. Sometimes, this happens out of care and love for us...reactionscomments
Dr. McGann On The Road To Caring For Sickle Cell PatientsIn this video, I am joined by Dr. Patrick McGann from Cincinnati Children's Hospital. Dr. McGann is an academic pediatric hematologist who does research focusing on improving outcomes for children...reactionscomments
Tips For Dating With Sickle CellHi Guys my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also living with sickle cell disease. Before I got...reactionscomments
Sickle Cell Can Be LonelyI have had this illness for many years, met many people in my life, and been around my family whilst in pain, but something always remains the same THE LONELINESS!...reactions2comments
My Journey to Becoming an AdvocateGrowing up, sickle cell was always a hindrance in my life. It often limited me from being able to do the things that I loved to do consistently due to...reactions1comment
Frequently Asked Questions (FAQs) About Sickle CellIf you live with sickle cell disease (SCD) or are a friend, family member, or caretaker of someone with the condition, you might have some questions. In this article, we...reactionscomments
Sickle Cell Disease and Oral HealthSickle cell disease (SCD) often causes problems with your immune system. This makes people with SCD more prone to infections. This includes infections in your mouth. Good oral health is...reactions1comment
The Journey of a Mother of a Sickle Cell WarriorDear Readers, My name is Andressa Hunsel Ambrose. I am the mother of Miracle, a sweet little girl of 9 years old and I want to share my journey with...reactionscomments
How Sickle Cell Complications Delayed My StudiesI'm super excited that I get to share my story here with you. As a kid, I was made to believe that people living with sickle cell disorder are always...reactions3comments
Surviving as a CrescentContent note: This article talks about depression, suicide, and mental health. When I started accepting my sickle cell (SS) condition, people made it look like it’s the end for me...reactionscomments
Ask the Advocates: Taking Care of Our Mental HealthLifelong conditions such as sickle cell disease can have a negative impact on your mental health. Depression, stress, and anxiety are just a few of the ways sickle cell can...reactions5comments
How Life During the Pandemic Changed My Relationship With Sickle CellI always knew that there was a lack of care and support via the NHS for sickle cell sufferers. This became even more obvious to me once I reached 18...reactionscomments
