Life After Transplant: Understanding the 5 Pillars of Chronic Pain ManagementOne of the primary reasons I participated in a stem cell clinical trial was to alleviate my chronic pain. According to the...reactions5comments
Living Beyond 50 with Sickle CellHello fellow warriors and caregivers. My name is Trish and I live with having HB-SS. My sickle cell was discovered at the...reactions5comments
Overcoming the Fear of the FutureIt feels kind of surreal that I turned 25 this July. Somehow, I'm reminded that adulthood is coming and it is coming...reactions5comments
Sickle Cell Disease Speaks All LanguagesThanks to the Health Union, I was able to attend and speak during the sickle cell event in my home country, Suriname...reactionscomments
Recovering From a CrisisEvery sickle cell crisis leaves scars, bills, unforgettable experiences, etc. The trauma, pain, fear, and depression that sets in, do not only...reactionscomments
Tolu Tani-Olu's StoryMy story begins when I was diagnosed with sickle cell when I was one years old. I lived with my family in...reactions1comment
Sickle Cell and MeHi, my name is Sakina. New here. I have always wanted to speak to people who understood my pains. I was diagnosed...reactions4comments
Why Do We Get Sick?Whenever I get sick, I find myself analyzing everything I did leading up to my crisis trying to pinpoint the exact cause...reactions3comments
Keeping the Hope AliveOne of the hardest things to do is try to encourage yourself in your worse moments. It’s easy to smile and be...reactions3comments
Presenting on Sickle Cell at ConferencesRecently, I went to the American Society of Hematology’s (ASH) Annual Meeting. It was in Atlanta, and I was only given off...reactions3comments
Unconsciously IrritatedNot long ago I got a call from a friend who I actually consider a sister. She walked around for months with...reactions2comments
Learning to Cope With Survivor’s GuiltOnce upon a time, a warrior said to me "I'm sure after your transplant you'll turn your back on the sickle cell...reactions1comment
Pregnancy, Motherhood & Accepting the Limits of Sickle CellPregnancy for me was an exciting time. It did not start with the usual morning sickness and discomfort that most people complain...reactionscomments
FOMO (Feeling of Missing Out)I have been feeling stuck and out of place a lot lately. There’s this saying about how your 20s are this whirlwind...reactions5comments
The Challenges of Attending School With Sickle CellI first understood what it meant to have sickle cell when I was growing up as a child in primary school. Often...reactions2comments
What's In My Travel Medication BagWhen traveling, I always like to feel as prepared as possible for anything that could happen in regards to my sickle cell...reactions2comments
Knowledge Is PowerOver the past few weeks, I have met so many new people within the sickle cell community. It is wonderful to see...reactionscomments
Grieving the Loss of a WarriorAs an SCD patient, you probably have met another warrior who is no more. The fear of death that comes with SCD...reactions1comment
Anything Can HappenToday was almost a bad day. Maybe it was self-induced anxiety about starting surgery, what is known as the hardest rotation of...reactions2comments
The Pain I Have to Deal WithContent Note: This article alludes to suicide. If you or a loved one are struggling, consider reading our mental health resources page...reactions2comments
