Are You Feeling Invisible?I have not been to the emergency room in years due to the treatment I received years ago. So, consider how I felt when I had to go last month... By Chesterfield Hall3 min readBookmark for laterReactions 0 reactions Comments2 comments
Financial Planning for a TransplantSeptember is Sickle Cell Awareness month so earlier this year, I launched a web project titled "The Diary of a #SickleCellProdigy". This content series gives audiences a closer look at... By Wunmi Bakare5 min readBookmark for laterReactions 0 reactions Comments1 comments
Asking for Help & Applying for DisabilityI’m not very good at asking for helping when I’m sick. It’s ironic because I’m always seeking ways to help others and not afraid to ask for help when it... By Halimat Olaniyan3 min readBookmark for laterReactions 0 reactions Comments5 comments
My Crisis TriggersPaying attention to my triggers was something I wasn’t good at when I was a child. My mum wouldn't let me go and play in the rain, but I didn’t... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments2 comments
An Interview With Lena HarveyWe interviewed community member Lena Harvey. She shares some of her experiences with sickle cell. I was born in 1985. However, my diagnosis came 4 years later in 1989, once... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments7 comments
Everyone Can Be an AdvocateI chose to become a "professional" sickle cell advocate around 7 years ago. I was out of work and school, largely due to the toll sickle cell had had on... By Andre Harris2 min readBookmark for laterReactions 0 reactions Comments2 comments
What Is a Pain Management Specialist? Should I See One?Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of reasons. These can include injury, nerve damage, surgery... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments
I Appreciate You!I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to talk about those things that impact us who... By Chesterfield Hall2 min readBookmark for laterReactions 0 reactions Comments2 comments
2022 World Sickle Cell Day Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the 2022 World Sickle Cell Day Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID... By corenepettit10 min readBookmark for laterReactions 0 reactions Comments0 comments
Made Up of More Than Sick CellsIt just dawned on me that I’m more than a warrior. Realizing the number of times I didn’t give up even though I had all the reasons to... Wow, that... By Rhedd Maya4 min readBookmark for laterReactions 0 reactions Comments3 comments
Practicing Self-Care on a BudgetIn the past, we have talked about the importance of self-care and shared examples of how you can practice it in your daily life. However, some self-care “treats” are more... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Making Friends and Building RelationshipsYou’d agree with me that building relationships is an important life skill. In order to survive and become the best we can be, we need to relate with others. Unfortunately... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments6 comments
What I Wish Everyone Knew About Sickle CellLet's start with the fact that sickle cell disorder doesn't get enough awareness as it should. What is even more worrying is that some people do not have access to... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments3 comments
The Invisibility and Stigma of Chronic PainPain is sometimes called an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain often cannot be seen. Because of this, it is possible for... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments3 comments
Life After Transplant: Understanding the 5 Pillars of Chronic Pain ManagementOne of the primary reasons I participated in a stem cell clinical trial was to alleviate my chronic pain. According to the US National Library of Medicine, chronic pain is... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments5 comments
Deciding on a Career as a Physician with Sickle CellThe third year of medical school is all about career exploration. We rotate through many of the major specialties in the field of medicine such as: obstetrics and gynecology (OBGYN)... By Halimat Olaniyan3 min readBookmark for laterReactions 0 reactions Comments3 comments
My Journey to Happily Ever AfterI’ve always been enamored by Disney’s animation and storytelling, eagerly anticipating the blissful end of the fairy tale. The simple meaning of happily ever after is that happiness pervades onwards... By Wunmi Bakare3 min readBookmark for laterReactions 0 reactions Comments5 comments
My First Bankruptcy With SCDMy mum used to complain all the time about hospital bills and the toll it’s taking on the family. At a point, she began to think it was a spiritual... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments2 comments
Sickle Cell's Influence on My CareerSickle cell can influence the career we choose. It can stop us from going for a particular career perhaps because of the stress involved. For me, sickle cell disease has... By Abayomi Afolayan4 min readBookmark for laterReactions 0 reactions Comments3 comments
Research Opportunity: Sickle Cell and Intimate RelationsLoma Linda University School of Behavioral Health is conducting a study to understand the experiences of sickle cell patients and their partners as they navigate living with sickle cell disease... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments