Do You Consider Sickle Cell a Disability?So apparently December 3rd was International Day of Persons With Disabilities. There really is a day for everything but I had never...reactions8comments
Expectations for the New YearI think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions...reactions3comments
Living With and Conquering SCD at 50 and BeyondHi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days...reactions1comment
What To Do When a Loved One Is DiagnosedWith a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I...reactions3comments
A Period of PainRecently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the...reactions1comment
A Mile in My ShoesThere are 1,760 yards (1.61 km) in a mile and I often imagine if people’s opinions would change if they could participate...reactions3comments
LonelinessSome people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot...reactions7comments
Grateful for The Weather in Orlando, FloridaWhen I moved to Orlando about a year ago, I thought we'd be in bikinis all year round. Nice and warm weather...reactions1comment
Timing is EverythingFor many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe...reactions3comments
Who I Am and Who I Want To BeI think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from...reactions3comments
Educational Support for Kids Living With Sickle CellIt is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the...reactions3comments
Getting Off the Emotional Rollercoaster RideThe last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and...reactions3comments
Making Adult FriendsI am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if...reactions2comments
The Duality of Caregiving and CaretakingThe moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby...reactions1comment
Still Kicking ItHello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter...reactions4comments
We Can Do Hard ThingsThe one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To...reactions2comments
What Is the Social Health Network?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
The Secret Life of a CaregiverOne of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain...reactions3comments
Things I Cannot Do With Avascular NecrosisAvascular necrosis (AVN) is a sickle cell complication that begins suddenly and quickly progresses from stage I to stage IV even without...reactions5comments
Imposter SyndromeI’ve been thinking a lot about imposter syndrome lately. Maybe (probably) because I’m applying for residency right now. Residency is the field...reactions2comments
