Patient Leader Spotlight: Jenica LeahThis Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate and... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Recover From a SetbackLast week, some bad news blindsided me. As soon as I hung up the phone, I wailed and the intense wave of emotions felt like a tsunami hitting land, pushing... By Wunmi Bakare3 min readBookmark for laterReactions 0 reactions Comments3 comments
Patient Leader Spotlight: Andressa HunselThis Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate, caregiver... By Editorial Team 7 min readBookmark for laterReactions 0 reactions Comments0 comments
My Experience With HydroxyureaI didn’t know anything about hydroxyurea (hydroxycarbamide) until last year. The government gave out a few for free and I had no idea. Maybe because I stopped looking for a... By Rhedd Maya4 min readBookmark for laterReactions 0 reactions Comments2 comments
Learning to RestThere’s this stereotype of the “strong Black woman.” The one who has been through everything and knocked down over and over again but still gets back up. She thrives through... By Halimat Olaniyan3 min readBookmark for laterReactions 0 reactions Comments0 comments
Using Public Transportation With Avascular NecrosisAvascular necrosis is a complication that can cause a temporary physical disability if it happens to the hip joints. This complication has affected my left hip and in about 4... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments5 comments
A Month to Make a ChangeSeptember 1 marks the beginning of Sickle Cell Awareness Month! Our theme for this year is "Change Makers of Sickle Cell," so we will be highlighting warriors in the community... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments1 comments
2022 Sickle Cell Awareness Month Change Makers Bundle GiveawayThe 2022 Sickle Cell Awareness Month Change Makers Bundle Giveaway is now closed. Thank you for your interest! For Sickle Cell Awareness Month this year, we are highlighting warriors in... By corenepettit1 min readBookmark for laterReactions 0 reactions Comments0 comments
Balancing Work and HealthLast week, I combed through social media in search of content ideas and stumbled across a young woman (Instagram - @frelletheshelle) who recently participated in a bone marrow transplant at the... By Wunmi Bakare3 min readBookmark for laterReactions 0 reactions Comments1 comments
Sickle Cell and Mood SwingsThere are the days I feel alive and the days I don’t. Sometimes in a day, I could be both. Unfortunately, not everyone can tolerate the mood swings of others... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments0 comments
Mourn With a Purpose: Channeling Sickle Cell Grief Into AdvocacyThe loss of quality of life is a term that has been used in the context of a grieving person. The loss of quality of life for a grieving person... By Chesterfield Hall2 min readBookmark for laterReactions 0 reactions Comments3 comments
Paying Attention To Body LanguageWhen you hear the phrase "body language," you immediately think of non-verbal cues that we use to communicate: crossed arms, head movements, eye behavior, and facial expressions. That's not the... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments3 comments
Overcoming the Fear of the FutureIt feels kind of surreal that I turned 25 this July. Somehow, I'm reminded that adulthood is coming and it is coming fast. I haven't really sat down to think... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments5 comments
Living Beyond 50 with Sickle CellHello fellow warriors and caregivers. My name is Trish and I live with having HB-SS. My sickle cell was discovered at the age of 10 at a children's hospital. I... By TrishW2 min readBookmark for laterReactions 0 reactions Comments2 comments
A Life Worth Living: How a Shorter Life Expectancy Affected MeDiagnosed at age 4, before I knew what life was or why I had come to be, I was somehow keenly aware that I was not like everyone else around... By Lena Harvey4 min readBookmark for laterReactions 0 reactions Comments3 comments
Sickle Cell Disease Speaks All LanguagesThanks to the Health Union, I was able to attend and speak during the sickle cell event in my home country, Suriname, South America. The year 2022 has so far... By Andressa Hunsel2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Treatment Side EffectsAll drugs have side effects. If you are lucky enough, you may never experience them. Unfortunately for me, my body seems to be affected by most of them. If you... By Jenica Leah3 min readBookmark for laterReactions 0 reactions Comments1 comments
Channeling Confidence As An AdvocateLately, I've found myself getting lost in curated content for the disabled community. I admire the confidence, creative voice, storytelling ability, and remarkable zest for life that these creators possess... By Wunmi Bakare3 min readBookmark for laterReactions 0 reactions Comments7 comments
Tolu Tani-Olu's StoryMy story begins when I was diagnosed with sickle cell when I was one years old. I lived with my family in Nigeria and we moved to the United States... By Toluwa11 min readBookmark for laterReactions 0 reactions Comments1 comments
Keeping the Hope AliveOne of the hardest things to do is try to encourage yourself in your worse moments. It’s easy to smile and be yourself when you’re not sick or not experiencing... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments3 comments