Building Virtual CommunityWhen I was a child, I wasn’t allowed to have a private email address, let alone any social media accounts. Back then...reactions4comments
Finding Balance Between Work and HealthWorking with sickle cell can be really tough. I say this because of the unpredictable nature of sickle cell disorder. This minute...reactions2comments
Preparing for Labor and Delivery with Sickle CellMy Name is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. In a few...reactions1comment
Donating and Receiving Blood ProductsHave you ever donated blood? I haven’t, which probably comes as no surprise. I didn’t always know though, that I couldn’t donate...reactions3comments
Tips for Parents When Relocating With a WarriorI am writing this article because I believe there are more parents who experience this. In February of 2022, I moved to...reactions1comment
My Treatment Side EffectsAll drugs have side effects. If you are lucky enough, you may never experience them. Unfortunately for me, my body seems to...reactions1comment
Staying Out of My HeadHi, my name is Wunmi and I am guilty of constantly living in my head. I'm not a hermit or recluse, I...reactions5comments
Do You Consider Sickle Cell a Disability?So apparently December 3rd was International Day of Persons With Disabilities. There really is a day for everything but I had never...reactions8comments
My Travel Check ListTraveling abroad used to make me nervous. The feeling of 'have I packed everything?' is a bit more intense when you have...reactions1comment
Expectations for the New YearI think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions...reactions3comments
My Top Three Tips On DatingDating can be nerve-racking in general. Add an invisible, chronic disability into the mix and you have a concoction of the most...reactions1comment
Recovering from Heart BreakI have a broken heart. It’s crazy because I genuinely thought I was done with those. I thought I had met and...reactions4comments
Living With and Conquering SCD at 50 and BeyondHi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days...reactions1comment
What To Do When a Loved One Is DiagnosedWith a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I...reactions3comments
A Period of PainRecently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the...reactions1comment
My Warrior Daughter Led Me to AdvocacyMy journey as a sickle cell advocate started 13 years ago, after my husband and I visited the obstetrics and gynecology (OBGYN)...reactionscomments
Sickle Cell Can Be LonelyI have had this illness for many years, met many people in my life, and been around my family whilst in pain...reactions2comments
LonelinessSome people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot...reactions7comments
The Power of Telling Your StoryRecently, Nigerian singer and songwriter Adekunle Gold became a trending topic in the sickle cell community (especially in Nigeria) when he opened...reactions4comments
Timing is EverythingFor many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe...reactions3comments
