A Mile in My Shoes...There are 1,760 yards (1.61 km) in a mile and I often imagine if people’s opinions would change if they could participate...reactions3comments
FeaturedI might not reach my potential height ...I think that one of the most depressing thing about being a sickler is living with the fear that you might never...reactions6repliesCopingTips & Advice
Loneliness...Some people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot...reactions7comments
Grateful for The Weather in Orlando, Florida...When I moved to Orlando about a year ago, I thought we'd be in bikinis all year round. Nice and warm weather...reactions1comment
How To Survive Caregiver Burnout...As I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much...reactions3comments
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team...
Timing is Everything...For many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe...reactions3comments
Who I Am and Who I Want To Be...I think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from...reactions3comments
The many emotions of living with sickle cell...There are many aspects of sickle cell that bring up strong emotions for warriors. What emotions are you currently feeling and why?...reactions3repliesCopingMental Health
Educational Support for Kids Living With Sickle Cell...It is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the...reactions3comments
Getting Off the Emotional Rollercoaster Ride...The last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and...reactions3comments
Making Adult Friends...I am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if...reactions2comments
The Duality of Caregiving and Caretaking...The moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby...reactions1comment
Still Kicking It...Hello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter...reactions4comments
We Can Do Hard Things...The one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To...reactions2comments
What Is the Social Health Network?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
The Secret Life of a Caregiver...One of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain...reactions3comments
How to take care of a child living with sickle cell as a mother...A have a 4yrs old son living with sickle cell and it as not been an easy one,need advice and counsel on...reactions4repliesAssistive Devices
A Warrior Nurse's Journey...I’m Grace and I’m a 25 year old third-year nursing student. Whenever I tell people about my condition I'm always met with...reactions3comments
