Stem Cell Donor Experience, Myths, and Facts...Months before the peripheral blood stem cell (PBSC) donation, my brother felt tense, anxious, and a little nervous. The culmination of emotions...reactions1comment
Sickle Cell & Chronic Pain: The Road to Recovery...My little princess has been diagnosed with chronic back pain since the summer of 2021. Every time I think about it or...reactions4comments
My Experience With Priapism...Priapism is a sickle cell complication that many people know nothing about. I understand because priapism is a complication that affects only...reactions8comments
Sickle Cell Disease and Oral Health...Sickle cell disease (SCD) often causes problems with your immune system. This makes people with SCD more prone to infections. This includes...reactions1comment
Averting Cold Weather Crises...The hallmark complication of sickle cell disease (SCD) is acute pain. Episodes of acute pain can occur at any time and are...reactions2comments
Know Your Rights: Balancing Work And Health...A challenging aspect of living with sickle cell disease (SCD) can be finding and keeping a job. People with SCD often miss...reactionscomments
Staying Hydrated When You Have Sickle Cell Disease...When you live with sickle cell disease (SCD), it is important to drink plenty of water and other fluids. This helps you...reactionscomments
My Experience With Avascular Necrosis...Since I got diagnosed with avascular necrosis, I've been asked many times what that means. People want to know what avascular necrosis...reactions4comments
Updates on My First Research Study...Remember when I was on my period and nervous about giving blood for the first time? Well, that appointment had to be...reactions2comments
The Disparities in Patient Healthcare...As a child born in Nigeria, I was incredibly fortunate to have my Aunt-in-law, Dr. Dorothy Esangbedo, as my pediatric physician because...reactions9comments
Am I lucky? The Differences in Our Bodies...I had a conversation with another warrior who is also a friend recently. We were just catching up when she asked how...reactions4comments
Sickle Cell Disease and the Journey of Virtual Education...Last year I wrote an article about the challenges I encountered at my daughter's school. Some of the accommodations we had in...reactions1comment
Dating With an Invisible Illness...The other day I was speaking to a dear friend and we found ourselves digging up the "Ex files," thinking of love...reactions3comments
The #1 Reason to Donate Blood...Growing up, I always knew my blood would be my highest hurdle. Imagine being made to carry your enemy inside of you. All...reactions1comment
Pulmonary Tests for Sickle Cell Disease...Pulmonary (lung) disease is common and a leading cause of death for people with sickle cell disease (SCD). Pulmonary hypertension and acute...
Imaging Tests for Sickle Cell Disease...Medical imaging is a technique that doctors use to create pictures of internal body parts. Different types of imaging tests help doctors...
Screening for Sickle Cell Trait...People who have 1 gene for sickle hemoglobin and 1 gene for normal hemoglobin have sickle cell trait (SCT). They usually do...
Diagnosis and Follow-Up Care With Sickle Cell DIsease...Routine healthcare improves outcomes for people with sickle cell disease (SCD) by preventing complications. For children, this involves antibiotics, vaccinations, laboratory tests...
Living My Best Life...While the year is still new, I want to talk about all the exciting things going on in my life and share...reactions4comments
My Pregnancy Experience With Sickle Cell Disease...My Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. I currently have...reactions3comments
