Getting Off the Emotional Rollercoaster Ride...The last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and overwhelming. I feel like I’m on a never-ending...reactions3comments
Making Adult Friends...I am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if you’ve read any of my pieces, you know...reactions2comments
The Duality of Caregiving and Caretaking...The moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby, Wunmi. Sickle cell disease (SCD) was not a...reactions1comment
Still Kicking It...Hello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter and 1 goddaughter that are both 24. My...reactions4comments
We Can Do Hard Things...The one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To exist as a minority in a world that...reactions2comments
What Is the Social Health Network?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...reactionscomments
The Secret Life of a Caregiver...One of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain crisis could strike at any time. As a...reactions3comments
How to take care of a child living with sickle cell as a mother...A have a 4yrs old son living with sickle cell and it as not been an easy one,need advice and counsel on how to take good care of him...reactions4repliesAssistive Devices
A Warrior Nurse's Journey...I’m Grace and I’m a 25 year old third-year nursing student. Whenever I tell people about my condition I'm always met with sympathy and fear for my future. Despite that...reactions3comments
Things I Cannot Do With Avascular Necrosis...Avascular necrosis (AVN) is a sickle cell complication that begins suddenly and quickly progresses from stage I to stage IV even without you noticing. Well, at least, I did not...reactions5comments
Imposter Syndrome...I’ve been thinking a lot about imposter syndrome lately. Maybe (probably) because I’m applying for residency right now. Residency is the field training you do after graduating from medical school...reactions2comments
FeaturedWhat do you want your caregivers to know?...What's the #1 thing friends and family members can do to support you (something they may not think of) in your sickle cell journey?...reactions1replyCaregiving
Emotional Support Animals...Do you have an animal that comforts you when experiencing pain or mental health issues due to your disease? Share about them here! (pictures encouraged :))...reactions1replyCoping
Emotional Support Dogs and Sickle Cell Disease...A couple of weeks ago my princess started to suffer from back pain again. This officially started last year, and it seems to knock on the door for weeks now...reactions2comments
How I Manage Sickle Cell Pain at Home...Sickle cell crises are unpredictable and can happen anytime and anywhere. The pain usually starts slowly. I sometimes wonder if I am the only person that gets worried whenever there’s...reactions6comments
Untold Truths About Living With Sickle Cell Pain...For many of us, sickle cell disease (SCD) sets precedence for how we show up in our daily lives. It is an invisible disability that riddles our physical, mental, psychological...reactions6comments
Avascular Necrosis (AVN) and Sickle Cell...Like other parts of your body, your bones are composed of living cells that require a steady supply of blood to survive. When something interrupts this blood flow, bone tissue...reactionscomments
Hematologist Talks Stigma and Advocacy...Recently, Halimat, a fourth-year medical student with sickle cell anemia, sat down with Dr. Titilope Fasipe to talk all things sickle cell. Dr. Fasipe is a pediatric hematologist and a...reactions2comments
Psychological Flexibility: Why It Matters...Sickle cell is a progressively debilitating blood disorder that can be extremely draining because of its unpredictability. People with sickle cell disease (SCD) must pay attention to warning signs that...reactions1comment
