LonelinessSome people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot, since first being diagnosed with sickle cell. It’s...Reactions0reactionsComments7 comments
Grateful for The Weather in Orlando, FloridaWhen I moved to Orlando about a year ago, I thought we'd be in bikinis all year round. Nice and warm weather, no hassle with the cold and forever done...Reactions0reactionsComments1 comments
How To Survive Caregiver BurnoutAs I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much pride in caring for them because, in the...Reactions0reactionsComments3 comments
Timing is EverythingFor many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe to say that the law of attraction works...Reactions0reactionsComments3 comments
Who I Am and Who I Want To BeI think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from how we portray ourselves to others or how...Reactions0reactionsComments3 comments
Educational Support for Kids Living With Sickle CellIt is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the best support from the school. Looking back, I...Reactions0reactionsComments3 comments
Getting Off the Emotional Rollercoaster RideThe last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and overwhelming. I feel like I’m on a never-ending...Reactions0reactionsComments3 comments
Making Adult FriendsI am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if you’ve read any of my pieces, you know...Reactions0reactionsComments2 comments
The Duality of Caregiving and CaretakingThe moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby, Wunmi. Sickle cell disease (SCD) was not a...Reactions0reactionsComments1 comments
We Can Do Hard ThingsThe one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To exist as a minority in a world that...Reactions0reactionsComments2 comments
What Is the Social Health Network?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
The Secret Life of a CaregiverOne of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain crisis could strike at any time. As a...Reactions0reactionsComments3 comments
Things I Cannot Do With Avascular NecrosisAvascular necrosis (AVN) is a sickle cell complication that begins suddenly and quickly progresses from stage I to stage IV even without you noticing. Well, at least, I did not...Reactions0reactionsComments5 comments
Imposter SyndromeI’ve been thinking a lot about imposter syndrome lately. Maybe (probably) because I’m applying for residency right now. Residency is the field training you do after graduating from medical school...Reactions0reactionsComments2 comments
Emotional Support Dogs and Sickle Cell DiseaseA couple of weeks ago my princess started to suffer from back pain again. This officially started last year, and it seems to knock on the door for weeks now...Reactions0reactionsComments2 comments
How I Manage Sickle Cell Pain at HomeSickle cell crises are unpredictable and can happen anytime and anywhere. The pain usually starts slowly. I sometimes wonder if I am the only person that gets worried whenever there’s...Reactions0reactionsComments6 comments
Untold Truths About Living With Sickle Cell PainFor many of us, sickle cell disease (SCD) sets precedence for how we show up in our daily lives. It is an invisible disability that riddles our physical, mental, psychological...Reactions0reactionsComments6 comments
Avascular Necrosis (AVN) and Sickle CellLike other parts of your body, your bones are composed of living cells that require a steady supply of blood to survive. When something interrupts this blood flow, bone tissue...Reactions0reactionsComments0 comments
Hematologist Talks Stigma and AdvocacyRecently, Halimat, a fourth-year medical student with sickle cell anemia, sat down with Dr. Titilope Fasipe to talk all things sickle cell. Dr. Fasipe is a pediatric hematologist and a...Reactions0reactionsComments2 comments
Psychological Flexibility: Why It MattersSickle cell is a progressively debilitating blood disorder that can be extremely draining because of its unpredictability. People with sickle cell disease (SCD) must pay attention to warning signs that...Reactions0reactionsComments1 comments