Expectations for the New YearI think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions, set goals, and change ourselves hence the common...reactions3comments
Stem Cell Donor Experience, Myths, and FactsMonths before the peripheral blood stem cell (PBSC) donation, my brother felt tense, anxious, and a little nervous. The culmination of emotions was brought on by a fear of the...reactions1comment
What To Do When a Loved One Is DiagnosedWith a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I look back to 2022 with a grateful feeling...reactions3comments
Menopause and Sickle CellMany women with sickle cell disease (SCD) worry about how their health will change when they reach menopause. While there is still much to learn about the relationship between SCD...reactions1comment
A Mile in My ShoesThere are 1,760 yards (1.61 km) in a mile and I often imagine if people’s opinions would change if they could participate, watch and feel every 1,760 yards (1.61 km)...reactions3comments
LonelinessSome people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot, since first being diagnosed with sickle cell. It’s...reactions7comments
Grateful for The Weather in Orlando, FloridaWhen I moved to Orlando about a year ago, I thought we'd be in bikinis all year round. Nice and warm weather, no hassle with the cold and forever done...reactions1comment
How To Survive Caregiver BurnoutAs I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much pride in caring for them because, in the...reactions3comments
Timing is EverythingFor many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe to say that the law of attraction works...reactions3comments
Who I Am and Who I Want To BeI think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from how we portray ourselves to others or how...reactions3comments
Educational Support for Kids Living With Sickle CellIt is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the best support from the school. Looking back, I...reactions3comments
Getting Off the Emotional Rollercoaster RideThe last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and overwhelming. I feel like I’m on a never-ending...reactions3comments
Making Adult FriendsI am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if you’ve read any of my pieces, you know...reactions2comments
The Duality of Caregiving and CaretakingThe moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby, Wunmi. Sickle cell disease (SCD) was not a...reactions1comment
We Can Do Hard ThingsThe one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To exist as a minority in a world that...reactions2comments
What Is the Social Health Network?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...reactionscomments
The Secret Life of a CaregiverOne of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain crisis could strike at any time. As a...reactions3comments
Things I Cannot Do With Avascular NecrosisAvascular necrosis (AVN) is a sickle cell complication that begins suddenly and quickly progresses from stage I to stage IV even without you noticing. Well, at least, I did not...reactions5comments
Imposter SyndromeI’ve been thinking a lot about imposter syndrome lately. Maybe (probably) because I’m applying for residency right now. Residency is the field training you do after graduating from medical school...reactions2comments
Emotional Support Dogs and Sickle Cell DiseaseA couple of weeks ago my princess started to suffer from back pain again. This officially started last year, and it seems to knock on the door for weeks now...reactions2comments