Supporting Children With Chronic PainIn my role as a mother and sickle cell advocate, I often talk about acceptance. It starts with accepting the illness, after that, you have to accept all the other...reactions2comments
Identity Crisis - A Stranger In My Own BodyAt the end of each year, many people reflect on their personal accomplishments - reviewing wins, losses, successes, and failures - intently taking a closer look at their real life...reactions3comments
Misconceptions on Drug Use and DependencyPain is unbearable, even for the strongest warrior and soldiers. The measurements health officials put on pain are totally unnecessary if you ask me. Why? Whether the pain is at...reactions4comments
How to Make 2022 a Better Year With Sickle Cell'I want this year to be better than last year.' Have you ever told yourself this? Sure you have. As humans, we always want more in life. As someone living...reactions3comments
Sometimes It's Okay to Be Perceived as DefensiveOne problem most SCD patients face is verbal abuse. The things people say to us are sometimes too mean and unfair. We mostly can’t do anything about this. It practically...reactions10comments
Overcoming AnxietyIf you’ve read some of my other posts, you may know I have sickle cell anemia and anxiety. The thought of having multiple chronic illnesses is enough to make me...reactions2comments
UnheardThis winter has been unusual. We’ve managed to stay in the 60s temperature-wise through December. I’m not even sure it’s snowed. But this past weekend to bring in the new...reactions7comments
Alone Isn't LonelyWhen sickle cell patients talk about how it affects their love life, most people think it’s an extreme exaggeration. Sadly, this is actually true. The first person I ever dated...reactions3comments
How To Deal With Tough TimesWe all face tough times at some point in our lives whether that is going through a financial crisis or dealing with career stress. It happens to everyone and people...reactions2comments
Are You Feeling Invisible?I have not been to the emergency room in years due to the treatment I received years ago. So, consider how I felt when I had to go last month...reactions2comments
Financial Planning for a TransplantSeptember is Sickle Cell Awareness month so earlier this year, I launched a web project titled "The Diary of a #SickleCellProdigy". This content series gives audiences a closer look at...reactions1comment
Will I Be A Good Parent? A Journey of AcceptanceHave you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math test. Or your driving test. You can practice...reactions1comment
Rare In America: What’s That?The "In America survey" is now closed. Are you one of the millions of people dealing with sickle cell disease? Whether you are looking to try new treatments, have your...reactionscomments
Asking for Help & Applying for DisabilityI’m not very good at asking for helping when I’m sick. It’s ironic because I’m always seeking ways to help others and not afraid to ask for help when it...reactions5comments
My Crisis TriggersPaying attention to my triggers was something I wasn’t good at when I was a child. My mum wouldn't let me go and play in the rain, but I didn’t...reactions2comments
Everyone Can Be an AdvocateI chose to become a "professional" sickle cell advocate around 7 years ago. I was out of work and school, largely due to the toll sickle cell had had on...reactions2comments
Stop Doing These ThingsHi Guys my name is Grace. I am a wife, mother, and I work as a full-time blogger. I also live with sickle cell disease. In this video, I am...reactions1comment
What Is a Pain Management Specialist? Should I See One?Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of reasons. These can include injury, nerve damage, surgery...reactions1comment
I Appreciate You!I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to talk about those things that impact us who...reactions2comments
2022 World Sickle Cell Day Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the 2022 World Sickle Cell Day Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID...reactionscomments