Sometimes It's Okay to Be Perceived as DefensiveOne problem most SCD patients face is verbal abuse. The things people say to us are sometimes too mean and unfair. We mostly can’t do anything about this. It practically...Reactions0reactionsComments10 comments
Overcoming AnxietyIf you’ve read some of my other posts, you may know I have sickle cell anemia and anxiety. The thought of having multiple chronic illnesses is enough to make me...Reactions0reactionsComments2 comments
UnheardThis winter has been unusual. We’ve managed to stay in the 60s temperature-wise through December. I’m not even sure it’s snowed. But this past weekend to bring in the new...Reactions0reactionsComments7 comments
Alone Isn't LonelyWhen sickle cell patients talk about how it affects their love life, most people think it’s an extreme exaggeration. Sadly, this is actually true. The first person I ever dated...Reactions0reactionsComments3 comments
How To Deal With Tough TimesWe all face tough times at some point in our lives whether that is going through a financial crisis or dealing with career stress. It happens to everyone and people...Reactions0reactionsComments2 comments
Are You Feeling Invisible?I have not been to the emergency room in years due to the treatment I received years ago. So, consider how I felt when I had to go last month...Reactions0reactionsComments2 comments
Financial Planning for a TransplantSeptember is Sickle Cell Awareness month so earlier this year, I launched a web project titled "The Diary of a #SickleCellProdigy". This content series gives audiences a closer look at...Reactions0reactionsComments1 comments
Will I Be A Good Parent? A Journey of AcceptanceHave you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math test. Or your driving test. You can practice...Reactions0reactionsComments1 comments
Rare In America: What’s That?The Rare In America survey is now closed. Are you one of the millions of people dealing with sickle cell disease? Whether you are looking to try new treatments, have...Reactions0reactionsComments0 comments
Asking for Help & Applying for DisabilityI’m not very good at asking for helping when I’m sick. It’s ironic because I’m always seeking ways to help others and not afraid to ask for help when it...Reactions0reactionsComments5 comments
My Crisis TriggersPaying attention to my triggers was something I wasn’t good at when I was a child. My mum wouldn't let me go and play in the rain, but I didn’t...Reactions0reactionsComments2 comments
Everyone Can Be an AdvocateI chose to become a "professional" sickle cell advocate around 7 years ago. I was out of work and school, largely due to the toll sickle cell had had on...Reactions0reactionsComments2 comments
Stop Doing These ThingsHi Guys my name is Grace. I am a wife, mother, and I work as a full-time blogger. I also live with sickle cell disease. In this video, I am...Reactions0reactionsComments1 comments
What Is a Pain Management Specialist? Should I See One?Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of reasons. These can include injury, nerve damage, surgery...Reactions0reactionsComments1 comments
I Appreciate You!I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to talk about those things that impact us who...Reactions0reactionsComments2 comments
2022 World Sickle Cell Day Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the 2022 World Sickle Cell Day Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID...Reactions0reactionsComments0 comments
Can Parents Really Accept Sickle Cell?As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process look like? During Thanksgiving, we sat at the...Reactions0reactionsComments5 comments
Made Up of More Than Sick CellsIt just dawned on me that I’m more than a warrior. Realizing the number of times I didn’t give up even though I had all the reasons to... Wow, that...Reactions0reactionsComments3 comments
Practicing Self-Care on a BudgetIn the past, we have talked about the importance of self-care and shared examples of how you can practice it in your daily life. However, some self-care “treats” are more...Reactions0reactionsComments0 comments
Making Friends and Building RelationshipsYou’d agree with me that building relationships is an important life skill. In order to survive and become the best we can be, we need to relate with others. Unfortunately...Reactions0reactionsComments6 comments