How I Practice Self-CareMy name is Grace, I am a wife and mother, and I work as a full-time content creator. I also live with...reactions1comment
Recognizing Past Challenges and Prioritizing My Mental HealthContent Warning: This article discusses abuse and suicidal thoughts. If you or a loved one are experiencing suicidal thoughts, please text or...reactions5comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
Mind Mapping & Staying Organized for Hospital VisitsHave you ever caught yourself lying awake in the middle of the night, going back to months ago to find out what...reactionscomments
Working on My FitnessThe best my health has ever been was in D.C., before starting medical school. I mean, there are lots of reasons why...reactions3comments
Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites...reactionscomments
Coping With Mental Health: Trauma-Informed CareTraumatic experiences can be life-changing, and it is well understood that such experiences can have long-term effects. In addition to mental health...reactionscomments
Making Time for Healthcare AppointmentsWith sickle cell, time is always of the essence. Life is unpredictable but even more so when you have an unpredictable chronic...reactions2comments
Rebuilding My Confidence With AVNI believe everyone living with sickle cell disorder has an idea of what avascular necrosis is. Even if you have not experienced...reactions3comments
How Can You Care For Me, If You Don't Care About Me?To anyone who may witness me in a pain crisis, please do not judge me in my worst moment. Living with a...reactions6comments
Five Things I Wish I Knew Before the TransplantI've said it about a million times, I'm happy I participated in a clinical trial and got a second chance at living...reactions1comment
Prioritizing Self-Care After TransplantUndergoing a transplant is a difficult process for children and adults because each stage - from conditioning to stem cell infusion, and...reactions1comment
Physical ActivityI like to believe that having sickle cell doesn’t at all limit my potential. That if I really want to do something...reactions13comments
Change Makers Bundle Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the Change Makers Bundle Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT...reactionscomments
Ask the Advocates: Rare Disease DayRare Disease Day® is celebrated on the last day of February every year. This year, it falls on February 28, 2022. This...reactionscomments
6 Health Goals For WarriorsEvery year we promise ourselves that we will take our health seriously and do better with our health but we never really...reactions3comments
Living Within My Means as a WarriorI believe I was born to be rich. I can tell by the size of my dreams and aspirations. I set goals...reactions6comments
A Close Encounter With COVID-19As soon as you turn on the television you are confronted with the rising COVID-19 cases trend. This is not only in...reactionscomments
A Fireside Chat With PainFor the last two years, I've suffered in silence because as a transplant recipient, a common misconception is that my life is...reactions5comments
FatigueWhen I was little, and I would get sick, my mother would hardly ever let me skip school. She’d push me to...reactionscomments
