Finding Empowerment Through Writing on a Tough DayToday was really overwhelming. Being a med-student is hard. Not just because of the insane amount of material or the long days put into studying and even longer working hours...Reactions0reactionsComments1 comments
Sickle Cell and PTSDHaving a chronic illness is not easy at all and I know that a lot of us have been through some traumatic experiences. It got me thinking about post-traumatic stress...Reactions0reactionsComments1 comments
How I Discovered Cannabis for PainI wish I knew about cannabis years ago, it would have saved me from a lot of stress. Truth is, ever since I started using it, I’ve seen changes in...Reactions0reactionsComments2 comments
Universal Coverage and Sickle Cell DiseaseSickle cell disease is the world’s most common heritable blood disorder and arguably one of the most racially polarizing diseases that exist today. Unfortunately, sickle cell disease is also one...Reactions0reactionsComments3 comments
Advocating for Yourself in the Emergency RoomDr. Simone Eastman Uwan (known to the sickle cell community as Dr. Simone) was diagnosed with sickle cell disease in college, even though she had symptoms all her life. Her...Reactions0reactionsComments1 comments
Dancing in the RainI love dancing in the rain. I think it started when I first watched Dirty Dancing or maybe Singing in the Rain. Either way, something about when it’s raining enough...Reactions0reactionsComments1 comments
Pregnancy, Motherhood & Accepting the Limits of Sickle CellPregnancy for me was an exciting time. It did not start with the usual morning sickness and discomfort that most people complain about. In fact, I did not even know...Reactions0reactionsComments0 comments
Life Checks: Resiliency and Rule-BreakingKnowing the things that trigger crises is a necessity, you also need to know your limits and be cautious as much as possible not to overdo things. For instance, it’s...Reactions0reactionsComments2 comments
Planning and Preparing for Exercise With Sickle CellExercise is important for improving our well-being as individuals living with sickle cell. Aerobic exercises like walking can help increase the flow of oxygen. You know the lack of oxygen...Reactions0reactionsComments1 comments
What Is It Like to Visit the ER With a Pain Crisis?People living with sickle cell disease (SCD) often experience severe pain and sometimes need treatment in the emergency room. In our 2020 Sickle Cell Disease In America survey, we explored...Reactions0reactionsComments0 comments
My Airplane EssentialsAs a frequent solo traveler, I believe the saying ‘catch flights not feelings’ was created just for me. I can definitely say I have caught more flights than feelings in...Reactions0reactionsComments0 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like sickle cell disease...Reactions0reactionsComments0 comments
Interview With Tiara Brown: Hospital Visits & MoreThe Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tiara Brown, aka @tee_2017, about...Reactions0reactionsComments1 comments
Frustrated: Living With A Chronic IllnessHaving a chronic illness can be well, you guessed it – frustrating. For me, the most frustrating part of having sickle cell anemia is never knowing when you’re going to...Reactions0reactionsComments2 comments
Interview With Tiara Brown (AKA @tee_2017)The Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tiara Brown, aka @tee_2017, about...Reactions0reactionsComments1 comments
Recovering From a CrisisEvery sickle cell crisis leaves scars, bills, unforgettable experiences, etc. The trauma, pain, fear, and depression that sets in, do not only eat me up, but also drain all the...Reactions0reactionsComments0 comments
My Experience With Avascular NecrosisSince I got diagnosed with avascular necrosis, I've been asked many times what that means. People want to know what avascular necrosis is. In fact, some people living with sickle...Reactions0reactionsComments4 comments
An Interview With Tito (@hersickledjourney)The Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tito, aka @hersickledjourney, about her...Reactions0reactionsComments1 comments
Finding Natural Remedies & Diet Changes With Sickle CellIt is quite rare that we get told of alternative therapies or natural ways of managing sickle cell. All of my life, I have been told that the only way...Reactions0reactionsComments2 comments
Fear of FlyingDid you know high altitudes are a trigger for sickling? Basically, the higher you go up the less oxygen there is for you to breathe. The human body is amazing...Reactions0reactionsComments1 comments