Living

Since I got diagnosed with avascular necrosis, I've been asked many times what that means. People want to know what avascular necrosis is. In fact, some people living with sickle...

The Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tito, aka @hersickledjourney, about her...

It is quite rare that we get told of alternative therapies or natural ways of managing sickle cell. All of my life, I have been told that the only way...

Did you know high altitudes are a trigger for sickling? Basically, the higher you go up the less oxygen there is for you to breathe. The human body is amazing...

For many years, writing has been my perfect escape routine. I write about all I feel and think. It is my confidant. When I started, I wasn’t comfortable with sharing...

I think I say this so many times that anyone who has read my previous articles is probably tired of me saying it, and that is that sickle cell anemia...

To labor ceaselessly upon a work unrecognized as to its merits is a difficult task. If you view the etymology of the verb labor, you will find the true meaning...

When I graduated from university, I knew that I would need to get a job that would help me to sustain myself. The initial plan was to have enough income...

One known trigger for sickle cell pain crises is stress. All my life, I’ve been recommended to avoid stress and to learn how to cope with stress. My parents at...

It was around Christmas when I had my first crisis. I was four years old. We had traveled out of town for the celebration when it happened. My parents quickly...

When traveling, I always like to feel as prepared as possible for anything that could happen in regards to my sickle cell. For those of us that live with it;...

Working with sickle cell can be really tough. I say this because of the unpredictable nature of sickle cell disorder. This minute you're fine, the next you're in pain trying...

Traveling abroad used to make me nervous. The feeling of 'have I packed everything?' is a bit more intense when you have to consider more than just clothes, currency, and...

I introduced you to Sadiq, a 20-year-old young man who has sickle cell disease type SS in part one, Living with Sickle Cell: Sadiq's Story. Despite all the challenges, he...

When I was in elementary school and first diagnosed with sickle cell anemia, I never talked about it honestly unless it was absolutely necessary. My mom didn’t want me to...

In my childhood days, anytime I had crises or got sick, my mum would be so emotional. She would hold my hand and say, “I’m so sorry you have to...

I first understood what it meant to have sickle cell when I had my first crisis at 19. It is definitely different growing up as someone living with sickle cell...

I first understood what it meant to have sickle cell when I was growing up as a child in primary school. Often I would miss a lot of time off...

Sickle cell disease is a blood disorder that affects many African Americans. If you know anybody with sickle cell, please understand the pain and suffering that they may have gone...

The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like sickle cell disease...