Paying Attention To Body LanguageWhen you hear the phrase "body language," you immediately think of non-verbal cues that we use to communicate: crossed arms, head movements, eye behavior, and facial expressions. That's not the...Reactions0reactionsComments3 comments
Overcoming the Fear of the FutureIt feels kind of surreal that I turned 25 this July. Somehow, I'm reminded that adulthood is coming and it is coming fast. I haven't really sat down to think...Reactions0reactionsComments5 comments
Living Beyond 50 with Sickle CellHello fellow warriors and caregivers. My name is Trish and I live with having HB-SS. My sickle cell was discovered at the age of 10 at a children's hospital. I...Reactions0reactionsComments2 comments
A Life Worth Living: How a Shorter Life Expectancy Affected MeEditor’s note: As of September 2024, Oxbryta® (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns. Pfizer, the manufacturer of Oxbryta, has also ceased...Reactions0reactionsComments3 comments
Sickle Cell Disease Speaks All LanguagesThanks to the Health Union, I was able to attend and speak during the sickle cell event in my home country, Suriname, South America. The year 2022 has so far...Reactions0reactionsComments0 comments
My Treatment Side EffectsAll drugs have side effects. If you are lucky enough, you may never experience them. Unfortunately for me, my body seems to be affected by most of them. If you...Reactions0reactionsComments1 comments
Channeling Confidence As An AdvocateLately, I've found myself getting lost in curated content for the disabled community. I admire the confidence, creative voice, storytelling ability, and remarkable zest for life that these creators possess...Reactions0reactionsComments7 comments
Tolu Tani-Olu's StoryMy story begins when I was diagnosed with sickle cell when I was one years old. I lived with my family in Nigeria and we moved to the United States...Reactions0reactionsComments1 comments
Keeping the Hope AliveOne of the hardest things to do is try to encourage yourself in your worse moments. It’s easy to smile and be yourself when you’re not sick or not experiencing...Reactions0reactionsComments3 comments
Presenting on Sickle Cell at ConferencesRecently, I went to the American Society of Hematology’s (ASH) Annual Meeting. It was in Atlanta, and I was only given off 3 days from school, which meant I would...Reactions0reactionsComments3 comments
The Power of Telling Your StoryRecently, Nigerian singer and songwriter Adekunle Gold became a trending topic in the sickle cell community (especially in Nigeria) when he opened up about his struggle with sickle cell disease...Reactions0reactionsComments4 comments
Learning to Cope With Survivor’s GuiltOnce upon a time, a warrior said to me "I'm sure after your transplant you'll turn your back on the sickle cell community." I was honestly speechless! What was so...Reactions0reactionsComments1 comments
Unconsciously IrritatedNot long ago I got a call from a friend who I actually consider a sister. She walked around for months with an unpleasant feeling from a "meeting" I had...Reactions0reactionsComments2 comments
FOMO (Feeling of Missing Out)I have been feeling stuck and out of place a lot lately. There’s this saying about how your 20s are this whirlwind of self-discovery and trial and error. Wow, they...Reactions0reactionsComments5 comments
Knowledge Is PowerOver the past few weeks, I have met so many new people within the sickle cell community. It is wonderful to see how many parents and warriors are committed to...Reactions0reactionsComments0 comments
Sickle Cell and MeHi, my name is Sakina. New here. I have always wanted to speak to people who understood my pains. I was diagnosed with sickle cell when I was 10. It...Reactions0reactionsComments4 comments
Anything Can HappenToday was almost a bad day. Maybe it was self-induced anxiety about starting surgery, what is known as the hardest rotation of medical school – for good reason. The hours...Reactions0reactionsComments2 comments
The Pain I Have to Deal WithContent Note: This article alludes to suicide. If you or a loved one are struggling, consider reading our mental health resources page. I am tired of being a warrior. At...Reactions0reactionsComments2 comments
Finding a Seat at the Advocacy TableWith the nominations for the #SocialHealthAwards well underway, I started thinking about my own journey to advocacy. It's been far from the norm. My perspective on activism and advocacy is...Reactions0reactionsComments0 comments
A Mom’s Heart Full of GratitudeIt's a feeling of gratitude every day here in Florida. If you've read my previous articles, you'll remember that a few months ago I decided to move from New Jersey...Reactions0reactionsComments0 comments
