Working on My FitnessThe best my health has ever been was in D.C., before starting medical school. I mean, there are lots of reasons why...reactions3comments
Who I Am and Who I Want To BeI think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from...reactions3comments
A Fireside Chat With PainFor the last two years, I've suffered in silence because as a transplant recipient, a common misconception is that my life is...reactions5comments
The Duality of Caregiving and CaretakingThe moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby...reactions1comment
Educational Support for Kids Living With Sickle CellIt is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the...reactions3comments
Getting Off the Emotional Rollercoaster RideThe last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and...reactions3comments
Making Adult FriendsI am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if...reactions2comments
Making Time for Healthcare AppointmentsWith sickle cell, time is always of the essence. Life is unpredictable but even more so when you have an unpredictable chronic...reactions2comments
Still Kicking ItHello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter...reactions4comments
We Can Do Hard ThingsThe one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To...reactions2comments
What Is the Social Health Network?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
The Secret Life of a CaregiverOne of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain...reactions3comments
Imposter SyndromeI’ve been thinking a lot about imposter syndrome lately. Maybe (probably) because I’m applying for residency right now. Residency is the field...reactions2comments
Emotional Support Dogs and Sickle Cell DiseaseA couple of weeks ago my princess started to suffer from back pain again. This officially started last year, and it seems...reactions2comments
Untold Truths About Living With Sickle Cell PainFor many of us, sickle cell disease (SCD) sets precedence for how we show up in our daily lives. It is an...reactions6comments
Supporting Children With Chronic PainIn my role as a mother and sickle cell advocate, I often talk about acceptance. It starts with accepting the illness, after...reactions2comments
How Can I Support My Child With Sickle Cell?In my childhood days, anytime I had crises or got sick, my mum would be so emotional. She would hold my hand...reactions1comment
Mind Mapping & Staying Organized for Hospital VisitsHave you ever caught yourself lying awake in the middle of the night, going back to months ago to find out what...reactionscomments
Mental and Emotional Health With Sickle Cell: Finding SupportWe all know that sickle cell affects various parts of the body, but one thing I feel we need is more discussion...reactions1comment
Tips on Paying for CarePeople living with sickle cell disease (SCD) face high healthcare costs because of treatments and hospital visits. Health insurance plans may not...reactions1comment
