What’s in a Name?You've heard the popular phrase "Sticks and stones may break my bones but words will never hurt me." But name-calling hurts because it is an unfair attempt to falsely define...Reactions0reactionsComments0 comments
Ask the Advocates: The World’s View of Sickle CellSickle cell disease (SCD) is viewed and treated differently all around the world. Where you are born can determine whether you or your children are screened at birth. It can...Reactions0reactionsComments0 comments
Preparing for Dating as a CrescentWhen most people talk about dating and marriage, it’s about the other person. For me, my mental health, self-care, and happiness come first before anyone else. I think dating is...Reactions0reactionsComments0 comments
Baby FeverI have baby fever. I am not sure what is about this point in life where all my friends and peers are getting engaged or married, buying homes, and having...Reactions0reactionsComments2 comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Adopting the Mindset of a Pioneer Helped Me Find HealingAs of today, there are more treatment options, curative therapies, clinical trials, and studies to go around. Luckily, I've witnessed what the past ten years alone have yielded. Humans have...Reactions0reactionsComments0 comments
Potential Opportunities for Improving Sickle Cell CareStaying healthy with sickle cell disease (SCD) starts with early diagnosis. Treatment is available, but it can be hard to get all the care you need. The treatments have improved...Reactions0reactionsComments0 comments
World SCD Day and Juneteenth: Not a CoincidenceWorld Sickle Cell Day is June 19th, the same day that Juneteenth is commemorated. World Sickle Cell Day was established in 2008 by the United Nations after the World Health...Reactions0reactionsComments0 comments
A Masterclass in SurvivalThe act of survival can be summed up in 3 words – never giving up! Survival is deeply rooted in mental, physical, and psychological strength; navigating dark times and unpleasant...Reactions0reactionsComments0 comments
Going Through ItIt's been a while since I’ve been able to write. I tried several times and think I convinced myself I had writer's block. I didn’t though. The truth is, I...Reactions0reactionsComments0 comments
My Fitness Journey With Sickle CellFitness is one thing that I have found interest in recently. I decided to invest more time and effort into keeping fit. So, I started by setting a fitness goal...Reactions0reactionsComments0 comments
What Sickle Cell Cost MeSickle cell is a thief of joy and happiness. Most patients try to live through it all and smile as much as possible but this doesn’t take away the fact...Reactions0reactionsComments4 comments
Sickle Cell and Living in DenialI think being in denial that you live with sickle cell is something many warriors can relate to, especially if you live in Africa. In Nigeria (where I'm from), despite...Reactions0reactionsComments3 comments
The Importance of Psychosocial SupportRecently, I had to come to terms with the fact that my stem cell transplant was not a finite curative therapy. At first, I was angry, then defeated. But as...Reactions0reactionsComments0 comments
A Day in the Life of a Sickle Cell Advocate: Educating OthersThanks to my sickle cell advocacy work, I have conversations with people all over the world. To see the differences among countries, patients, and doctors is so beautiful. I would...Reactions0reactionsComments1 comments
Meeting Others With Sickle CellAs a child, I felt I was the only person in the world with sickle cell anemia. Silly me. It wasn’t completely my fault, though. I hadn’t met anyone else...Reactions0reactionsComments8 comments
My Mental Health With Sickle Cell DiseaseI recently got diagnosed with bipolar disorder. It seems the struggles of living with sickle cell keep piling up over the days, from one (unsolved) problem to another. I must...Reactions0reactionsComments2 comments
All Things Stem Cell Donation: Insight Into the Stem Cell Harvesting ProcessLast year, I launched a web project titled The Diary of a #SickleCellProdigy – a content series that gives audiences a closer look at a patient's life with and without...Reactions0reactionsComments0 comments
My Warrior Daughter Led Me to AdvocacyMy journey as a sickle cell advocate started 13 years ago, after my husband and I visited the obstetrics and gynecology (OBGYN) specialist. During the visit, to my surprise, she...Reactions0reactionsComments0 comments
DecisionsBefore medical school, the biggest decisions are deciding if you want to go to medical school, where to apply, and then hopefully, you get into more than one school and...Reactions0reactionsComments2 comments