Complications of Sickle Cell Disease...People with sickle cell disease (SCD) can experience many complications of the disease. Symptoms and complications are different for each person and can range from mild to severe. Complications tend...
Delayed Puberty and Sickle Cell Disease...Many teenagers with sickle cell disease (SCD) experience developmental delays because of anemia. Boys and girls with sickle cell anemia may see a puberty delay of about 2 years. Teenagers...
Hydroxyurea for Sickle Cell Disease...Hydroxyurea has been used to treat sickle cell disease (SCD) since the 1980s. The U.S. Food and Drug Administration (FDA) approved it for treatment of adults with SCD in 1998...
Caring for Someone with Sickle Cell...Taking care of someone with sickle cell disease (SCD) can be both rewarding and challenging. There may be many things to remember to keep your loved one healthy, and seeing...
Bone Marrow Transplant for Sickle Cell Disease...The only cure for sickle cell disease (SCD) is a bone marrow or stem cell transplant. This is a procedure where your own bone marrow stem cells are replaced by...
Blood Tests for Sickle Cell Disease...Regular blood work is an important way to track overall health. It is especially important for people with blood disorders like sickle cell disease (SCD). Blood tests during routine doctors...
Blood Transfusions and Sickle Cell Disease...Blood transfusion therapy is a procedure that is used to treat and prevent certain complications of sickle cell disease (SCD). Transfusions decrease the percentage of red blood cells that are...
Is a Clinical Trial Right for Me? 5 Questions to Help You Decide...Making decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in a clinical trial is right for you. There...Reactions0reactionsComments1 comments
Not Always a Placebo! Types of Clinical Trials...When many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But, not all clinical trials involve treatment! Even among...Reactions0reactionsComments0 comments
Asthma Medications and Sickle Cell Disease...Asthma is a chronic inflammatory condition that causes episodes of wheezing, shortness of breath, gasping, and chest tightness. Asthma is common in children with sickle cell disease (SCD), occurring in...
At-Home Pain Management of Sickle Cell Disease...About 1 in 3 people with sickle cell disease (SCD) experience pain every day. People with SCD treat pain at home 10 times more often than in the hospital, so...
Acute Chest Syndrome and Sickle Cell Disease...Acute chest syndrome (ACS) is a common and severe complication of sickle cell disease (SCD). It happens when blood flow to the lungs is blocked and usually follows an acute...
Boys and Men with Sickle Cell Disease...Men and women have similar rates of sickle cell disease (SCD). This is because SCD is not sex-linked. This means that the mutated gene in SCD is not on the...
What Causes Sickle Cell Disease?...Sickle cell disease (SCD) is a genetic disorder caused by a mutation in the HBB gene. This gene provides instructions for the body to produce a part of hemoglobin. Hemoglobin...
Types of Sickle Cell...Sickle cell disease is a group of inherited disorders. The specific type of SCD a person has depends on which HBB gene mutations they inherited from their parents. The HBB...
Clinical Trials as a Treatment Option...When you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or alternative medicine, clinical trials may provide another treatment...Reactions0reactionsComments0 comments
10 Things You Should Know About Clinical Trials...Each year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good news is that there are lots of resources...Reactions0reactionsComments1 comments
Why Wasn't I Chosen for a Clinical Trial?...In any clinical trial, participants must meet certain criteria to be eligible to participate. There are two commonly used terms when describing clinical trial eligibility, and those are “inclusion criteria”...Reactions0reactionsComments0 comments
Understanding Clinical Trials...A clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device, procedure, or change in behavior is safe and...Reactions0reactionsComments0 comments
Clinical Trial Terminology...There are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable experience associated with the use of a medical...Reactions0reactionsComments1 comments
