Blood Transfusions and Sickle Cell Disease...Blood transfusion therapy is a procedure that is used to treat and prevent certain complications of sickle cell disease (SCD). Transfusions decrease the percentage of red blood cells that are...
Is a Clinical Trial Right for Me? 5 Questions to Help You Decide...Making decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in a clinical trial is right for you. There...reactions1comment
Not Always a Placebo! Types of Clinical Trials...When many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But, not all clinical trials involve treatment! Even among...reactionscomments
Asthma Medications and Sickle Cell Disease...Asthma is a chronic inflammatory condition that causes episodes of wheezing, shortness of breath, gasping, and chest tightness. Asthma is common in children with sickle cell disease (SCD), occurring in...
At-Home Pain Management of Sickle Cell Disease...About 1 in 3 people with sickle cell disease (SCD) experience pain every day. People with SCD treat pain at home 10 times more often than in the hospital, so...
Acute Chest Syndrome and Sickle Cell Disease...Acute chest syndrome (ACS) is a common and severe complication of sickle cell disease (SCD). It happens when blood flow to the lungs is blocked and usually follows an acute...
Boys and Men with Sickle Cell Disease...Men and women have similar rates of sickle cell disease (SCD). This is because SCD is not sex-linked. This means that the mutated gene in SCD is not on the...
What Causes Sickle Cell Disease?...Sickle cell disease (SCD) is a genetic disorder caused by a mutation in the HBB gene. This gene provides instructions for the body to produce a part of hemoglobin. Hemoglobin...
Types of Sickle Cell...Sickle cell disease is a group of inherited disorders. The specific type of SCD a person has depends on which HBB gene mutations they inherited from their parents. The HBB...
Clinical Trials as a Treatment Option...When you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or alternative medicine, clinical trials may provide another treatment...reactionscomments
10 Things You Should Know About Clinical Trials...Each year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good news is that there are lots of resources...reactions1comment
Why Wasn't I Chosen for a Clinical Trial?...In any clinical trial, participants must meet certain criteria to be eligible to participate. There are two commonly used terms when describing clinical trial eligibility, and those are “inclusion criteria”...reactionscomments
Understanding Clinical Trials...A clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device, procedure, or change in behavior is safe and...reactionscomments
Clinical Trial Terminology...There are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable experience associated with the use of a medical...reactions1comment
Clinical Trial Participation...Every clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria) in order to take part in the study...reactions1comment
Welcome to Sickle-Cell.com Stories...At Sickle-Cell.com, we believe that we are stronger together than we are alone. Living with or caring for someone with sickle cell disease can be a challenge, but the more...reactions3comments
Help Center...You’ve come to the right place! Get answers to the most frequently asked questions about the inner workings of Sickle-Cell.com, as well as the organization that powers it all –...
Community...Have a question? Ask the community! Share your story or read about others living with sickle cell disease. Post in our forum boards and join the conversation! You can also...
