Understanding My Body - Coloring Page...Sickle cell disease is caused by an abnormal protein in red blood cells. This can cause different symptoms and complications, including joint pain, leg ulcers, and acute chest syndrome. Knowing...reactionscomments
What to Know When Planning to Have a Baby...Most women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of having complications during pregnancy. SCD also increases the...reactions2comments
Samuel Adeyinka...Sam was previously a health leader on Sickle-Cell.com. Sam has a Bachelor of Arts degree in Communication from Kean University and a Master of Social Work degree from Delaware State...
Self-Care in Uncertain Times...Self-care might sound like a buzzword, but in the face of pandemics and natural disasters, it’s downright necessary. There is a fine balance between protecting your physical health and guarding...reactionscomments
Helpful Tips for Your Next Doctor’s Visit...Routine healthcare is an important part of managing sickle cell disease (SCD). Regular care is usually managed by a primary care doctor or hematologist (a doctor who specializes in blood...reactions4comments
Will I Need to Pay to Be in a Clinical Trial?...Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous treatment didn’t work, and allow patients to be...reactionscomments
Jenica Leah...Jenica Leah is an award-winning author and blogger as well as a speaker living with Sickle Cell Anemia. Since being diagnosed with sickle cell at 6 weeks old, Jenica has...
Tips on Paying for Care...People living with sickle cell disease (SCD) face high healthcare costs because of treatments and hospital visits. Health insurance plans may not cover all medical costs. These deductibles, copayments, and...reactions1comment
Traveling with Sickle Cell Disease...For many people, traveling is an important way to relax and explore life. However, for people with sickle cell disease (SCD), traveling can be stressful. Certain aspects of travel, such...
Treatments for Sickle Cell Disease...Editor’s note: As of September 2024, Oxbryta (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns. Pfizer, the manufacturer of Oxbryta, has also ceased...
Pain and Sickle Cell Disease...Acute and chronic pain are very common for people with sickle cell disease (SCD). Almost 1 in 3 adults with SCD have pain every day, and more than 1 in...
Teens With Sickle Cell Disease...More than 90 percent of children with sickle cell disease (SCD) in the United States survive to adulthood. As children with SCD mature into adulthood, they begin to manage their...
Jaundice and Sickle Cell Disease...Jaundice is a common early symptom of sickle cell disease (SCD). It happens when sickled red blood cells die faster than the liver can filter them out. Free hemoglobin, a...
Dactylitis and Sickle Cell Disease...Dactylitis, or hand-foot syndrome, is often the first symptom experienced by children with sickle cell disease (SCD). It is a condition associated with pain and swelling of the hands and...
Fatigue and Sickle Cell Disease...Fatigue is a common symptom experienced by children and adults with sickle cell disease (SCD). It is defined as a feeling of exhaustion and lack of energy. Fatigue has a...
Bossing of the Skull...Abnormal bone growth is a common symptom for children with sickle cell disease(SCD). It usually occurs because of anemia. An enlarged forehead, called bossing of the skull or frontal bossing...
Abdominal Pain and Sickle Cell Disease...The most common symptom of sickle cell disease (SCD) is acute pain. Pain can affect any part of the body, but the abdomen is one of the most commonly affected...
Symptoms of Sickle Cell Disease...People with sickle cell disease (SCD) have abnormally shaped red blood cells. This can cause symptoms of blocked blood flow and anemia. Symptoms vary for each person and can range...
Tips for Dealing with Uncertainty...People with many chronic conditions, including sickle cell disease (SCD), experience “illness uncertainty.” This is the feeling when illness-related events are hard to explain, predict, or understand. The uncertainty could...reactions2comments
