Fatigue and Sickle Cell Disease...Fatigue is a common symptom experienced by children and adults with sickle cell disease (SCD). It is defined as a feeling of exhaustion and lack of energy. Fatigue has a...
Bossing of the Skull...Abnormal bone growth is a common symptom for children with sickle cell disease(SCD). It usually occurs because of anemia. An enlarged forehead, called bossing of the skull or frontal bossing...
Abdominal Pain and Sickle Cell Disease...The most common symptom of sickle cell disease (SCD) is acute pain. Pain can affect any part of the body, but the abdomen is one of the most commonly affected...
Symptoms of Sickle Cell Disease...People with sickle cell disease (SCD) have abnormally shaped red blood cells. This can cause symptoms of blocked blood flow and anemia. Symptoms vary for each person and can range...
Tips for Dealing with Uncertainty...People with many chronic conditions, including sickle cell disease (SCD), experience “illness uncertainty.” This is the feeling when illness-related events are hard to explain, predict, or understand. The uncertainty could...Reactions0reactionsComments2 comments
Symptoms and Complications of Sickle Cell Disease...Sickle cell disease (SCD) is a lifelong illness caused by an abnormal protein in red blood cells. Red blood cells become rigid and sickle-shaped. Sickle cells can block blood flow...
Structural Racism And Sickle Cell Disease...A history of discriminatory policies in the United States has led to racial inequalities in all levels of society, including education, healthcare, and wealth. Because people in the United States...
Splenectomy and Sickle Cell Disease...About 1 in 4 young children with sickle cell disease (SCD) experience a complication called splenic sequestration crisis. This happens when the spleen enlarges because of trapped red blood cells...
Speaking with Your Partner about SCD...Finding a spouse or partner can be especially stressful for people with SCD. Different aspects of the disease make dating more complicated. However, people with SCD are not inferior partners...
Sickle Cell Disease: Population Impacts...Sickle cell disease (SCD) affects about 100,000 people in the United States. Most people who have SCD in the United States are Black. It is also common in Hispanic Americans...
Sickle Cell Disease: Prognosis and Cures...Sickle cell disease (SCD) can cause long-term complications. Most people experience acute and chronic injuries to different organs. This can increase healthcare costs, reduce quality of life, and a shorten...
Women with Sickle Cell Disease...Sickle cell disease (SCD) is a disorder due to the inheritance of an abnormal hemoglobin gene. This gene is not on the sex chromosome. This means there is no sex-related...
Sickle Cell Disease: Myths and Misconceptions...Sickle cell disease (SCD) is a genetic disorder that affects red blood cells. A major challenge in treating people with SCD is a lack of information. Many adolescents transitioning to...
What Is Sickle Cell Disease?...Sickle cell disease (SCD) is a group of genetic red blood cell disorders. Normally, red blood cells are round and flexible. But people with SCD have rigid red blood cells...
Sickle Cell Disease Lifestyle...Lifestyle changes will not cure sickle cell disease (SCD). However, when they are combined with other treatments, lifestyle changes may reduce the frequency and severity of acute pain crises. It...
Seeking Help at the ER...When acute pain cannot be controlled at home, stronger pain medicines in an emergency room (ER) are needed. However, seeking help at the ER is often a stressful experience for...
Sickle Cell Crisis...Sickle cell crisis is the most common complication of sickle cell disease (SCD). Acute episodes of pain can occur anywhere in the body and may lead people to seek hospital...
Screening for Sickle Cell Trait...People who have 1 gene for sickle hemoglobin and 1 gene for normal hemoglobin have sickle cell trait (SCT). They usually do not show symptoms of sickle cell disease, but...
Pulmonary Tests for Sickle Cell Disease...Pulmonary (lung) disease is common and a leading cause of death for people with sickle cell disease (SCD). Pulmonary hypertension and acute chest syndrome are some of the most common...
Research on Sickle Cell Disease...Sickle cell disease (SCD) researchers expect powerful new treatments to come in the next few years. About 30 drugs are currently in late-stage clinical trials to treat SCD. These drugs...