Kehinde Salami...Kehinde was previously a health leader on Sickle-Cell.com. 39 years old born in Nigeria with sickle cell disease but didn’t find out I had it until I was in my...
Anyone have tips for managing in the winter?...The cold weather is sometimes hard for me to navigate....reactions4repliesWeather
Terms and Conditions for the Sickle Cell Awareness Month 2021 Giveaway...Official Rules, Terms and Conditions for the Sickle Cell Awareness Month 2021 Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID...reactionscomments
Chanel Taylor...I was diagnosed with sickle cell at birth, and require regular blood transfusions. Through my life experiences, I aim to reshape the stereotypes within the sickle cell community. Through the...
Parenting...Does anyone have parenting or caregiver tips?...reactions2repliesTips & AdviceFriends & FamilyCaregiving
What do you look for when finding a doctor?...Finding the right doctor is important. What do you look for? ...reactions1reply
Understanding My Body - Coloring Page...Sickle cell disease is caused by an abnormal protein in red blood cells. This can cause different symptoms and complications, including joint pain, leg ulcers, and acute chest syndrome. Knowing...reactionscomments
What to Know When Planning to Have a Baby...Most women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of having complications during pregnancy. SCD also increases the...reactions2comments
Samuel Adeyinka...Sam was previously a health leader on Sickle-Cell.com. Sam has a Bachelor of Arts degree in Communication from Kean University and a Master of Social Work degree from Delaware State...
Self-Care in Uncertain Times...Self-care might sound like a buzzword, but in the face of pandemics and natural disasters, it’s downright necessary. There is a fine balance between protecting your physical health and guarding...reactionscomments
Helpful Tips for Your Next Doctor’s Visit...Routine healthcare is an important part of managing sickle cell disease (SCD). Regular care is usually managed by a primary care doctor or hematologist (a doctor who specializes in blood...reactions4comments
Will I Need to Pay to Be in a Clinical Trial?...Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous treatment didn’t work, and allow patients to be...reactionscomments
Jenica Leah...Jenica Leah is an award-winning author and blogger as well as a speaker living with Sickle Cell Anemia. Since being diagnosed with sickle cell at 6 weeks old, Jenica has...
Tips on Paying for Care...People living with sickle cell disease (SCD) face high healthcare costs because of treatments and hospital visits. Health insurance plans may not cover all medical costs. These deductibles, copayments, and...reactions1comment
Traveling with Sickle Cell Disease...For many people, traveling is an important way to relax and explore life. However, for people with sickle cell disease (SCD), traveling can be stressful. Certain aspects of travel, such...
Treatments for Sickle Cell Disease...Editor’s note: As of September 2024, Oxbryta (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns. Pfizer, the manufacturer of Oxbryta, has also ceased...
Pain and Sickle Cell Disease...Acute and chronic pain are very common for people with sickle cell disease (SCD). Almost 1 in 3 adults with SCD have pain every day, and more than 1 in...
Teens With Sickle Cell Disease...More than 90 percent of children with sickle cell disease (SCD) in the United States survive to adulthood. As children with SCD mature into adulthood, they begin to manage their...
