Sickle Cell and PTSD...and still having to work, look after the kids, clean and take care of the home, look after your body, go to...reactions1comment
Help Center...At Health Union, we always approach our partner relationships with a desire to educate partners about real patient experiences and...
Sickle Cell Awareness Day: How and Why We Raise Awareness..."The Sickle Cell Community Consortium and Cayenne Wellness Center and Children's Foundation are two organizations I regularly partner with to advocate...reactionscomments
Hydroxyurea for Sickle Cell Disease...If you or your partner can become pregnant, you should use birth control during treatment and for some time after the...
Kidney Transplant...A living donor may even be someone you know, like a relative, partner, or friend....reactionscomments
Dating With an Invisible Illness...One question that I'm often asked is, "When do you tell a potential partner about your chronic illness?"...reactions3comments
Preparing for Dating as a Crescent...As sickle cell patients, we must learn to be able to live (freely) knowing there is a possibility we might never find a reactionscomments
Rhedd's Sickle Cell Disease Journey...My partner then felt disgusted that I was telling the whole world about my weakness (SCD) and claimed it was bad...reactions3comments
Medications for Sickle Cell Disease...If you or your partner can become pregnant, you should use birth control during treatment and for some time after the...
A Fireside Chat With Pain...From the moment we are born, important life lessons are passed on - work hard, get a job and find a reactions5comments
ADA Recommendations Examples & Navigating ADA request ...Hello All, Just looking for suggestions and positive experiences to help my partner navigate work place discrimination and requesting ADA accommodations...reactions1reply
A lesson learned...Before I got married I ran a genotype test,and the result came out that I as AA and my partner AS...reactions1reply
Clinical Trial Terminology...All parties involved know which study participants have been assigned to which interventions....reactions1comment
Community Team...The Community Team partners with the Editorial Team to provide clinical content that helps people live better with their condition....
Misconceptions on Drug Use and Dependency...In as much as I’d like to defend my point till I win, the fact also remains that all the above, although...reactions4comments
Living My Best Life...I started with just a couple of things and with accountability partners who had similar goals....reactions4comments
Here We Go Again...I am unwilling to compromise on my partner's genotype because I want children in the future and I don't want them...reactionscomments
My First Bankruptcy With SCD...The painter only had to come paint so I could set up and start work. He kept tossing me around for...reactions2comments
My Warrior Daughter Led Me to Advocacy...Most of them weren't married, but I wanted them to know that they should inquire about their partner's genotype before they...reactionscomments
What Is the Social Health Network?...community with other patient leaders as well as greater visibility in disease communities to facilitate my passion in empowering other patients to...reactionscomments