How To Survive Caregiver Burnout...caregiver to many sickle cell warriors, my contributions exceed the primary responsibilities of a caregiver, I am also a friend, a spiritual guide/prayer partner... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments3 comments
Preparing for Dating as a Crescent...As sickle cell patients, we must learn to be able to live (freely) knowing there is a possibility we might never find a partner because of our health’s... By Rhedd Maya4 min readBookmark for laterReactions 0 reactions Comments0 comments
Dating With an Invisible Illness...One question that I'm often asked is, "When do you tell a potential partner about your chronic illness?"... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments3 comments
Rhedd's Sickle Cell Disease Journey...My partner then felt disgusted that I was telling the whole world about my weakness (SCD) and claimed it was bad for his image.... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments3 comments
A Fireside Chat With Pain...From the moment we are born, important life lessons are passed on - work hard, get a job and find a partner - but what they fail to teach... By Wunmi Bakare5 min readBookmark for laterReactions 0 reactions Comments5 comments
Medications for Sickle Cell Disease...If you or your partner can become pregnant, you should use birth control during treatment and for some time after the last dose of hydroxyurea.... By Editorial Team 4 min readBookmark for later
A lesson learned...Before I got married I ran a genotype test,and the result came out that I as AA and my partner AS ,NOT knowing the lab attendant never carried out...Reactions 0 reactions Comments1 replies
Clinical Trial Terminology...All parties involved know which study participants have been assigned to which interventions.... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments
Community Team...The Community Team partners with the Editorial Team to provide clinical content that helps people live better with their condition.... By Editorial Team 1 min readBookmark for later
In America: What’s That?...Survey responses help us and our partners better understand the sickle cell disease community.... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
My First Bankruptcy With SCD...The painter only had to come paint so I could set up and start work. He kept tossing me around for a week.... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments2 comments
Living My Best Life...I started with just a couple of things and with accountability partners who had similar goals.... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments4 comments
General Mental Health Resources...It also partners with colleges in order to improve mental health resources for students of color.... By Editorial Team 5 min readBookmark for later
Misconceptions on Drug Use and Dependency...In as much as I’d like to defend my point till I win, the fact also remains that all the above, although very valid points are not perfect, as both... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments4 comments
Patient Leader Spotlight: Elle Cole...Then in 2021, I partnered with the Sickle Cell Community Consortium to co-host the first annual Sickle Cell Caregiver Summit.... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments2 comments
What Is the Social Health Network?...community with other patient leaders as well as greater visibility in disease communities to facilitate my passion in empowering other patients to be active partners... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Managing Healthcare Expenses...The providers, facilities, and suppliers your insurer partners with to offer healthcare services.... By Editorial Team 4 min readBookmark for later
A Day in the Life of a Sickle Cell Advocate...I have partnered with the adult hematologist to work on improving the care of adult sickle cell patients.... By Andressa Hunsel4 min readBookmark for laterReactions 0 reactions Comments2 comments
An Interview With Lena Harvey...Prior to this, I can recall having severe back pain, which is why it is important to know your and your partner's sickle cell status before expanding your... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments7 comments
Here We Go Again...I am unwilling to compromise on my partner's genotype because I want children in the future and I don't want them to experience the pain that I have.... By Halimat Olaniyan3 min readBookmark for laterReactions 0 reactions Comments0 comments