Thank You, Sickle Cell...When in a crisis and/or in hospital, it can sometimes be difficult to focus on anything other than the pain.... By Jenica Leah2 min readBookmark for laterReactions0reactionsComments0 comments
Can Parents Really Accept Sickle Cell?...She has had a pain crisis in her back for months, and she can't seem to get over it.... By Andressa Hunsel3 min readBookmark for laterReactions0reactionsComments5 comments
Planning and Preparing for Exercise With Sickle Cell...You're human and you are allowed to feel pain. So, if you feel pain or discomfort while working out, that means your body is ready to STOP.... By Abayomi Afolayan3 min readBookmark for laterReactions0reactionsComments1 comments
Sickle Cell and Hurricane Ian...Because if she develops a pain crisis in the middle of the storm, I can't go to the ER.... By Andressa Hunsel4 min readBookmark for laterReactions0reactionsComments9 comments
My Experience With Hydroxyurea...My doctor prescribed some pain meds and sent me on my way.... By Rhedd Maya4 min readBookmark for laterReactions0reactionsComments2 comments
Freedom to Be a Crescent...A doctor in the ER once said to me, “you are not in pain, you just want the drugs."... By Rhedd Maya5 min readBookmark for laterReactions0reactionsComments0 comments
Living With Multiple Chronic Health Conditions...When I have pain, I see it in my head. It’s like a character I personify. I can imagine the pain flowing through me like By Halimat Olaniyan4 min readBookmark for laterReactions0reactionsComments2 comments
Ask the Advocates: Rare Disease Day...Pain cannot be seen, it can only be felt so that adds to the complexity of treatment and management." ~ Wunmi The lack of awareness around sickle... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Challenging ER Visits...At home I'm able to manage her pain with Tylenol, Ibuprofen and Morphine. But if these don't help her she needs stronger pain meds or IV fluids.... By Andressa Hunsel3 min readBookmark for laterReactions0reactionsComments1 comments
An Interview with Andressa Hunsel...The worst part of being a parent of a SCD child is dealing with the crisis knowing that you can't take away the pain.... By sonia-dattaray3 min readBookmark for laterReactions0reactionsComments0 comments
Sleep Disorders and Sickle Cell Disease...Sleep disorders in SCD are closely related to pain, fatigue, and depression.... By Editorial Team 3 min readBookmark for later
6 Health Goals For Warriors...A proper diet can make a huge difference in the pain level and the overall health of warriors.... By Abayomi Afolayan4 min readBookmark for laterReactions0reactionsComments3 comments
Pain crisis at night time...Hey warriors. I’m Ezekiel, a 21 year old Nigerian living with SCD and I’ve always wondered if anyone else who’s got SCD suffers from midnight crisis or is it just...Reactions0reactionsComments8 replies
Things I Never Signed Up For...Who was responsible for the pain I had to endure during cold nights?... By Nuellalovesall1 min readBookmark for laterReactions0reactionsComments3 comments
Sickle Cell in the Time of COVID-19...I was used to feeling as if no one in the world could relate to or understand my pain.... By Halimat Olaniyan3 min readBookmark for laterReactions0reactionsComments0 comments
How to Make 2022 a Better Year With Sickle Cell...There is no way you can follow any plan when you are in pain.... By Abayomi Afolayan3 min readBookmark for laterReactions0reactionsComments3 comments
How Do Mutated Hemoglobin Genes Cause Sickle Cell Disease?...These pain crises can strike almost anywhere in the body, but often occur in the: Pain crises can occur without any warning.... By Editorial Team 3 min readBookmark for later
Helpful Tips for Your Next Doctor’s Visit...Also write down what treatments you use, such as pain medicines.... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments4 comments
Keeping the Hope Alive...When it rains, some of us experience intense pain and it’s the same for us in sunny weather.... By Rhedd Maya3 min readBookmark for laterReactions0reactionsComments3 comments
My Journey to Happily Ever After...Chronic pain is a primary marker for sickle cell so I’ve had to find integrative medicines and complementary therapies for pain management that work for... By Wunmi Bakare3 min readBookmark for laterReactions0reactionsComments5 comments