Sickle Cell Awareness Day: How and Why We Raise Awareness..."The Sickle Cell Community Consortium and Cayenne Wellness Center and Children's Foundation are two organizations I regularly partner with to advocate...Reactions0reactionsComments0 comments
Hydroxyurea for Sickle Cell Disease...If you or your partner can become pregnant, you should use birth control during treatment and for some time after the last dose of hydroxyurea....
Dating With an Invisible Illness...One question that I'm often asked is, "When do you tell a potential partner about your chronic illness?"...Reactions0reactionsComments3 comments
Preparing for Dating as a Crescent...As sickle cell patients, we must learn to be able to live (freely) knowing there is a possibility we might never find a partner because of our health’s...Reactions0reactionsComments0 comments
Rhedd's Sickle Cell Disease Journey...My partner then felt disgusted that I was telling the whole world about my weakness (SCD) and claimed it was bad for his image....Reactions0reactionsComments3 comments
Medications for Sickle Cell Disease...If you or your partner can become pregnant, you should use birth control during treatment and for some time after the last dose of hydroxyurea....
A Fireside Chat With Pain...From the moment we are born, important life lessons are passed on - work hard, get a job and find a partner - but what they fail to teach...Reactions0reactionsComments5 comments
ADA Recommendations Examples & Navigating ADA request ...Hello All, Just looking for suggestions and positive experiences to help my partner navigate work place discrimination and requesting ADA accommodations...Reactions0reactionsComments1 replies
A lesson learned...Before I got married I ran a genotype test,and the result came out that I as AA and my partner AS ,NOT knowing the lab attendant never carried out...Reactions0reactionsComments1 replies
Clinical Trial Terminology...All parties involved know which study participants have been assigned to which interventions....Reactions0reactionsComments1 comments
Rare In America: What’s That?...Survey responses help us and our partners better understand the sickle cell disease community....Reactions0reactionsComments0 comments
Misconceptions on Drug Use and Dependency...In as much as I’d like to defend my point till I win, the fact also remains that all the above, although very valid points are not perfect, as both...Reactions0reactionsComments4 comments
Community Team...The Community Team partners with the Editorial Team to provide clinical content that helps people live better with their condition....
Living My Best Life...I started with just a couple of things and with accountability partners who had similar goals....Reactions0reactionsComments4 comments
Here We Go Again...I am unwilling to compromise on my partner's genotype because I want children in the future and I don't want them to experience the pain that I have....Reactions0reactionsComments0 comments
My Warrior Daughter Led Me to Advocacy...Most of them weren't married, but I wanted them to know that they should inquire about their partner's genotype before they married or had children....Reactions0reactionsComments0 comments
My First Bankruptcy With SCD...The painter only had to come paint so I could set up and start work. He kept tossing me around for a week....Reactions0reactionsComments2 comments
Managing Healthcare Expenses...The providers, facilities, and suppliers your insurer partners with to offer healthcare services....
What Is the Social Health Network?...community with other patient leaders as well as greater visibility in disease communities to facilitate my passion in empowering other patients to be active partners...Reactions0reactionsComments0 comments
A Day in the Life of a Sickle Cell Advocate...I have partnered with the adult hematologist to work on improving the care of adult sickle cell patients....Reactions0reactionsComments2 comments
