Seeking perspectives on genetic engineering and sickle-cell disease

Good evening,

I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding genetic engineering. My current focus is on whether the UK’s ban on genetically edited embryos reflects public opinion or should be reconsidered.

I’d really appreciate hearing from those with personal experience of genetic conditions, such as sickle-cell anemia, to gain your perspectives on the ethical aspects of genetic engineering. If anyone would like to chat or call to speak on this, your input would be greatly appreciated.