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Connect With Other Sickle Cell Warriors!

Living with sickle cell can sometimes feel like a lonely journey, but remember, you are not alone! Our community is filled with other warriors that understand the unique challenges and triumphs you face daily!

This forum thread is dedicated to helping you connect with other warriors! Whether you're seeking support or friendship, or simply want to share experiences and insights, this is the place to reach out!

👥 Introduce yourself: Tell us a bit about yourself, such as your hobbies and interests. Feel free to share your journey with sickle cell, highlighting any experiences, treatments, or strategies that have made a difference in your life.

📣 Spread awareness: Help raise awareness about sickle cell by sharing informative resources, events, or initiatives happening in your community or online. Feel free to suggest potential ideas for events, such as educational sessions or online hangouts.

*Remember, this forum is a safe space for open dialogue, support, and respect! Be mindful of our community rule to not share personal contact information such as e-mail addresses, physical/mailing addresses, or phone numbers.*

  1. Hello my name is Jackie .l was diagonised with sickle cell disease 3 years ago .l am from Zimbabwe by brith but l reside in the uk .. bacl then then in Zimbabwe l was given a wrong treatment because my doctors had no idea what was wrong with me .Even since since l come in the Uk l been educated on what sickle cell is and sometimes l isolate myself because l have no onw to talk too and l do not have any friends to share with them about my journey with sickle cell. l had stroke when l was 5 years old and sometimes its lower my self confidence to make friends .l prefer to be alone because l turn to overthink something of how people will look nor judge me .

    1. Thank you for taking the time to share with us. I can't imagine how hard this has been for you but please know you have found a safe place here within our community. We understand what you're going through and we're always here, even if you just need an ear to vent to! Don't hesitate to reach out. What do you like to do in your free time? Any fun shows or movies that you enjoy? Sending positive vibes your way! -Beth (Team Member)

  2. Hi Ms. Wunmi, My name is Tolani. I just read your comment, "You lived with SCD?" Do you no longer have it? Can you share your testimony?

    1. Hi Tolani, I participated in a stem cell transplant three years ago and I no longer have sickle cell. You can read all about my journey here: If you go to my very first article, you can get a head start on what the process was like and see where I am today.

  3. I thank you so much for this forum. my name is Harriet, a newly discovered sickle cell mom. my daughter is four years. it was discovered last year. I remember being stressed and almost went into depression, but what encouraged me most was my daughter's strength and determination to get back on her feet after an episode.
    I received support also from my parents and her teachers at school .
    But above all the grace and mercy of God has been my strength.

    1. Thank you so much ,its truly encouraging to know we have someone who has gone through the pain we are facing on a daily. I am glad you are free of pain now, stem transplant is a very expensive procedure here and they are usually done in India. I am grateful for your support.

    2. I can imagine how scary that was for both of you. So happy to hear she has improved and is getting back to routine with being back at school. Always remember, we're always here for you! Don't hesitate to reach out. Sending you and your daughter gentle hugs and positive vibes! -Beth (Team Member)

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