Caring for Someone with Sickle CellTaking care of someone with sickle cell disease (SCD) can be both rewarding and challenging. There may be many things to remember to keep your loved one healthy, and seeing...
Mental and Emotional Health With Sickle Cell: Finding SupportWe all know that sickle cell affects various parts of the body, but one thing I feel we need is more discussion on how it affects mental health. Sometimes we...
Balancing Motherhood and Sickle CellHi guys, my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also living with sickle cell disease. We all know...
Back To School With Sickle Cell DiseaseThe new school year is now upon us. For the parents of children with sickle cell disease, it means we have to finish our preparing for school "list". Reminders for...
Comforting Other ParentsDo you recognize this? You are in the hospital with your child, and you get a call from a good friend. As you vent as a parent, you hear “It...
Caring for a Child With Sickle CellMost of the time when we are dealing with sickle cell disease, we are focusing on the pain episodes, sleepless nights, and all the pain medications. What we often forget...
Mind Mapping & Staying Organized for Hospital VisitsHave you ever caught yourself lying awake in the middle of the night, going back to months ago to find out what went wrong? Or preparing a session with the...
Teens With Sickle Cell DiseaseMore than 90 percent of children with sickle cell disease (SCD) in the United States survive to adulthood. As children with SCD mature into adulthood, they begin to manage their...
Will I Be A Good Parent? A Journey of AcceptanceHave you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math test. Or your driving test. You can practice,...
How Can I Support My Child With Sickle Cell?In my childhood days, anytime I had crises or got sick, my mum would be so emotional. She would hold my hand and say, “I’m so sorry you have to...
Transitioning from Pediatric to Adult CareThe teen years are an important time for young people with sickle cell disease (SCD). Nine out of 10 young people with sickle cell live into adulthood. This means they...
Can Parents Really Accept Sickle Cell?As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process look like? During Thanksgiving, we sat at the...
Infants and Children With Sickle Cell DiseaseSickle cell disease (SCD) is a lifelong inherited condition that affects red blood cells. Normally, red blood cells are round and flexible, so they can pass easily through blood vessels...
