Do you know any Ridiculous Myths about Sickle CellWhat are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...Reactions 0 reactions Comments11 repliesAwareness
World sickle cell awareness monthI am so excited about world sickle cell awareness month.. Can’t wait to experience the power of all you amazing warriors.. it’s going to be so colorful . I can...Reactions 0 reactions Comments0 repliesAwareness
UNCOMMON TRIGGERS Aside weather,climate,stress and anemia which are the main known triggers for crises, what other triggers do you have? Mine is dust and I still don’t know why…....Reactions 0 reactions Comments8 repliesAwareness
Awareness Month Forum: Be A Change MakerFor the month of September, we will be focusing on ways to elevate the voice of those living with sickle cell and make a change for future generations. What is...Reactions 0 reactions Comments3 repliesAwareness
Discussion - Sickle-Cell/Thalassemia.Does any one wish to discuss any issues to do with any one or all of these conditions?...Reactions 0 reactions Comments2 repliesAwarenessCopingFriends & Family
What are the long term effects of Tramadol?I want to know the adverse effects of Tramadol....Reactions 0 reactions Comments8 repliesCaregivingCopingAwareness
Mental Health MonthMay is Mental Health Month. Has sickle cell disease impacted your mental health? If so, how have you coped with it?...Reactions 0 reactions Comments5 repliesAwarenessCopingMental Health
Women's History MonthWhat are some unique challenges women with sickle cell face?...Reactions 0 reactions Comments6 repliesAwarenessCoping
2nd Sickle Cell In America SurveySickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...Reactions 0 reactions Comments0 repliesAwareness
Ways to Advocate In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...Reactions 0 reactions Comments1 repliesAwarenessTips & Advice